Genetic Resources

General Information

• Designer Genes - Thinkquest
  "If you'd like to . . . discover the intriguing topic of genetics in an easy-to-understand, non-technical style, you've come to the right place!"

  Genetics - About.com
  If you've got a question about any aspect of genetics, it is very likely answered here.

• GeneClinics - University of Washington, Seattle
  "Disease-specific information on molecular genetic testing and its role in diagnosis, genetic counseling, and when appropriate, surveillance of at-risk relatives:"
  
  • Neurofibromatosis 1
  • Neurofibromatosis 2

• Office of Rare Diseases - National Institutes of Health
  A wealth of information about rare diseases, including genetic counseling and research, patient information and support, and links to a lot of other online resources.

• Genetics Pages - About.com
  Covers a broad range of genetic topics, and is updated regularly.

• Genetic Centers, Clinics, and Departments - University of Kansas Medical Center
  Listing of genetic facilities and services throughout the USA, and a limited list of international resources.

  
  

Counseling

• Genetic Professional Societies - University of Kansas Medical Center
  Human, Medical, and Clinical Genetics organizations throughout the world.

  
  

Diagnosis

• Diagnosing Laboratories - Rare Genetic Diseases In Children
  A list of laboratories, throughout the world, which perform testing for genetic disorders.   Includes links to the websites of these labs, so you can check to see if they offer diagnostic testing specifically for neurofibromatosis.

  
  

Research

• How to Conquer A Genetic Disease - National Human Genome Research Institute
  Clear explanations of what genes and chromosomes are, what researchers look for, and efforts to find treatments and cures for genetic disorders.

• Neurofibromatosis Research at MGH - Massachusetts General Hospital
  Descriptions of current NF research projects.