http://neurosurgery.mgh.harvard.edu/NFR/
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One stop shopping for the BEST Neurofibromatosis information on the Web!
Welcome! My name is Carol, and my life partner, Gene, has Neurofibromatosis, Type One. We've collected links to some of the finest sources of information about NF on the Internet. There is a great deal of information out there! Unfortunately, a lot of it was not written with regular people in mind. On these pages, you will find carefully selected sites - only the best. We hope that this information will help answer your questions and that you'll find it helpful.
INFORMATION:
general information on both types of Neurofibromatosis, most including in-depth discussion of Type 1, also known as Peripheral Neurofibromatosis or von Recklinghausen's Disease
MORE INFORMATION ON NF-2 AND ACOUSTIC NEUROMA:
information on the more rare Type 2, also known as Central Neurofibromatosis or Bilateral Acoustic Neurofibromatosis
CHILDREN AND ADOLESCENTS: 
links pertaining specifically to children and teenagers who have NF
(includes scoliosis, epilepsy, and learning disability links, among others)
ASSOCIATED CONDITIONS:
additional conditions which may accompany NF
PHOTOGRAPHS:
photographs which demonstrate different visible aspects of NF, Type 1
GENETICS:
counseling, diagnosis, and research
SUPPORT:
support organizations and internet support groups
NEWSGROUPS:
Usenet newsgroups which may be of interest
A PERSONAL TOUCH:
home pages and articles by people who have, or know someone who has, NF or Acoustic Neuroma
SEARCH ENGINES:
looking for information not yet covered by this site?
ABOUT THIS SITE:
disclaimer, credits, awards, and author information
If you notice that I've missed something terrific, please let me know and I'll update the page. Also, if you find that a site is no longer up, or the URL has changed, please drop me a line.
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