Information:
General information on both types of Neurofibromatosis, most including in-depth discussion of Type 1, also known as von Recklinghausen's Disease

• Peripheral Neurofibromatosis - Virtual Hospital - University of Iowa
  A superb, comprehensive source of information about all aspects of NF.   If I could list only one source of information about NF, this would be the one I would choose.

• The Neurofibromatoses - National Institute of Neurological Disorders and Stroke
  This page is a brief, but quite thorough, frequently asked questions type of document.   Very helpful as a general overview of both types of NF, including symptoms, treatment, research, and resources.

• The Neurofibromatoses - The March of Dimes
  Another basic information page - will answer all of your primary questions so you can start asking the more complicated ones.

• Neurofibromatosis, Inc. - USA
  Information on a variety of NF topics and support resources.
  • State and Regional Chapters and Affiliate

• Neurosurgical Service - Massachusetts General Hospital/Harvard Medical School
  This is the site which has provided the server space to make Neurofibromatosis Resources possible.   Neurosurgical Services encompasses far more than just surgery.
  • Neurofibromatosis Clinic
  • Neurofibromatosis Links
  • Guestbook
  
  
• The National Neurofibromatosis Foundation, Inc. - USA
  Provides a broad spectrum of information and resources pertaining to both types of NF.  
  • State Chapters
  • Non-English Pages

• The Neurofibromatosis Association UK
  Information for everyone and support resources for people in the United Kingdom.   A Brief History of Neurofibromatosis provides excellent information.

• British Columbia Neurofibromatosis Foundation - BC, Canada
  Information and support resources for people in Western Canada..

• Neurofibromatosis Clinics Association, Inc. - Pittsburgh, Pennsylvania
  Information and support resources for people in the Pennsylvania area.   Includes a good article about the basics of NF - What is Neurofibromatosis (NF)?

• Center for Neurofibromatosis Therapy in Nürnberg (English or Deutsch)
  Commercial site which provides information about laser surgery for the cosmetic removal of external NF tumors.

• The Elephant Man's Underlying Condition - Science Magazine 12/3/96
  For many years, there was a widely held belief that Joseph Cary Merrick, The Elephant Man, had neurofibromatosis, and that this is what caused his disfigurement.   This article describes how x-ray studies now support the assumption that Merrick actually had a far more rare disorder called Proteus Syndrome.

• The Elephant Man's Mistaken Identity - Enigma
  Joseph "John" Cary Merrick suffered from an extremely rare (100 reported cases in history) disorder called Proteus Syndrome, not NF, as had been assumed for many years.   This article explains some of the physical differences between Proteus Syndrome and NF, and displays a photograph of Mr. Merrick.

• Personal Pages of People with Neurofibromatosis