Support Resources

Support organizations and internet support groups

Neurofibromatosis Support

• Neurofibromatosis Clinics Association - Pittsburgh, PA
• Neurofibromatosis - Family Village
  
• Other Individuals with NF-1 - MGH/Harvard Neurogenetics Guestbook
  
• Texas Neurofibromatosis Foundation
  

NF-2 and Acoustic Neuroma Support

• The NF2Crew Website
  
• Acoustic Neuroma and Allied Disorders: Support Organizations
  
• Acoustic Neuroma - Family Village
  
• Other Individuals with NF-2 - Acoustic Neuroma Assn. Guestbook

  
  

Miscellaneous Support

• Let's Face It (Facial Differences)
  
• Disfigurement Guidance Centre
  
• Gillian Anderson (X-Files) Speaks in Washington DC
  
• Support-Group.com
  
• Pain.com
  
• Social Security Disability - Frequently Asked Questions
  
• World Association of Persons with Disabilties

  
  

Online Chat

chat online with other people who are interested in Neurofibromatosis
• www.BrainChat.org - Neurology Chatrooms at Massachusetts General Hospital

  
  

Online Bulletin Boards and Discussion Forums

exchange questions and answers with others who have similar problems and interests
• NF Bulletin Board - NF, Inc.
  
• Your Turn Bulletin Board - National Neurofibromatosis Foundation
  
• MGH Neurofibromatosis Webforum - Massachusetts General Hospital
  
• Worldwide Messaging Center - Rare Genetic Diseases In Children
  
• Chronic Pain/Pain Management Forum - MedSupport

  
  

• PRODIGY USERS:
    1. jump "medical support"
    2. jump "neurological"
    3. jump "neurofibromatosis"
    4. jump "neurofibromatosis2"

• AOL USERS:
    1. click on "keyword"
    2. type "better health"
    3. click on "message boards"
    4. click on red dot go to better health boards now
    5. scroll down to self help and support and double click on, "neurofibromatosis"