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Sorry, these guestbooks are closed
Thank you for visiting our pages. We would appreciate it if you would add to our GuestBook. NOTE: Please do not ask medical treatment questions here ! These Public GuestBooks are intended for Patients, Family and Friends as a way to:
But again, Please do not ask medical treatment questions here if you want a direct response from us ! If you are interested in a referral for a medical opinion you should check out the MGH Neurosurgical Service referral page or consult one of the many speciality pages listed on our site. We do not (yet) offer a Web Forum for direct responses to medical related questions. THANK YOU !
GuestBook Log Please Note: This is an unmonitored guestbook. We can not endorse or be responsible for its content. For medical advise consult your physician. Interesting, but I could not find a discussion of how the piratical beam is shaped or conformed to a given area within the body. Henry K. Berry, Jr <hberry_AT_visi_DOT_net> Newport News, VA - Wednesday, February 6, 2002 at 22:30:31 My Mother was just told that she has cancer in her lung and the left frontal part of her brain. She start treatment this week. I want to know if this therapy is given for my Mom's cancer. Loma Linda Hospital out here does, but it looks as if it is done only for prostate cancer. I would appreicate any information that would give us some hope... Barbara Christensen <chtrbox_AT_linkonline_DOT_net> Menifee, Ca - Monday, February 4, 2002 at 11:56:15 I am doing research for a school project to see how scientists break down substances to smaller particles.The Cyclotron is fascinating. I did not know there were a number of them in the world. Thanks. Roxanne Castle <kermit526_AT_juno_DOT_com> Avondale, AZ - Sunday, February 3, 2002 at 23:17:34 I HAVE A GRADE 4 GBM IN OCCIPTIAL REGION AFFECTING MY VISION- DIAGNOSED SEPTEMBER 01. I HAVE HAD SURGERY, 6 WKS OF RADIATION, 2 ROUNDS OF TEMODAR, AM CURRENTLY ON 600 MG OF DILANTIN, 4 MG OF DECADRON,HYDRODYURIL FOR ELEVATED BP, AND A NUMBER OF OTHER MEDS THAT I AKE AS NEEDED (ANTIVERT, NYSTATIN, XANAX, DILAUDID AND PRESCRIPTION PEPCID. I AM GOING FOR MY 5TH MRI ON FRIDAY FEB 1. I HAVE 2 REQUESTS - I WOULD LIKE THE NAME OF A GOOD NEURO ONCOLOGIST IN THE GREATER DETROIT AREA - I HAVE A NEUROSURGEON, A NEUROLOGIST, AN A RADIATION ONCOLOGIST AND A NEURO OPTHAMOLOGIST - AND I LIKE AND TRUST THEM ALL, HOWEVER NONE OF THEM SPECIALIZE OR KNOW A GREAT DEAL ABOUT GBM. MY SECOND QUESTION IS i KNOW MY PROGNOSIS IS 6 MONTHS TO 2 YEARS, BUT I WOULD LIKE TO KNOW WHAT TO EXPECT AS THE DESEASE PROGRESSES. DO THE SEIZURES INCREASE IN FREQUENCY, I HAVE BEEN TOLD THIS COULD TURN INTO LEUKEMIA, I'VE BEEN TOLD I MIGHT ACTUALLY DIE FROM A STROKE, ETC ETC. I WOULD LIKE TO HEAR FROM ANYONE WHO HAS BEEN THROUGH THIS FOR THEMSELVES OR A FAMILY MEMBER WHO HAS BEEN A SUPPORT FOR A GBM PATIENT. I DO NOT INTEND TO BE MORBID IN MY QUEST, I JUST WOULD LIKE TO KNOW WHAT I CAN EXPECT IN THE MONTHS TO COME SO THAT I CAN MAKE THE APPROPRIATE MEDICAL AND MORAL DECISIONS. I HAVE FOUND MOST PHYSICIANS ARE VERY EVASIVE WHEN ASKED THESE QUESTIONS - AND I UNDERSTAND THEIR MOTIVES, BUT I NEED ANSWERS. ALSO - MOST CANCER PATIENTS LOSE WEIGHT DURING THEIR ILLNESS, HOWEVER, I HAVE BALLOONED UP 35 LBS SINCE SEPTEMBER AND CAN'T SEEM TO LOSE AN OUNCE. I HAVE TRIED ALL TRADITIONAL DIETS, BUT UP TIL NOW HAVE BEEN TO AFRAID TO TRY ANYTHING MORE DRASTIC. ANY HELP THAT ANYONE COULD PROVIDE WOULD BE WELCOMED AND DEEPLY APPRECIATED. THANK YOU FOR TAKING THE TIME TO EAD THIS AND FOR THIS WEB SITE - IT MAY SAVE MY SANITY. SUE JACKSON <GOLIATHANDCANDACE_AT_HOME_DOT_com> wARREN, MI - Tuesday, January 29, 2002 at 00:40:52 Have recently had surgery in t2-t6 area for an angiolipoma .Am currently working Through rehab to get my legs going again am wondering about possible ,recurrance and any ideas re preventation or other treatments as surgery was not my first option but turned out to be my only one due to the rapid detioration Lyn Crossley <djkier_AT_hotmail_DOT_com> Edinburgh, - Monday, January 28, 2002 at 10:38:01 My father has a glioblastoma multiform. He was dx in oct 01. we just finished radiation on month a go. He had his second seizure to night. we go back to the Dr. this thurs to discus chemo and alternative methods. Any information would appreciated. Kelly <knick99_AT_acnet_DOT_net> - Monday, January 21, 2002 at 23:03:32 Thanks for putting this site together. I have been diagnosed with acoustic neuroma. I would like to learn alternatives to surgery. I live in the Denver, Colorado area. Stu Klugler <stuknicks_AT_aol_DOT_com> Lakewood, CO - Tuesday, January 15, 2002 at 08:44:54 Would appreciate comments on proton beam therapy for prostate cancer. Am 79, and have been in watchful-waiting since 1995. PSA is now 10.3, and am scheduled to see an oncologist soon re: radiation. All experience and advice will be appreciated! Harry Filliger <harev_AT_fastdial_DOT_net> Kingston, MA - Sunday, January 13, 2002 at 17:32:23 great site. ezguy <mp3rank_AT_tripod.cl> - Saturday, January 12, 2002 at 13:29:31 I experienced proton beam therapy at HCL for a remaining portion of a chordoma of the C2/3 area. The surgery was done at Univ. of Md. Jan.,1998 and treatment received July, 1998. There was little or no side effects and thus far held the remaining portion of the tumor at bay. Thanks to Dr. Munzenrider, Pat, Ena and Elliot. Thanks, to Hope Lodge who housed us for three months. The drivers who took me to treatment and all those who helped make it easy to be away from home. You are unselfishly devoted and I am most grateful. If anyone out there has questions or comments about chordomas or the treatment you may contact me at bam_AT_ccomm_DOT_com Joe Martoccio <bam_AT_ccomm_DOT_com> Hazleton, Pa. - Thursday, January 10, 2002 at 22:33:01 WELL I WENT THROUYGH THE WEBSITE AND ITS AN INDEED NICE ONE. I AM A STUDENT ASPIRING TO BE A NEUROSURGEON. BYE amit laxman baliga <amit_baliga_AT_indiatimes_DOT_com> vadodara, guj - Saturday, January 5, 2002 at 03:21:02 Topamax can be Life Threatening I am a 23yr old female and have been on Topamax for 2 years now to prevent grand mal seizures.This is after having been on other anti-seizure drugs initially, which i could not tolerate their side effects.These other drugs were Dilantin, Klonopin, Tegretol. Treatment has always been only one drug at a time.I went from one to the next over the last three and a half years. I have suffered from the terrible fatigue, inability to think, and hair loss,but the most damaging to my health is my weight loss. My normal weight prior to the Topamax use was 125 lbs,which was ideal at 5'5". Im know at 95 lbs. and a bag of bones. I have no appetite and no desire to eat. Do other people on Topamax long term end up this way? I don't know what to do. My dosage was reduced one time by the doctor and I had a terrible seizure.I am so fearful of stopping the Topamax for seizure will be certain,as the doctor has confirmed.I am also scared that continued weight loss could be fatal. Is there any way to resolve this dilemma? missy <m3333_AT_bellatlantic_DOT_net> tucson , az - Friday, December 28, 2001 at 13:15:15 I recently moved to NIRS. Nobuyuki Kanematsu <nkanemat_AT_nirs.go.jp> Chiba, - Tuesday, December 25, 2001 at 03:42:19 I recently moved to NIRS. Nobuyuki Kanematsu <nkanemat_AT_nirs.go.jp> Chiba, - Tuesday, December 25, 2001 at 03:42:14 Looking for a Neurosurgen who has done surgery on Arnold Chiari Malformations before. Jim Rewinski <JPRewinski_AT_netscape_DOT_net> Southampton, NY - Tuesday, December 18, 2001 at 19:22:26 very very informative.Keep up the good work. kumar <swarlees_AT_yahoo_DOT_com> Manassas, VA - Friday, November 30, 2001 at 16:09:27 This page is wonderful-it helped me! Karen Beckwith <heavenzstar228_AT_aol_DOT_com> Erie, pa - Sunday, November 25, 2001 at 04:21:06 i was treated with the cyclotron in 1994 and would like to know if this machine is still at harvard? allen peters <peppep141_AT_losch_DOT_net> pottsville, pa - Saturday, November 24, 2001 at 18:22:17 My twin brother is 45,he has a reoccurance of glioblastoma grade 4,he has just under gone surg.in Huston Texas,he has started oral chemo again,what are his chances for survival,and what can I expect in the way of changes?Their is still part of the tumor resting up against the main artery in his brain.Desperate for answers!! Deanna Grogan <Bustyboog_AT_netscape_DOT_net> Saranac Lake, NY - Friday, November 23, 2001 at 08:05:21 http://www.webmasterworld_DOT_com/ http://www.webmasterworld_DOT_com/ - Monday, November 19, 2001 at 03:51:46 I'm trying to get information about Blue Rubber Bleb Nevis syndrome. Any information would be appreciated. Joy Jacobson <JJacob98_AT_aol_DOT_com> Arlington, VA - Saturday, November 17, 2001 at 14:05:52 Very good site,really enjoyed my visit and reading your guestbook,I will call back soon to see if you have added anything new.Thank you. Nicky O Donnell <nickaus1_AT_yahoo_DOT_com> Cork, n/a - Friday, November 16, 2001 at 15:35:19 http://www.ihelpyouservices_DOT_com/ http://www.ihelpyouservices_DOT_com/ - Friday, November 16, 2001 at 08:29:20 I kinda like it. Thanks! Cherrie Nelson <cnelson12_AT_aimultimedia_DOT_com> Tacoma, WA - Thursday, November 15, 2001 at 20:20:34 I was treated in 1997 for an AVM which was located deep in my brain. Stereotactic radiosurgery was the option that was chosen. I was treated by doctors from both MGH and BWH. As my AVM was large, I am returning in 2002 for more treatment. Thanks to the neurosurgeons and neurologists who treated me! Susan <ddenmorg_AT_citlink_DOT_net> NY - Thursday, November 8, 2001 at 17:53:53 Thanks for reducing the number of non-elementary particles I have to count! UK IT Jobs - Thursday, November 8, 2001 at 14:02:27 Great site Randall E Eagen - Wednesday, November 7, 2001 at 17:52:39 This time last year I was undergoing proton radiation treatment for a skull base tumor called a chondrosarcoma . Thanks to Dr. Liebsch and a wonderful staff im now back to work and have returned to my normal activities!!!!! A special thanks to the Hope Lodge and the drivers that volunteer their time to make it possible for us to get to our treatment appointments, your truley special people and ill forever thank you. I wish all out there wellness and if anyone has questions about the proton beam treatment feel free to email me. Belinda Belinda Eggleston <trynthg_AT_hotmail_DOT_com> Charleston, WV - Tuesday, October 23, 2001 at 11:10:30 I am a receipt gamma knife patient and thankful to God for the procedure and technology! TODD CUNNINGHAM <TODD.CUNNINGHAM_AT_NEG.PGE_DOT_com> CYPRESS, TX - Monday, October 22, 2001 at 10:51:20 Can you tell me the meaning of the word hamartoma as relates to the lung? Thank you. Robert Feher <rofe_AT_robsoncom_DOT_net> Sun Lakes, AZ - Sunday, October 21, 2001 at 23:23:22 Looking to speak to anybody who is going to have, is currently undergoing, or has already completed, proton beam therapy for the treatment of AVM Brenda MacDonald <david500_AT_sympatico.ca> - Monday, October 15, 2001 at 22:10:50 I think you have a very informative site, but am wondering if you could point me in the right direction for the history of neurosurgery. I have a paper to write for school and I wanted my topic to be the history of neurosurgery. Just need more info. Thanks. Joi <amlaps2_AT_aol_DOT_com> new milford, ct - Monday, October 15, 2001 at 20:54:05 I have had a recurrence of a chordoma in the sacral area. It has again been surgically removed. I subsequently had proton beam treatment at the Loma Linda Medical Center in California, which should prevent another recurrence. I am very enthusiastic about this treatment. If anyone would like to hear of my personal experience with proton beam, they are welcome to contact me. Dee Norman-Crall <deenorman_crall_AT_hotmail_DOT_com> - Thursday, August 30, 2001 at 17:53:34 Great to find your site I have hundreds of angiolipoma and have been trying everything to get help julie <cool_stevo_AT_hotmail_DOT_com> melb, vic - Thursday, August 30, 2001 at 00:31:40 Hello, I'm a friend of the Loma Linda Proton Center, Dr. Yonemoto & others. I write particle information in a newsletter for America Century 21 "The Laryngectomee". Some 15 monthly newsletters have carried the importance of Proton Radiation Therapy over the past two years. Our laryngectomee Association/club are advocates in the realm of getting HMO's to pay for Proton & Hyperbaric Treatments when they are needed and not 90 days after the windwo of opportunity closes. I am a patient that received proton therapy following total laryngectomee. It was not necessary to use other radiation or chemotherapy, that was April 1999. Thank You, Don DONALD G. LAYTON <inlandlarynxlink_AT_pacbell_DOT_net> Riverside, CA - Sunday, August 19, 2001 at 22:49:11 Prostate Cancer can be successfully treated with conformal proton beam radiation therapy in most cases. If you need to contact a PCa patient who has completed PBT to discuss the procedures, etc., I can possibly find one near you. Cal Jones <zzzzjones_AT_hotmail_DOT_com> Redlands, CA - Saturday, August 18, 2001 at 13:12:12 My daughter Dakota was a patient in Nov/Dec of the year 2000. We had a wonderful experience, finally, a place full of hope.It is particularly special because of all the people that are there everyday.They are so kind and understanding. We will never forget them. Kathy Koop <kathyrk_AT_netzero_DOT_net> - Monday, August 13, 2001 at 22:24:56 Age 70,symptomless,insignificant enlargement,biopsy Gleason 3+3,PSA=6.0This information 3 weeks old,but would appreciate receiving info on Proton Treatment option information from you. Respectfully, C.G.Jackson,Jr. C. G. Jackson,JR. <cgjj2_AT_aol_DOT_com> Cocoa Beach, FL - Monday, July 23, 2001 at 12:52:35 I would like to hear from other "chordoma" patients....I am doing very well Norman Clark <normc_AT_ traverse_DOT_net and also normc_AT_pcfl_DOT_net> Traverse City, Mi - Saturday, July 21, 2001 at 14:59:46 I need information...I have been diagnosed with a Mediasteinal Mass in my Heart during a recent CAT Scan. Please send me information!!!!!!!!!!!!!1111 Diane M. Mormino <mdmo_AT_msn_DOT_com> Mayfield Heights, Oh - Thursday, July 12, 2001 at 18:37:53 WHats medical treatment? can you tell me about medical treatment? how is medical treatment used? what is different about your medical treatment? oli cundale <RuffRyder6669990_AT_aol_DOT_com> Hereford, - Monday, July 2, 2001 at 08:51:39 i have angiolipomas on arms,groin,throat. they become more ! i am male 21. my doc said no way to stop them ?! help me i cannot take the pressure ! what if the infiltrate my brain ? jason vorhees <jason.vorhees1_AT_de.dreamcast_DOT_com/> heidelberg, - Saturday, June 30, 2001 at 18:00:06 My father was at cyclotron in 1984,for tx of a chordoma of the clivus. it has returned again for the 3rd time. is there anything new for tx? he also had the gamma knife at university of maryland in 1997. also are there any survovors from that time period? C. PRESNELL <vonsparkle_AT_hotmail_DOT_com> tilghman, md - Friday, June 29, 2001 at 22:43:50 Can anybody give me info about the Blue Rubber Bleb Nevis Syndrome. Why? How? and what to do about it. Thankyou Bea. Dougall <beadougall_AT_hotmail_DOT_com> - Tuesday, June 26, 2001 at 17:54:56 One of my friend's daughter does not hear. He said that the doctors said it is because of antibiotics the mother took while pregnant.All efforts so far made to correct this situation has not yielded any dividend. Please an assistance is needed on where this problem can be corrected. Ike Nwagbo - Monday, June 25, 2001 at 10:25:44 my father has this tumor. it is in the neck region. it also partially paralysed his left and and leg. the doctor did a good job and he is recovering. it was first detected two years back and it as removed after an operation. we had forgotten it completely when a few months back it started troubling again. SHARIQ HUSAIN <shariqhusain_AT_yahoo_DOT_com> karachi, sindh - Wednesday, June 20, 2001 at 11:24:25 melonoma treatments ,survivaletc. robert weingart <rwein76509_AT_aol_DOT_com> centennial, co - Thursday, June 14, 2001 at 19:17:24 I just completed a follow-up today for my prostate cancer treated in 1999. Last three PSA's have been 0.55;0.12; and today 0.16. Wonderful result from this premier procedure. I understand MGH/Harvard will begin more prostate treatment soon. When will your new facility be operational? H.J. Tuggey <jjtug_AT_msn_DOT_com> Trophy Club, TX - Tuesday, June 12, 2001 at 23:48:42 Hi, Just checking the website. And I am gonna graduate next year, so looking for college. I came here from Nepal.... this year. So its kind of new to me.......... Sudeep. Sudeep Joshi <sudeepjoshi_AT_hotmail_DOT_com> Arlington, VA - Tuesday, June 12, 2001 at 01:01:24 Our daughter, was diagnosed with inflammotory breast cancer was treated with chemo, then found out it is in her spine. would like to know more about this, at this time they have put her on a hormone treatment plan and are going to give her a two hr. IV to strenthen her bones. Delores <LHKab123_AT_aol_DOT_com> Wichita, Ks. - Monday, June 11, 2001 at 11:55:52 My brother has just been diagnosed with a cordoma tumor near the optical nerve and pituitary. This is all foreign to my parents who care for my 49 yr. old brother who is mentally impaired as well. I am finding cordoma tumor of the spine but can't find any thing about the brain tumor. Can anyone offer advise as to where I can find information. Thanks, Grace btc_AT_klondyke_DOT_net Grace Butterfield <btc_AT_klondyke_DOT_net> Memphis, Mi. - Saturday, June 9, 2001 at 20:35:19 can proton instead of operation? yin <yindalu> Shanghai, - Wednesday, June 6, 2001 at 04:47:11 OVER TWO YEARS AGO,MY BROTHER rICHARD o>pAULSON OF MELROSE,MASS.UNDERWENT THE MGH/HARVARD PROTON BEAM PROGRAMAND SPENDING A MONTH WITH HIM i HAD THE OPPORTUNITY TO WATCH THE PROGRAM UP CLOSE.I WANT TO THANK EVERYONE AT MGH/HARVARD FOR GIVING RIC NEW LIFE AND FOR ALL THEIR KINDNESS TOWARD HIM.ALL THINGS CONSIDERED THE AFTEREFFECT OFHIS TREATMENT IS VERY LIITLE.PRESENTLY HE IS VOLUNTEERINGAT THE MGH CANCER CENTER AND WORKING WITH THOSE WHO MAY HAVE PROTON THERAPY WALKING THROUGH THE JOURNEY.TODAY RIC HAS CONTROL OF HIS LIFE AGAIN AS HE DRIVES TO AND FROM HIS APPOINTED ROUNDS.I ONLY WISH MORE PEOPLE COULD HAVE ACCESS TO THIS THERAPY.TO ALL WHO HELPED RIC,PLEASE ACCEPT THIS LONG OVERDUE THANK YOU. REV.S.B.RHOADES PARKERSBURG,WV STEPHEN B. RHOADES <REV.EKUD_AT_AOL_DOT_com> PARKERSBURG, WV - Saturday, June 2, 2001 at 14:35:41 Son has "Top Normal" large ventricals of the brain, looking for info on what this means. Tom Kovacevich <kovacs_AT_voicenet_DOT_com> - Saturday, June 2, 2001 at 12:19:06 I HAVE PSA OF 5.3 GLEASON 6 T1C. MRI SHOW 8MM CENTER POSITION. 63 YRS. OLD GOOD HEALTH:) WELL ALMOST, IF YOU TAKE AWAY THE CANCER. I WAS KEEN ON RCOG & PROSTRCISION, BUT NOW I AM INTERESTED IN LLMC & PROTON THEARPY. GEORGE DIENER <geodiener_AT_aol_DOT_com> OCEAN CITY, NJ - Saturday, May 26, 2001 at 07:19:16 I HAVE PSA OF 5.3 GLEASON 6 T1C. MRI SHOW 8MM CENTER POSITION. 63 YRS. OLD GOOD HEALTH:) WELL ALMOST, IF YOU TAKE AWAY THE CANCER. I WAS KEEN ON RCOG & PROSTRCISION, BUT NOW I AM INTERESTED IN LLMC & PROTON THEARPY. GEORGE DIENER <geodiener_AT_aol_DOT_com> OCEAN CITY, NJ - Saturday, May 26, 2001 at 07:19:14 Looking for feedback from patients or family members of patients who received radiation treatment and inpatient rehabilitation at the same time. Question, whether patients were exhausted, or declined during radiation treatment and should intense inpatient therapy be delayed til radiation treatment complete. Jerry Bartlet <w9pa_AT_aol_DOT_com> - Wednesday, May 23, 2001 at 14:37:10 It's been just over 20days since we learned our four year old granddaughter has a brain tumor. We now know it is a tectal glioma, if anyone has info. on this in children, I would greatly appreciate hearing from you. We are learning pediatric brain tumors-not alot of research Thank you Vikki Langston <blangston99_AT_earthlink_DOT_net> Arlington, Tx - Monday, May 21, 2001 at 12:39:38 Had my A.N. removed in March of '97 and still recovering. If I could have known then what I know now... John Brandstatter <jebrandstatter_AT_earthlink_DOT_net> Dousman, wi - Thursday, May 10, 2001 at 22:20:44 looking for answers to treatment for my chordoma candice <candicehuffman_AT_hotmail_DOT_com> - Tuesday, May 8, 2001 at 20:47:36 overwhelmed!! four year old granddaughter just diagnosed with brain tumor, was checking out neurosurgens, found your site Vikki Langston <blangston99_AT_earthlink_DOT_net> Arlington, TX - Monday, May 7, 2001 at 06:58:36 My father-in-law has a cordoma on the very last part of his spine. Yesterday (may 5th 2001)he has had an operation but doctors said they were not able to get it out. And now they are talking about radio and chemio. I'm looking for any information about proton beam therapy (where in Italy or Europe ?) or any other treatment that can be helpful. Sergio Pizzichemi <sepizz_AT_tin.it> Milan, - Saturday, May 5, 2001 at 20:57:08 sinus obliviation surgery..or "defacing" have had sinus surgery 6 times..am going thru the obliviation process where they remove the front sinus's next month..cant find any information on this procedure on any website?can anyone give me some websites or personal information on this procedure? marcy noble <noblem_AT_schneider_DOT_com> Des Moines, ia - Wednesday, May 2, 2001 at 11:49:30 I have a three year old daughter with a low grade astrocytoma in her spinal chord. She has under gone one surgery and is presently on chemo. It looks as if another surgery will be performed at some time. Is there anyhing available that could help increase the success of a second surgery. Chris Kowalski <chrisk000_AT_sk.sympatico.ca> SK - Wednesday, April 25, 2001 at 02:08:04 looking for any websites or information on sinus obliviation or "defacing" surgery where they remove your sinus's. i have had 6 total sinus operations & they are getting ready to do this procedure in the next 30 days. Hoping someone has gone thru this or has a website i can visit marcy noble - Tuesday, April 24, 2001 at 17:19:10 sinus obliviation surgery or "defacing" looking for informational websites or personal information on the surgery marcy noble - Tuesday, April 24, 2001 at 17:05:29 My father has cordoma of the spine C5 area. He had an operation 5 years ago and now the doctors said that the tumor is back. Ý would like to get any kinds of information about this tumor, and treatments, Proton Beam treatments and surgeries. Cristiane Prandini Sakipaga <crispranda_AT_icqmail_DOT_com> Sao Paulo, - Tuesday, April 10, 2001 at 13:58:43 My partner who is 49 has a sacral cordoma which has secondries all over his body and is in alot of pain. He is looking for contact with any others who have or has this tumour for help and information. He has tried a few paths of cure but to date no real luck Leonie <leonieevans_AT_skybiz_DOT_com> WA - Sunday, April 8, 2001 at 11:09:53 I just had a hystroectomy 2 weeks ago, but they left one of my ovaries. I dont understand all the new pains that i have and if they are normal or not. I feel quite scared as well as withdrawn from my family and friends. I am 25 years old and feel like I dont know who I am anymore. I hope your sire can answer some of my questions and concerns. I hope this doesnt sound stupid but when I go pee when I think I am done, if I push on my stomach i can go again. Also when i try to go number 2 I feel like someone is ripping out my intestants. Those are just 2 off the top of my head....can any one help. Please. Alisa Hollinger <alisahollinger_AT_hotmail_DOT_com> Deltona, FL - Monday, April 2, 2001 at 23:20:12 Hi, I wanted to know if the number of Ganglea Cells depicted your intelegance, and so in turn, would the loss of the cells mean a loss in your abbillity to think, and reason? Dean Clark <DaClark78_AT_aol_DOT_com> Upper Montclair, NJ - Thursday, March 29, 2001 at 10:41:18 I would like to explore prostate proton therapy. How do I go about this? Lance Klein <janetlou_AT_planetcable_DOT_net> York, Pa - Monday, March 26, 2001 at 16:35:53 Information on stomach aneurysm Karen Kousharenko <mrsk57_AT_altavista_DOT_com> decatur, IL - Sunday, March 18, 2001 at 21:54:40 I was looking up info on the cyclotron generator for Nuclear Medicine class and came upon this address. lidia <lidiah6_AT_aol_DOT_com> borger, tx - Saturday, March 17, 2001 at 17:07:45 Am checking the side since my girlfriend was diagnozied chardoma Tuesday Ton de Vries <dechow_AT_xs4all.nl> Rotterdam, - Friday, March 16, 2001 at 06:50:58 Are there any Doctors in the Washington D.C. area I could consult about Proton Thearpy for Prostrate Cancer? James F. Marten <jmarten_AT_cox.rr_DOT_com> Alexandria, VA - Sunday, February 25, 2001 at 15:49:49 My father had a shunt put in due to hydrocephalus. He is 72 years old. Since 11/20/00, our family has been in and out of hospitals, rehab.centers, you name it. He had a sub-dural hemotoma and many other complications after the shunt was put in. His cognitive ability is affected to a small degree as well as his short term memory. I could write a book on the stress my family and I have shared with my father. I feel that any moment my body is going to collaspe and my mind is so very tired. Can someone please direct me to some type of support group. I pray to God you can because I just feel I can't handle the stress anymore and I have to work and try to go on. It is so hard. The dad I once knew is gone. Jean Taylor <TaylorMila_AT_aol_DOT_com> Morganton, NC - Tuesday, February 20, 2001 at 01:07:57 My brother was just diagnosed with a grade 2 glioma. I was just wanting information on the latest treatments and studies available for someone with his diagnosis. Tanra Theodore <tanratheodore_AT_hotmail_DOT_com> Watauga, TX - Monday, February 19, 2001 at 16:40:26 I had surgery at Mass General for a clivus chordoma in 1995 followed by 44 doses of proton beam at cyclotron under the care of Dr. Liebsch. I was very lucky to be one of the few who live nearby and did not have to relocate for treatment! I had a recurrence last year and had surgery at Mt. Sinai(NYC) and my 6 month scan shows no visible signs of tumor. I would be happy to share my experiences with anyone out there. Margie Carberry <carberry_AT_massed_DOT_net> natick, ma - Wednesday, February 14, 2001 at 09:03:03 I was a patient at the Cyclotron back in 1990. I just had another M.R.I. on 12/27/00 for follow-up on my Tumor, a (Chondromyxoma) wrapped around my Brainstem. Even after 10 yrs. my Tumor still shows shrinkage, up to 3/8" of an inch in some places. I thought I would share this for anyone thinking of this treatment. Keith Chrisman <Kchris5731_AT_aol_DOT_com> Moreno Valley, CA - Thursday, February 8, 2001 at 12:56:09 Looking for any information on treatment for reoccuring chondrasarcoma of the pelvis. My sister, age 36, has had multiple extractions, but to no avail. Have not tried radiation or chemo., looking for help. Mary Ellen Loonie <wloonie_AT_optonline_DOT_net> NY - Monday, January 8, 2001 at 21:46:33 I am considering all options for recently diagnosed prostrate cancer for myself. I would appreciate any information that will educate me on Proton Beam radiation. Thank you! William Wells <willy_wells_AT_glic_DOT_com> Portland, Or - Sunday, January 7, 2001 at 23:33:58 Hi. I have a chordoma tumor, origin probably from the second rib off the spine. It has been resected twice, the first resection off the apex of the lung, the second was attached to my jugular vein. They said they got it all, and I have not had radiation therapy of any kind. Now within 6 months, they believe it has metastisized to the lung and chest wall. Has anyone taken the natural route to try to aleviate tumor growth? Has anyone heard of mgn-3? Has anyone tried shitake/maitake mushroom extracts? This is my next move. Would love to hear your comments. Annie Pacelli Annie Pacelli <itbelaalaa_AT_webtv_DOT_net> new buffalo , mi - Thursday, January 4, 2001 at 13:22:57 I left a message in September about my wifes upcoming treatments. She has now completed her proton treatments at Loma Linda with almost no side effects. Hopefully they have been effective. I have found virtually no information on protons and meningiomas. I am starting a web site to try to get information together. Visit it and send me any info you have! Alan Herendich <alanherendich_AT_yahoo_DOT_com> Sugarloaf, CA - Sunday, December 31, 2000 at 17:43:51 I was diagnosed with choroid melanoma. Underwent treatment during December 2000. The people at the cyclotron lab, as well as those at MEEI were all wonderful. They make a great support group. You can ask for any kind of help from them. ie information on transportation, accomodations, where to eat, etc. Thanks to all of them. Please feel free to email for any questions. Happy New Year. Carroll "Pat" Keys <patpeggykeys_AT_msn_DOT_com> Milford, DE - Saturday, December 30, 2000 at 09:13:55 i really need some help...my sister was diagnosed with a chordoma about 2 years ago and underwent 3 operations. the doctors said that they got it all...but then she had a staph infection which set her back as well. now they seem to think that it is spreading. we could really use some feedback. thank you. Steve Pacelli Steve Pacelli <steviestarlite_AT_hotmail_DOT_com> evergreen park, il - Tuesday, December 26, 2000 at 21:15:51 Looking for infomation on clivus lesion. Norma <Narujo_AT_aol_DOT_com> Los Angeles, ca - Tuesday, December 26, 2000 at 18:53:13 Diagnosed w/ acopustic neuorma sept.00 waiting for followup MRI in march 01 to see if any growth in 6 mo. Looking for anybody who has had proton treatment on a acoustic neuorma. Would like to know when, results, Drs. name, and any other assistance you can give for proton treatment on a AN. Wally Greene <vancurlr_AT_frontiernet_DOT_net> voorheesville, ny - Wednesday, December 20, 2000 at 16:32:36 My 38 y.o. husband has just been diagnosed with an astrocytoma, grade unknown (until pathology returns)and underwent 85% resection last week. Anyone with ANY information or optimistic stories to share - I am also looking for all treatments available at this time. Tina <tkroll1_AT_home_DOT_com> Burlington, ON - Saturday, December 16, 2000 at 22:47:39 I would appreciate hearing from anyone who has been treaed for an acoustic neuroma with the proton beam therapy. I am seeking advice on this alternative to surgery. Thank you for responding. Sam Freeman <samdy1_AT_yahoo_DOT_com> Albany, NY - Wednesday, December 13, 2000 at 09:54:52 Whilst trawlling the www I can across your site, which re-kindled memories of Christmas and the New Year 1994/5. Greetings to all that remember the "English Butler" at Hope Lodge, Worcester MA. Ben is well and graduated from Lincoln University in the summer, he is currently working in Birmingham and living at home (you can send messages to above), and hopes to go to Australia next year. We still think about you all, especially this time of the year, hope you are all well and that the new year brings you everything you wish for. Seasons greetings TED ABEL Ted ABEL, father of BEN <ted_AT_abel139.freeserve.co.uk> BIRMINGHAM, - Tuesday, December 12, 2000 at 13:15:01 My 5 year old daughter is to have Proton Beam Radiation in January for about 9 weeks. Would like any comments on treatment. Also would like advice on travel to and from Boston for patient care. We live in Mississippi and thats going to be a long time away from home. How does eveyone do it? Randy Stiles <stiles_AT_futuresouth_DOT_com> Shannon, MS - Saturday, December 9, 2000 at 13:06:14 My mother has had a clivus cordoma for 4 yrs. on her brain stem. Surgery was not completely successful. Gamma Knife radiation has been done 3 times. Tumor has once again changed-grown.If anyone has any other treatment successes or any ideas or information please contact me. debbie <dahasel_AT_mindspring_DOT_com> marietta, ga - Thursday, December 7, 2000 at 20:10:21 My mother has had a clivus cordoma for 4 yrs. on her brain stem. Surgery was not completely sucessfull. Gamma Knife radiation has been done 3 times. Tumor has once again changed-grown.If anyone has any other treatment sucesses or any ideas or information please contact me. debbie <dahasel_AT_mindspring_DOT_com> marietta, ga - Thursday, December 7, 2000 at 20:01:40 I want information on hydrocephalus john phillips <jsp6_AT_ix_DOT_netcom_DOT_com> San Diegoc, ca - Thursday, December 7, 2000 at 16:52:45 I am looking for any information anyone has on an effective treatment for chordoma tumors or the location I might find information on treatment. Ed Wichman <edwich_AT_prodigy_DOT_net> Salem, OR - Friday, November 24, 2000 at 20:57:04 Looking for Information on a friend that is now in Boston,originally from Northern Kansas, who is experiencing a reoccurance of Chordomas Caner. S.S. NE. - Monday, November 6, 2000 at 12:42:48 I'm interested if anyone has any information on Giant Cell Tumor ( chordoma) of the spine C5 area. My dear friend has had this since January, had surgery in Orlando-they did not treatment, no therapy- and it's back- He's desperate to get better- Any information, or Dr.'s in the Tampa area would be very appreciated- Thanks Jori Ortiz <jortiz_AT_herchyd_DOT_com> tampa, fl - Monday, October 23, 2000 at 22:41:29 I had a chorodoma removed in 1995 from L5 area of spine and a 5" cage inserted to replace the portion of spine removed. The tumor came back in 1998 and after that I had 38 treatments of radiation but the tumor came back again in August 2000. I have heard that there is a chemotherapy that will attack this type of tumor. I would like to hear from anyone who has heard about this kind of treatment as I know this tumor will will coming back in time. Lawrence Crookston <crookstl_AT_cyberenet_DOT_net> Cape May, NJ - Thursday, October 19, 2000 at 19:46:54 I had a chorodoma removed in 1995 from L5 are of spine and a 5" cage inserted to replace the portion of spine removed. The tumor came back in 1998 and after that I had 38 treatments of radiation but the tumor came back again in August 2000. I have heard that there is a chemotherapy that will attack this type of tumor. I would like to hear from anyone who has heard about this kind of treatment as I know this tumor will will coming back in time. Lawrence Crookston <crookstl_AT_cyberenet_DOT_net> Cape May, NJ - Thursday, October 19, 2000 at 19:45:34 my wife has a second pituatary tumour. they want to do surjury again followed by radition this time.does anyone have any info. on the radition tharapy for this? also is the proton treament any better than regular radition. thanks to all,and the best of luck to all. vince <vinlyn_AT_mail.caninet> - Tuesday, October 17, 2000 at 22:01:05 Mestatic Melanoma, I would like to speak with anyone who is undergoing treatment for this condition. My uncle has mestatic melanom to the lungs and intestines. We need to know the real story. Will he have quality of life once treatment starts or is he better off enjoying the time he as left without the side effects of treatment? Jerri Lloyd <welloyds_AT_aol_DOT_com> Jacksonville, FL - Thursday, October 12, 2000 at 13:55:40 I've recently had surgery for partial removal of an oligodendroglioma. Has anybody been treated with proton therapy for this and with what results? Bonny <bfschmid_AT_rapidnet_DOT_com> Rapid City, SD - Tuesday, October 10, 2000 at 12:00:59 I was just checking out the sight. If my positive experience at the Cyclotron Lab offers hope to anyone I would be happy to share this via the net. I have SO MUCH to be thankful for. I have lived to experience life to the fullest thanks to the treatment at the Cyclotron and of course my thanks to - Dr. Alan Thornton and Ena! X O X O Julia Tupe <www.busymomj_AT_aol_DOT_com> Quincy, MA - Tuesday, October 10, 2000 at 09:20:24 My father was diagnosed with cordoma of the C2 vertabre of the spine. After surgery done 3 weeks ago by Dr. Ondra of Northwestern Mem Hosp./Chicago, he is doing fine. Tumor took over C1 and C2. Has halo at this time, but has developed other problems. Also has Myst. Gravis. Any info on prognosis of cordoma would be appreciated. I am very grateful for Dr. Ondra on giving my father a few more years of life. September 28,2000 Jerri Bresnahan <Bresnahan1166_AT_aol_DOT_com> Carol Stream, IL - Thursday, September 28, 2000 at 23:08:45 My wife has had two surgeries to remove two of three diagnosed meningiomas. She is being scheduled to receive proton beam treatments at Loma Linda for the remains of the second tumor and to stop the smaller third tumor. She is anxious about the treatments and side effects. Can anyone with similar experiences give her some words of comfort? Alan Herendich <alanherendich_AT_yahoo_DOT_com> Sugarloaf, CA - Monday, September 18, 2000 at 15:04:06 Hello to all. I am a cranial chordoma patient who after two resections was admin. proton _AT_ the Cyclotron in 95', after gross intrusion in critical areas deemed inop. I would like the staff to know that I am very willing to offer any assistance/comfort/support to any prospective patient who would like to talk to me. Hi to Ena, Steve,Ann,Dr. Munsenrider if still there. Your welcome to e-mail me if you would like me to provide my ph.#. (PS: I've sustained little in the way of Dain Bramage!) Scot Wulbert <wulbert_AT_aol_DOT_com> Barrington, il - Monday, September 11, 2000 at 23:39:52 cyberknife surgery Phil Barksdale <psbarksd_AT_mindspring_DOT_com> Nashviolle, TN - Wednesday, September 6, 2000 at 21:03:34 SORRY for my previous msg.(dealing with med questions)I didn't take time to read below the link. Norman Legacki <nlegacki_AT_msn_DOT_com> Los Angeles, Ca - Sunday, August 27, 2000 at 20:00:39 Hi,I am wanting to some research of Malignant Brain Tumors as my Late Father died of one back in 1968 aged 44. Also, his three older Brothers died of Brain Tumors at later dates for the past 20-30 years! Still miss my Father very much. He started out as having a Tumor of the Inner Ear as large as a Golf Ball! The Specialists said, they would of liked to of operated when it (the tumor) was as big as a pea! My Father had seen the same Specialist 13 years prior too this!! He died on the 10 of November 1968. They day before Remembrance Day here in Australia! I would very much like to correspond with anyone who has had/have a Brain Tumor. One of my favourite Actors died back on August 31st 1993 after being diagnosed with a Malignant Brain Tumor. This is not the only reason why I am interested to know more, but as we have Cancer on both sides of our Family! I do hope to hear from anyone, anytime. Thankyou also for this very interesting WebPage! All the Best to Everyone, hopefully there will be a cure for all Cancers including Brain Tumors! sincerely Helen Harvey Australia. Helen <mackee_AT_senet_DOT_com.au> Adelaide, SA - Saturday, August 26, 2000 at 11:46:19 I have a dear friend who had a brain aneursym last November. I would like to know what support group is available to us. Also I'm interested in knowing what is the best therapy for recovery. I hope you can help. Many thanks Olivia Apodaca olivia apodaca <JO apo1044_AT_msn_DOT_com> whittier, ca - Friday, August 25, 2000 at 01:48:13 Very detailed, great source of information! Chris Toughill <chris_AT_dotanything_DOT_com> Fort Myers , FL - Thursday, August 24, 2000 at 11:27:24 Interested in information on Protron treatment for Prostrate cancer at Mass General. ronald vaughan <ronvau_AT_rcn_DOT_com> waltham, ma - Wednesday, August 23, 2000 at 21:44:49 just looking susan quick - Monday, August 21, 2000 at 18:27:49 SEND ME ANY INFO ON SQUAMOUS CELL CANCER FOR A RADICAL NECK SURGERY MY HUSBAND HAD AUG.1. SHIRLEY ALMEIDA <MRSSAA_AT_AOL_DOT_com> BANNING, CA - Monday, August 21, 2000 at 14:39:02 Wanderlei Franquies Júnior, 11 years old, was a happy child until he had a cordoma. Six months ago he was operated but the root of the cordoma continues in his head. The hospital never had a case like this and doesn't have interest to study this disease. Júnior knows that it is dangerous and he can die. He needs an urgent solution!!! CAROLINA MARIA AIDAR DE OLIVEIRA <heleler_AT_zaz_DOT_com.br> Sorocaba, SP - Saturday, August 19, 2000 at 17:30:43 Just thought I would say hi to everyone. I was a patient in 1990. And still doing fine. Keith Chrisman <Kchris5731_AT_aol_DOT_com> Moreno Valley, CA - Thursday, August 17, 2000 at 12:11:54 Good Site Steve Wallace <info_AT_teetogreencommunities_DOT_com> Ft Myers, FL - Thursday, August 10, 2000 at 13:56:35 I would like to hear from anyone who has had a proton beam treatment. I had one 12 years ago. My diagnoses was a cavernous hemangioma of the right head of the caudate nucleus. I had been symptom free for about 8 years. Now I have the chorea back. Also headaches. The dr. here have been supportive, but I would like to hear from patients with similar experience. Thank you. Christine Prokop <CSassyfrass123_AT_aol_DOT_com> Chicago, IL - Saturday, July 15, 2000 at 23:41:41 I would go to dr. liebsch for cordoma's he knows what he is doing and I trust him he is the most kind and warm person you could meet in boston. Ruby Willis <jvance_AT_kih_DOT_net> CARROLLTON, KY - Sunday, July 9, 2000 at 12:40:33 please add my name and email address to your guest book. I would like to hear for anyone with prostate ca that has received protron treatment Burle Rodgers <burlerodgers_AT_mlode_DOT_com> Sonora, ca - Monday, July 3, 2000 at 15:49:49 I AM LOOKING FOR SIMILAR SYMTOMS OTHER THEN CANCER FOR RIB FRACTURES, LOSS OF WEIGHT. I HAD A BONE SCANE THAT SHOWED OLD AND NEW FRACTURES. ERIC ADAMS <EADAM_AT_WBTV_DOT_net> N.LAUDERDALE, FL - Sunday, June 18, 2000 at 00:14:32 My 19 yr. old daughter was treated at MGH Nov.-Dec.1999 with conformal radiation for a giant cell bone tumor of the skull base under the care of Dr. Liebsch. Post treatment CT has been encouraging,and the 6th cranial nerve palsy that affected her has greatly improved. We are so grateful for the wonderful care she received. Anne Burnett <Burnettag_AT_aol_DOT_com> Colorado Springs, Co. - Tuesday, June 13, 2000 at 12:59:09 please add me to the PTCOG e-mail lists. Dr. Steve Peggs <peggs_AT_bnl.gov> Upton, NY - Tuesday, June 13, 2000 at 11:09:26 your page is very useful. Please add me to your address book Maurizio Amichetti <amichettim_AT_yahoo.it> Trento, - Tuesday, June 6, 2000 at 09:46:56 Currently looking for options to surgery for an acoustic neruoma. Interested to know what the long range effects are of the Proton Beam Therapy? Renee <reneeperson1_AT_aol_DOT_com> New York, NY - Thursday, June 1, 2000 at 10:41:18 My father recently had a cordoma of the 3rd lumbar removed, with a cage implant. His doctor is saying this is a rare tumor and is suggesting a do nothing for now approach. I'd like to hear from others on this. Thank you, pj <pjmckey_AT_capecod_DOT_net> - Wednesday, May 31, 2000 at 21:52:07 Interested in info on chondrasarcoma of the humurus bone. Linda Landavazo <ljlandavazo_AT_pocketmail_DOT_com> Livingston, TX - Sunday, May 21, 2000 at 18:58:32 Thank you for doing my proton beam in May 1988. My life has become so much better, except that now I have migraines. Say hello to Dr. Crowell for me, as he was my dr. at the University of Illinois 10 years ago! Christine M. Prokop <Sassyonetwothree_AT_cs_DOT_com> Chicago, IL - Thursday, May 11, 2000 at 01:35:09 My Dad has mestatic prostate cancer. His PSA is 380 and it has gotten into his bones and groin and back area. They have done everything possible to stop it. What is the progression of this disease. What does the future hold? Carol Schriver - Wednesday, April 26, 2000 at 11:23:52 To Dr.Leibsch and Great Staff at HCL/MGH Completed forty Proton Beam treatments on February 15, 2000 for a skull base chordoma which was operated on July 29,1999. Treatments seemed to go well, still experience some negative side affects from the tumor, will be taking an MRI in mid-May to see how succesfull the treatments went..Hope everyone that I met from this bitter-sweet experience is doing well!!!! I will keep you informed of my condition. Thank you for this web page. Lou and Cathy Louis Crisa <Lcrisa_AT_nji_DOT_com> Bridgewater, NJ - Thursday, April 20, 2000 at 20:21:33 I HAVE HEARD THAT THE FIRST PLACE THAT MELANOMA TRAVELS TO IS THE LUNGS. ANY COMMNTS PLEASE? JUNE FRALEY <JFRA101951_AT_AOL_DOT_com> - Friday, April 14, 2000 at 22:59:18 comparing proton treatment to gamma knife for 2cmx2cm lung to left parietal lobe met. raymond grier <raygrier_AT_earthlink_DOT_net> moreno valley, cacompareing - Sunday, April 9, 2000 at 16:04:30 like to hear from people that have cordoma of the clivas and different parts of the brain. Ruby Willis <jvance_AT_kih_DOT_net> carroll, ky - Wednesday, April 5, 2000 at 10:38:32 I was resently diagnosed with a large AVM on the right side of my brain. I'm just out browsing the net to get as much info as I can, so I can make the right>>>>>? Fran Nowak <bootlegger98_AT_worldnet.att_DOT_net> Lakewood, ca - Tuesday, March 21, 2000 at 19:02:59 I have a Chordoma and will have surgery this month. Can someone tell me something about the surgery and prognosis. Sarah Brouse <fatalshack_AT_aol_DOT_com> Lilburn, Ga - Saturday, March 18, 2000 at 09:04:33 Student researching the uses of a Cyclotron. James Mackay York, NY - Monday, March 13, 2000 at 08:05:28 WOULD LIKE TO HEAR FROM PEOPLE THAT HAVE CORDOMA WE HAVE HAD GOOD RESULTS WITH PROTON BEAM THAT WAS DONE IN BOSTON I WOULD BE GLAD TO GIVE INFROMATION OUT ON IT IF ANY ONE NEEDS IT. RUBY WILLIS <jvance_AT_kih_DOT_net> carroll, ky - Friday, March 3, 2000 at 15:48:58 Dr. Liebsch. I can't express how happy I am to see this web site open. To all of those searching to find help for themselves or there loved ones, you have made a great find. I send my very best to all of the staff and friends who assisted in the caring treatment of my sister Luann Benedict. You are the best. Please add me to your newletter list. Best wishes to all of you, and may God Bless each and every patient you touch. With Love, Ruby Haynes Ruby Haynes <ahyns_AT_aol_DOT_com> clinton, ohio - Tuesday, February 29, 2000 at 04:24:15 I completed proton therapy for chordoma of the cervical spine two years ago and so far all is going well. A special thank you to Dr. Liebsch and Ena and the drivers from Hope Lodge. Diane Rodriguez <diatoby_AT_aol_DOT_com> Mi - Thursday, February 24, 2000 at 21:05:53 Underwriter checking a couple of medical references. Kelly Dabbs <kelly.dabbs_AT_cnalife_DOT_com> Nashville, Tn - Friday, February 11, 2000 at 10:17:08 I am looking for treatment to recurrent Cushing disease.Iwould like receive information on proton beam teatment Mirnaluci Gama <m.gama_AT_sul_DOT_com.br> CURITIBA, PR - Tuesday, February 1, 2000 at 15:40:35 I just recently found out that I have a AVM and I'm going to have an embolization, then I'll need to have "stereotactic Radiosurgery" I'm only 36 yrs. and when I first found out about this I went into shock! I'm so glad that there are other people out there in the same sitution! If there is someone out there that can relate to my story, please write me :( Donna B. <JoMushik_AT_aol_DOT_com> Pembroke Pines, FL - Saturday, January 29, 2000 at 23:31:34 I am doing a little research on a type of cyclotron where an accelerated particle (i.e. proton) in a cyclotron is recycled by employing a thin-foil type of target (i.e. Be) to produce excess amount of neutrons. I am aware of a syncrotron system where it uses a storage ring to recycle a particle. Does anyone know of any of these concepts being used or published? Thanks. Kevin Mun <kevin1006_AT_hotmail_DOT_com> Washington, DC - Friday, January 21, 2000 at 12:15:36 My father has been a paralegic for 35 years. He has now developed a stomach aneurysm. I would like to hear from others that this has happened to. Jody Hayden <ichasecans_AT_hotmail_DOT_com> Robinson, IL - Wednesday, January 19, 2000 at 17:32:50 I am seeking information on proton beam treatment for chordomas of the spine for a friend. Linda Nekola <Lindasew_AT_hotmail_DOT_com> Collinsville, Il - Monday, January 17, 2000 at 22:28:45 Looking to volunteer for test trials on the "DRY" form of Macular Degeneration John Harold Hobbs <bshier_AT_foodbrands_DOT_com> Riverside, Ca - Monday, January 17, 2000 at 15:04:23 I am to receive treatment soon and am looking for any info regarding pre and post treatment Stephen J. Nawrocki <sjnaw_AT_aol_DOT_com> Fall river, MA - Monday, January 10, 2000 at 15:47:43 I am looking for avenues other than radiation therapy to treat my pituitary tumor Kathy Leckman <leckman_AT_timken_DOT_com> Canton, oh - Wednesday, January 5, 2000 at 13:24:32 Return to the HCL Homepage Disclaimer: The information and reference materials contained herein is intended solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient's own physician.© Copyright
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