When he was 4 yrs. old the tumors started to grow and he required a VP shunt placed and started chemotherapy. He has lost the vision in his right eye but the left is staying strong.
I thought the worst was behind us when we stopped the treatments however, a new problem has arrived and they now tell us that his liver is not functioning correctly. They believe he has Primary Sclerosing Cholangitis.
I cannot believe that his wonderful little boy has 2 major diseases and they don't think they are related. He is the light of our life and his spirit is always filled with joy! I wish that I had his strength so I could conquer my fears.
A scared mom from New Jersey.
Gcmrgpar / added July 1999