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Support Groups & Patient-to-Patient Services
MGH Neurosurgical Service
MGH Neurology Department

Support Group Meetings | Electronic Support Groups
E-mail Lists | Web Forums | GuestBooks
Chat Rooms | Bulletin Boards | News Servers | WebSites
Hosting Patient-to-Patient Services | Support Group Links
Netiquette for the Web, E-mail Lists & Web Forums


[Neuroendocrine Clinical Home]
[Neurosurgery Spine Center]
[Pediatric (Developmental) Neurosurgery]
[Neurosurgery Trauma Center]
[Cerebrovascular Surgery Center]
[Cranial Base Center]
[BTC at MGH]
[Meningiomas & Benign Brain Tumors Homepage]
[Proton Beam Radiosurgery]
[Interventional Neuroradiology]
[MGH NF Clinic at MGH]
[Functional and Stereotactic Neurosurgery]
[Neurosurgery Rounds]
[SRH Home page]
 [Hosted ANA Web Site]
[Hosted ABTA Web Pages]
[Hosted BAF Web Pages]
[Hosted HCL Web Pages]
[Hosted HyFI Web Pages]
[Hosted HA Web Site]
[Hosted PTNA Web Pages]
[Hosted BrainTrust Web Site]
[Hosted TNA Web Pages]
[Hosted TNR Web Pages]
[Hosted PTNA Web Pages]

Support Group Meetings -- Live People-to-People Meetings

  • Support Group for Brain AVM Patients and their Families:
    The MGH Brain Aneurysm/ AVM Center has formed a Brain AVM Support Group for patients that have or that are about to have brain AVM embolization, brain AVM surgery and/or both. The purpose for this support group is to provide patients and their families with the educational tools and emotional support needed to get them through this difficult time. Our goal is to try and help alleviate fears and concerns through education and group discussions. Issues such as the origin of brain AVM's, the course of treatment, and overall prognosis will be among some of the topics we will be discussing. The leader's task is to support patients and their families while they recognize and hopefully resolve concerns they have regarding the procedures.
  • Brain Tumor Support Group
    A drop-in support group for patients and family members with brain tumors. There are weekly speakers with group support from the MGH BTC Nursing Staff and MGH Social Services.

Support Groups -- Electronic Patient-to-Patient Services

E-Mail Lists | Web Forums | GuestBooks | Chat Rooms | Bulletin Boards | News Servers | WebSites

E-mail ListServers

We now host several E-mail List Support Groups. They are e-mail based ListServer systems that allow you to Subscribe and/or Unsubscribe to e-mail mailing lists that will provide information about several topics relating to Neurological and Neurosurgical diseases or disorders. The currently available E-mail lists are:

  • AVM@brain.mgh.harvard.edu - Brain ArterioVenous Malformations (AVMs) (Public - Unmoderated List - Open Subscriptions)
  • Aneurysms@brain.mgh.harvard.edu - Brain Aneurysms (Public - Unmoderated List - Open Subscriptions)
  • ProtonBeam@brain.mgh.harvard.edu - Brain Proton Beam RadioNeurosurgery (Public - Unmoderated List - Open Subscriptions)

See more information on each of these E-mail lists, that includes directions on how to Subscribe.

Web Forums

MGH Neurosurgery Web Forums (listServer archives & discussion groups):

The E-mail ListServer now allows for Web Forums which are archives of e-mail messages posted to the ListServer groups. The web forums allow users to read archived messages, and provide for on-line Subscriptions to the forums. Members can post messages to the groups.

MGH Neurology Web-Forums (bulletin-board discussion groups):

Click here to Enter your own Neurology WebForum article... ...or Read the existing WebForum articles via topic:


GuestBooks

Our Public GuestBooks are intended for Patients, Family and Friends as a way to:

  • post Public information, comments and feedback
  • post questions and concerns to which other patients can respond
  • get in touch with others that have had similar concerns
    •
  • or get support in knowing that there are others with similar problems

    Please do not ask medical treatment questions in the GuestBooks unless you are looking for "Patient-to-Patient" information. We do not monitor or provide medical information via the GuestBooks.

    Thank you for visiting our pages. We would appreciate it if you would add to our GuestBook(s).

    Please choose the the Web Service that you are interested in.
    Add to the Main GuestBook for the MGH Neurosurgical Service

Add to the GuestBook(s) for
The MGH Neurosurgical Service
{ Whole Web Site | Specialties Homepages }
Hosted Sites On Our Servers

GuestBooks for MGH Neurosurgical Service ~ Specialties Homepages

Chat Rooms -  MGH Neurology Chat Rooms:

Just Kids Chat Room A place for kids and young adults to discuss Neurological Disorders.

General Neurology Chat Room Talk about any Neurological topic you like.

The Chit-Chat Room A place to unwind! Just have fun here...

Addiction Chat Room Discussion about Addiction

Caregiver Support Chat Room Discussions for caregivers seeking support.

CSF Leak Chat Room Discussion about CSF Leak.

ALS Chat Room Discussions about ALS

Alzheimers Disease Chat Room Discussions about Alzheimers Disease.

Attention Deficit Disorder (ADD/ADHD) Discussions about ADD/ADHD.

Amyloidosis Chat Room Discussions about Amyloidosis.

Arachnoiditis Chat Room Discussions about Arachnoiditis

Arnold Chiari Malformation Chat Room Discussions about Arnold CHiari Malformation.

Autism Chat Room Discussions about Autism

Autonomic Nervous System Disorders Chat Room Discussions about Autonomic Nervous System Disorders.

Behavioral Disorders Chat Room Discussions about Behavioral Disorders

Bells Palsy Chat Room Discussions about Bells Palsy.

Brain Cancer Chat Room Discussions about Brain Cancer

Brain Injury Chat Room Discussions about Brain Injury.

Cerebral Palsy Chat Room Discussions about Cerebral Palsy.

Charcot-Marie-Tooth Chat Room Discussions about Charcot-Marie-Tooth Disease (CMT).

Child Neurology Chat Room Discussions about Child Neurology.

Chronic Pain Syndrome Chat Room Discussions about Chronic Pain Syndrome.

Congenital Fiber Type Disproportion Chat Room Discussions about Congenital Fiber Type Disproportion.

Cluster Headache Chat Room Discussions about Cluster Headache

Corticobasal Ganglionic Degeneration Chat Room Discussions about Corticobasal Ganglionic Degeneration

DeMorsiers Syndrome Chat Room Discussions about DeMorsiers Syndrome.

Depression Chat Room Discussions about Depression

Dystonia Chat Room Discussions about Dystonia

Ehlers Danlos Syndrome Chat Room Discussions about Ehlers Danlos Syndrome.

Encephalitis Chat Room Discussions about Encephalitis

Epilepsy Chat Room Discussions about Epilepsy.

Erythromelalgia Chat Room Discussions about Erythromelalgia

Facial Paralysis Chat Room Discussions about Facial Paralysis

Fibromyalgia Chat Room Discussions about Fibromyalgia.

Gaucher Disease Chat Room Discussions about Gaucher Disease.

Grief (Dealing with Loss) Chat Room Discussions about dealing and coping with grief.

Guillain Barre Syndrome Chat Room Discussions about Guillain Barre Syndrome.

Headache Chat Room Discussions about Headache.

Hearing Disorders Chat Room Discussions about Hearing Disorders

HIV and Infectious Disease Chat Room Discussions about HIV and Infectious Disease.

Huntingtons Disease Chat Room Discussions about Huntingtons Disease.

Hydrocephalus Chat Room Discussions about Hydrocephalus

Landau Kleffner Syndrome Chat Room Discussions about Landau Kleffner Syndrome

Lightning and Electric Shock Chat Room Discussions about Lightning and Electric Shock

Lupus Chat Room Discussions about Lupus

Lyme Disease Chat Room Discussions about Lyme Disease.

MSUD (Maple Syrup Urine Disease) Chat Room Discussions about MSUD (Maple Syrup Urine Disease).

Mitochondrial Disorders Chat Room Discussions about Mitochondrial Disorders

Moebius Syndrome Chat Room Discussions about Moebius Syndrome.

Movement Disorders Chat Room Discussions about Movement Disorders.

Moya Moya Chat Room Discussions about Moya Moya.

Multiple Sclerosis Chat Room Discussions about Multiple Sclerosis.

Myasthenia Gravis Chat Room Discussions about Myasthenia Gravis.

Neurofibromatosis Chat Room Discussions about Neurofibromatosis.

Narcolepsy Chat Room Discussions about Narcolepsy

Neuralgia Chat Room Discussions about Neuralgia.

Neuromuscular Disorders Chat Room Discussions about Neuromuscular Disorders.

Norrie Disease Chat Room Discussions about Norrie Disease.

OCD (Obsessive-Compulsive Disorder) Chat Room Discussions about OCD (Obsessive-Compulsive Disorder).

Pain Chat Room Discussions about Pain

Panic Disorders Chat Room Discussions about Panic Disorders

Parkinsons Disease Chat Room Discussions about Parkinsons Disease.

Periodic Paralysis Chat Room Discussions about Periodic Paralysis.

Peripheral Neuropathy Chat Room Discussions about Peripheral Neuropathy.

Progressive Supranuclear Palsy Chat Room Discussions about Progressive Supranuclear Palsy

Ramsey Hunt Syndrome Chat Room Discussions about Ramsey Hunt Syndrome.

RSD (Reflex Sympathetic Dystrophy) Chat Room Discussions about RSD (Reflex Sympathetic Dystrophy).

Schizophrenia Chat Room Discussions about Schizophrenia.

Silicone Related Diseases Chat Room Discussions about Silicone Related Diseases (Atypical Neurological Disease Syndrome).

Spina Bifida Chat Room Discussions about Spina Bifida.

Spinal Cord Injuries Chat Room Discussions about Spinal Cord Injuries.

Spinal Disorders Chat Room Discussions about Spinal Disorders

Stress Chat Room Discussions about Stress.

Stroke Chat Room Discussions about Stroke.

Sturge Weber Syndrome Chat Room Discussions about Sturge Weber Syndrome.

Tethered Cord Syndrome Chat Room Discussions about Tethered Cord Syndrome.

Thoracic Outlet Syndrome Chat Room Discussions about Thoracic Outlet Syndrome.

Trigeminal Neuralgia Chat Room Discussions about Trigeminal Neuralgia

Tourette Syndrome Chat Room  Discussions about Tourette Syndrome.

Tuberous Sclerosis Chat Room Discussions about Tuberous Sclerosis

Vaccine or DTP Injuries Chat Room Discussions about Vaccine or DTP Injuries Chat Room.

Visual Impairments Chat Room Discussions about Visual Impairments.

WebSites & WebPages

 

Hosting Patient-to-Patient Services

See also Hosting Services

Bulletin Boards

News Servers


The MGH Neurosurgical Service "hosts" a number of Internet and Intranet services. Some of the services that we have hosted, or groups that we work closely with at MGH have hosted, include:

  • Domain Hosting
  • Web Sites
  • Web Pages
  • Web GuestBooks
  • Web Forums
  • Web ChatRooms
  • E-mail ListServers
  • Bulletin Board Services (BBS)
  • BBS Discussion Groups

Note: These services are provided as a "Patient-to-Patient" informational resource. They are provided within the limitations of the hardware, software and network infrastructure that we have available.

      If you would like to contribute to a Patient-to-Patient hosted site, please let us know!

We are always interested in discussing the possibility of making more informational resources available. There are, however, some basic "Principles of Understanding" that must be considered and agreed to before we can host a web site, domain or any service for a group outside of the MGH Institution.

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Disclaimer About Medical Information: The information and reference materials contained herein is intended solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient's own physician. All visitors to this and associated sites from the Neurosurgical Service at MGH agree to read and abide by the the complete terms of legal agreement found at the Neurosurgery "disclaimer & legal agreement." See also: the MGH Disclaimer, the MGH Privacy Policy, and the MGH Interactive Program Disclaimer - © Copyright 2005.
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