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Thank you for visiting our pages. We would appreciate it if you would add to our GuestBook. NOTE: Please do not ask medical treatment questions here ! These Public GuestBooks are intended for Patients, Family and Friends as a way to:
But again, Please do not ask medical treatment questions here if you want a direct response from us ! If you are interested in a referral for a medical opinion you should check out the MGH Neurosurgical Service referral page or consult one of the many speciality pages listed on our site. We do not (yet) offer a Web Forum for direct responses to medical related questions. THANK YOU !
GuestBook Log Please Note: This is an unmonitored guestbook. We can not endorse or be responsible for its content. For medical advise consult your physician. I have infiltrating and widespread angiolipoma and am unable to find info on outcome, management, etc. Please, does anyone have any info? Carmel James <semajlemrac_AT_ozemail_DOT_com.au> Perth, WA - Tuesday, December 21, 1999 at 09:27:57 I have had 2 operations for a chorodoma about T12 on my spine. The first operation I had a metal cage to replace several verabras and 2 steet rods. Is there much of a outlook for this thing aways returning. Lawrence Crookston <crookstl_AT_eticomm.net> Rio Grande, NJ - Monday, December 20, 1999 at 20:50:29 A friend of mine has a Chordoma tumor, . I was wondering if anyone has any new information on treatments for this? Any alternative medicine or research that is being done would be helpful. Please email me. Gary Adams <GADAMS1_AT_FTC-I.NET> SUMTER , SC - Thursday, December 16, 1999 at 14:13:10 The term I am asking info about is Angiolipoma on the Kidney. Sorry yesterday I had a spelling mistake of the term and therefore may be I got a wrong info from you Rachely Edelman <rachely_AT_iol.co.il> Tel Aviv, - Wednesday, December 15, 1999 at 04:00:44 I am interested in information about Angliolipoma of the Kidney in a woman of 55. Information about symptoms and ways of traetment that exist and how many patients of this tumor were completely cured -information about cases. Racheli Edelman <rachely_AT_iol.co.il> Tel Aviv, - Wednesday, December 15, 1999 at 03:57:33 I will be grateful to know what is angilipoma of the Kidney and get information about cases that were treated for this illness Racheli Edelman <Rachely_AT_iol.co.il> Tel Aviv, - Tuesday, December 14, 1999 at 09:51:59 10-year-old son full of benign tumor in brain and spinal fluid; tried one chemo; now trying a second; radiation highly recommened to entire brain/spine...scared he will be vegetable after. Any good experiences with entire brain radiation on benign tumor(s)? Robin Pierce <pierce7_AT_dellnet_DOT_com> Berne, NY - Tuesday, November 30, 1999 at 11:28:37 i have an absess tell me more michael kennally - Monday, November 29, 1999 at 15:33:14 My husband has a prolactin tumor. He is 36 now. they found the tumor when he was 18 and thought they had removed it along with the pituatary gland, and he recieved radiation twice, but it came back.They say it is unoperable now. we are searching for some kind of help. They took him off Parlodel recently, they said , because his blood tested untolerable to it anymore, He has just started another medicine, but is fearful it won't work. I don't know what you can do to help, I am just grasping for straws right now, for him to recieve some sort of miracle. He feels bad alot of the time. His daily life is nothing more than, I'll do what I can do today, the rest of the day he spends in bed. Thanks for listening, Kathy Steed P.S. Thank you for your homepage. Kathy and Dwight Steed <PinkAngwl38_AT_aol_DOT_com> Jacksonville, FL - Tuesday, November 23, 1999 at 10:17:55 Please keep me posted on new Proton facilities pending CON approvals. Jenny M. Quach <jquach_AT_mcis.bsd.uchicago_DOT_edu> Chicago, IL - Thursday, November 18, 1999 at 14:22:38 Please keep me on your mailing list John Storey <j.storey_AT_ozemail_DOT_com.au> Melbourne, VIC - Saturday, November 13, 1999 at 01:03:39 About Chordoma? Brunello Terreni <terreni_AT_dm.unipi.it> Pisa, ITALY - Thursday, November 11, 1999 at 04:38:40 I am intrested about chordoma Brunello Terreni <terreni_AT_dm.unipi.it> Pisa, ITALY - Thursday, November 11, 1999 at 04:36:14 I had proton beam therapy at the Harvard Cyclotron Lab in 1990 for an AVM. I was just wondering if there was a patients newsletter or another way of speaking to other people that have had the same treatment about the same time. Debra Watrous <DWatrous_AT_msn_DOT_com> Plainfield, CT - Monday, November 8, 1999 at 23:29:55 My Father has a gliobalstoma grade four brain tumor. I was wondering if anyone has any new information on treatments for this? Any alternative medicine or research that is being done would be helpful. Please email me. Every minute counts. Kim <cadespad_AT_inebraska_DOT_com> NE - Monday, October 25, 1999 at 13:27:52 Looking for anyone who has been treated for prostate cancer with either radioative seed implantations or the Proton-bean radiation therapy. Would like to discuss their how they decided on the treatment for them, effects of treatments, positive doctor-patient relationships and treatment center and any side effects and prognosis they'd be willing to share. Any information would be greatly appreaciated. Thank you. Marcia Goodall <mdgood_AT_Concentric.net> Fresno, CA - Thursday, October 14, 1999 at 01:51:06 Am having a difficult time finding venders of cyclotron area safety monitoring equipment. Any suggestions? Please send to above e-mail address. .......and thanks.... Ralph Perez <lectric38_AT_lj.net> Las Vegas, NV - Tuesday, October 5, 1999 at 20:53:58 I recieved proton radiation for chondrosarcoma in 1990.Treatment started Feb.14th and ended April 6th. I have had many years with few side effects until recently the side effects are now starting to be more progressive. God bless the HCL for the number of additional years I have been able to enjoy my family and friends. And I am still fighting and will continue. Never give up. It is worth the fight. Nancy Lee Irwin <mmpjan_AT_aol_DOT_com> Gallatin, TN - Wednesday, September 15, 1999 at 21:34:08 my husband has been diagonosed with mestatic melanoma. I have searched the web tring to locate a clinical trial he may be eligible for, however the protocols seem to disqualify him. I am looking for a trial that allows a controlled brain met, lung, splene, and throat mets. is there any hope? Where can I go to get more info? loni kenneally - Wednesday, September 8, 1999 at 11:17:29 I was looking for some information about Hormone Defficiencies. Thank you pamela weatherford Pamela Weatherford <pamelaweatherford_AT_netscape.net> Lumberton, tx - Monday, August 30, 1999 at 11:57:18 This is my first visit to this site and i wanted to talk to any one who has had a hystrectomy at a young age. I would also like some info about HRT or alternatives, Thanks Amanda Amanda Briggs <amanda.briggs_AT_virgin.net> Bradford, - Sunday, August 29, 1999 at 16:25:20 I just found this sight and would like to know if there is anyone out there who has a child with enlarged ventricals of the brain. My 7 month old does and I would like to know more of what to expect in the future from another parent in the same cituation. Thanks alot. Peggy Frazee <crazee_AT_gateway.net> Sioux Falls, SD - Sunday, August 15, 1999 at 17:13:27 Proton treatment 2/98 for eye tumor. 3rd check up 8/2/99 still very much alive. thank you HCL and Mass.eye & ear . Mark O'Connor <moconnor03_AT_snet.net> E. Windsor, CT - Saturday, August 14, 1999 at 21:52:33 WOULD LIKE TO KNOW PROCEDURE AS TO HOW TO GET IN CONTACT WITH YOUR STAFF. WHAT RECORDS SHOULD BE SENT AND TO WHO.WIFE HAD GLIOMA GRADE 3-4 REMOVED 7/2/99 RECEIVED RADIATION TRTMT #18 OF 30 TODAY. THANK YOU. DAVID AVIZA <avizadt_AT_cbpu_DOT_com> COLDWATER, MI - Wednesday, August 11, 1999 at 21:50:50 NONE DAVE AVIZA <avizadt_AT_cbpu_DOT_com> COLDWATER, MI - Wednesday, August 11, 1999 at 21:39:57 looks interesting David Beckman <dbeckman_AT_usa.net> Hayward, CA - Tuesday, August 10, 1999 at 04:56:04 I JUST SIGNED ON AND WOULD BE VERY INTERESTED ON PROTON THERAPY FOR MY AUNTS BRAIN CANCER. PLEASE E-MAIL ANY AND ALL KNOWN INFORMATION IF POSSIBLE, EVERY DAY COUNTS BECAUSE HER CONDITION IS WORSTENING. THANK YOU FOR YOUR WEB-SITE. Jeffrey S. Beaudoin <JandBBeau_AT_aol_DOT_com> San Pedro, Ca. - Friday, August 6, 1999 at 02:25:07 I had surgery back in nov.1997 for a Chordoma Tumor and had to have Proton Beam Radation. And now I have another Chordoma Tumor. I would like to met people that had the something. Thank-you Sue Herbert <bluebird56_AT_hotmail_DOT_com > Centralia, WA - Thursday, July 29, 1999 at 00:00:13 Would like to hear from someone that has cordoma. My husband has a brain tumor and has had treatment and he is doing great. It takes will power to make it through this and have a good out look on life. Ruby Willis <jvance_AT_kih.net> carroll, ky - Thursday, July 22, 1999 at 22:05:35 Looking for successful therapies for late-stage Chordoma -Proton and surgery no longer working. Mathew Becker <tontophil_AT_aol_DOT_com> Philadelphia, PA - Tuesday, July 20, 1999 at 17:24:18 beam team worked on me in 89 and 90 as tony says there great robert dallen.missouri. robert dallen. <nutrino_AT_lakepc_DOT_com> osage beach, mo. - Friday, July 16, 1999 at 17:32:48 Diagnosed with infiltrating angiolipoma and looking for info of any relevance Carmel James <toneandtan_AT_bigpond_DOT_com> Perth, WA - Monday, July 12, 1999 at 10:11:03 Looking for newest informations about heavy particle therapy František Cimmermann, M.D. <CimmermannF_AT_healthnet.sk> Trenčín, - Thursday, July 1, 1999 at 05:26:30 Nuclear Physics Frank W.Peters <frank_AT_ftel.net> Thousand Oaks, ca - Thursday, July 1, 1999 at 01:07:53 I AM LOCKING FOR INFORMATION ABOUT CLIVAL CHORDOMA IN CHILDHOOD. THANKS. MYRIAM LEY <med000395_AT_nacom.es> CADIZ, - Saturday, June 26, 1999 at 07:00:56 I REALLY ENJOYED YOUR WEB SITE, IT WAS VERY EASY TO READ AND UNDERSTAND, I WOULD LOVE TO HAVE MORE INFO. PRENTA DUSHAY <WHITEJEEP_AT_ATT.NET> STERLING, MI - Monday, June 21, 1999 at 22:12:38 I live near Loma Linda and will be talking to them about proton beam therapy for my PCa. Thanks for your help. Paul B - Paul <pbronson_AT_gte.net> Huntington Beach, CA - Sunday, June 13, 1999 at 18:51:16 Looking for info on a certain kind of tumor, clival chordoma Pete Simpson <pgsimpson_AT_freewwweb_DOT_com> Weatherford, tx - Thursday, June 10, 1999 at 18:39:15 Hello Everyone - Recently diagnosed with prostate cancer - seriously considering MASS GEN HOSP Proton treat ment regime - would like to be in touch with those who have already undergone this treatment for prostate can cer. Good luck and best wishes to all. Harris Gruber <varnishman_AT_earthlink.net> Charleston, SSC - Tuesday, June 8, 1999 at 00:11:50 I was curious as to whether this was the lab that employes that infamous senior citizen, Elliot Hammerman. Mr. Hammerman has been wanted throught the world for numerous reasons.(none that can be written here)..As a long time friend I can attest to anything he claims and as to the claims of others. Jack Kalman <jkalman_AT_prodigy.net> Long Beach, CA - Thursday, June 3, 1999 at 15:24:54 Hi gals and guys. remember me ? probably not. However I am ever so greatful to a wonderful team that took such good care of me last fall. am doing fine .no side effects. and will see the master Dr.Shiply when I return from florida in june . thanks again for being so great. paul x oneill <pxoneill_AT_webtv.net> boca raton , fl - Sunday, May 23, 1999 at 01:44:06 I have PCa.PSA 8.4 Gleason 3+3 (6) William H. Foeman <nanayaw_AT_home_DOT_com> Omaha, NE - Sunday, April 11, 1999 at 19:57:24 Forgot to include my e-mail address for any responses on the effects of Interferon. Thanks Julie McGuire <julie.mcguire_AT_mcda_DOT_org> - Friday, April 2, 1999 at 10:48:05 Frederick was diagnosed as having "diffusely infiltrating fibrallary Astrocytoma" of the spinal cord. Please ! I need information, telephone numbers, names of hospitals & clinics in the USA / Europe that specialises in same treatment. We are quite desperate. Regards, Estelle. Estelle Bezuidenhout <estellebez_AT_hotmail_DOT_com> Uitenhage, Eastern Cape - Wednesday, March 31, 1999 at 13:23:56 Rec'd proton beam radiation at Harvard this past Dec. '98 and started Interferon Therapy. Having side effects from Interferon and would like to hear from any of the only 100 people that are in this study who may be having problems. Julie McGuire - Monday, March 29, 1999 at 15:39:11 I am interested in any info about Proton (Photon?) Beam therapy for Choroidal Neovascular Membrane Ray C Wilcox <raycwilcox_AT_ibm.net> Palm Springs, CA - Thursday, March 18, 1999 at 10:46:45 I was diagnosed with a cordoma brain tumor in 1996. Surgery was succussful in removing only a small portion. Followed up with SRS at Temple University. Anyone else out there with this particular problem. Phyllis Vaughan <pvaughan_AT_jngray_DOT_com> Richmond, VA - Wednesday, March 10, 1999 at 16:02:19 Thank you for a very enlightening web page. I have a tumor which, among other things, has grown into my right eye and is impossible to remove. One year ago my vision was almost gone but then I had proton beam therapy in Sweden. Now the tumor has stopped growing and half of my vision is back and getting better. Anna M. - Saturday, March 6, 1999 at 16:05:26 Thank you for more infor on AVM. I am going for gamma treatment on March 18th. Wouldn't mind a pen pal if you knew someone who already went through this. Thanks Allison Firestone <homefire_AT_fastrans.net> Maryland Heights, MO - Saturday, March 6, 1999 at 00:57:20 PLEASE SEND ME INFORMATION ON THE LATEST TECHNOLOGY ON ONCOLOGY, FOR BRAIN TUMORS. NOT CANCER liezel bekker <liebjon3_AT_yebo.co.za> midrand, - Monday, February 8, 1999 at 13:16:34 I am in search of information regarding treatment of Acromegaly in the 1920's and 30's. If you have any info, please forward it. Thank you Jaime Klein <Samlet_AT_aol_DOT_com> - Saturday, February 6, 1999 at 13:59:01 I received radiation from the Cyclotron and Mass General from Oct. 1997-Dec. 1997. All the staff was very friendly and I received the best care. Don Spaid <dspaid_AT_yahoo_DOT_com> Orangeville, PA - Friday, February 5, 1999 at 23:00:10 I went to the Karmanos Cancer Institute at the Harper Hospital in Detroit, Michigan. I had a high Gleason score and a PSA that went up to 22. I now have a PSA of 0.3 after treatment on their cyclotron. I recommend it to all with prostate cancer. Ralph E. Eccles <RalphEccles_AT_prodigy.net> Belleville, MI - Thursday, February 4, 1999 at 17:54:58 I am working in Institute for High Energy Physics, Protvino, Moscow region, Russia, We are working on modification of our accelerator for use in carbon ion therapy. Yuri Antipov <antipov_AT_mx.ihep.su> Protvino, Moscow region - Thursday, February 4, 1999 at 10:15:38 I am working in Institute for High Energy Physics, Protvino, Moscow region, Russia, We are working on modification of our accelerator for use in carbon ion therapy. Yuri Antipov <antipov_AT_mx.ihep.su> Protvino, Moscow region - Thursday, February 4, 1999 at 10:13:29 I have recurrent gbm grade IV. I've had 2 craniotomies, also stereotactic radiosurgery. Any suggestions?? Chuck Albers <chajr1_AT_aol_DOT_com> - Tuesday, February 2, 1999 at 16:06:56 Looking for information on tumors of the spine (especially those located inside the spinal column). Please direct me to books, articles or web sites containing this information. Thank you. Joanne Williams <lci_AT_techcom.net> Petersburg, VA - Friday, January 29, 1999 at 20:16:07 Has anybody herd of anything about brain surgerys for replacing good brain cells inplace of damaged brain cells. It is the only hope for my son. He has hallor-verdon spatz decease. It is in the basil ganglea area of the brain. Please respond. Vincent N. Colela <pootz_AT_penn_DOT_com> Bradford , Pa - Monday, January 25, 1999 at 13:18:10 My brother has a reoccurance of an "Oligodendroglioma Tumor" He has just this week been rediagnosed. A plan is under way. It is in the motor area of his brain. He is a 21 year survivor from 1st surgery/cobalt treatment. We continue to pray for his survival and recouperation. We do have hope. Thank you, Mary E. Taeger Mary E. Taeger <mindyt_AT_mediaone.net> Beverly, MA - Saturday, January 23, 1999 at 20:42:41 My father is going through treatment. I just am trying to find out all the information I can about his treatment and cancer. Lorraine Schoen <Kas2Lms_AT_aol_DOT_com> Arlington, ma - Saturday, January 16, 1999 at 10:50:48 I have had a sacral chodoma surgically removed. Now I have several recurrent tumours. I am interested in any complimentary or non surgical treatments. If anyone has any information please reply. Mark Marshall <tony_AT_omninet.net.au> Albany, WA - Monday, January 11, 1999 at 10:25:23 I found your web page very interesting. A young friend of our daughter was recently diagnosed with Glioma. Frankie <kfbell_AT_flash.net> Midwest City,, Ok. - Friday, January 8, 1999 at 18:31:40 I wondered if anyone wanted to discuss hypothalamic disorders or related topics. (Hypogonadism, sleep disorders, melatonin, photosensitivity, migranes, syncope, pituitary microadenomas, etc.) Thanks! Jeff Hansen <jhansen_AT_imt.net> - Friday, January 8, 1999 at 01:25:18 Hey Dr. Liebsch you are the best!! Sure do miss you guys Dr. Liebsch I wish you could stay in contact with me. Ruby Willis <jvance_AT_kih.net`> Carrollton, Ky. - Thursday, January 7, 1999 at 20:10:14 I have been diagnosedwith a dhordoma at the base ofmy spine. I am interested in hearing from individuals who have experienced this condition. I am also seeking info regarding physicians and hospitals that have expertise in this area, where to go and who to see. Ellie <pejr_AT_worldnet.att.net> Neenah, WI - Friday, January 1, 1999 at 16:12:20 Hitachi Australia Ltd with the co-operation of Hitachi Ltd, Japan is researching the feasibility of constructing a Proton Beam Facility in Australia. We would be grateful to receive the name of a contact at the Northeast Proton Therapy Center with whom we could discuss the issues involved in establishing such a facility. Susanne Bleasel <sueb_AT_hitachi_DOT_com.au> Sydney, nsw - Tuesday, December 29, 1998 at 00:44:05 We are just returning from Boston. The people are great and the doctor we had I really liked. Dr. Liebsch you are the best. Ruby Ruby Willis <jvance_AT_kih.net> Carrollton, Ky. - Monday, December 28, 1998 at 09:13:39 Best regards and seasons' greetigs to all the friends at HCL. I am glad to find Particles and all the other Proton information on the Web Riccardo Santoni <R.Santoni_AT_dfc.unifi.it> Firenze, - Thursday, December 24, 1998 at 03:05:29 I have a recurrent Hemangiopericytoma Mike Andersen <mickel_AT_slip.net> San Jose, CA - Monday, December 7, 1998 at 14:13:49 I would like to know how the Proton Beam Radiosurgery can treat tumors of the spinal cord at L3-T12. I am looking for a non-invasive surgery that can help my case. I hope you will give consideration to this inquiry thanks. I am from the Philippines. Alfredo L. Festin <alfestin_AT_mozcom_DOT_com> Davao City, - Sunday, December 6, 1998 at 06:18:35 Return to the HCL Homepage Disclaimer: The information and reference materials contained herein is intended solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient's own physician.© Copyright
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