I left home to go to college and this is where I met and married. I was told I couldn't have children but was blessed with two very healthy kids. A boy now 8 and girl who just turned 2. They both show no signs of the disease.
My disease has progressed only slightly over the years. I've had a tumor removed from the back of my right leg. Due to the removal there is now nerve damage. I've now discovered another tumor the size of an orange behind my knee, I'll be seeing a Doctor about its removal.
I received bad news in May 1998, the police arrived at my home to tell me my husband had been killed. He was my life and love. I'm now alone with my two kids and feel very empty.
When I was young I felt no one would want to marry me. I was different and ugly. But I was wrong I did marry, although I'm alone again.
Friends and family keep telling me you'll meet someone someday. I know I will . I had an e-mail friend and things were going great. He wanted to meet and I felt that honesty was needed. So I informed him I had "NF". He now won't return my E-mails,so I guessed I scared him off. Why can't people see us for who we are rather then our looks. I'm a person who is honest,caring, full of life and very family oriented. I try and tell people looks only last so long, not like the heart.
I will continue to carry on from day to day, for I am who I am not that will not change. God made me this way and this way I shall remain. We must love who we are even in pain. For I am couragous.
Hope there is someone out there, who would like to talk. I will return all messages. For we need to spread the word.
Yours truly,
Debbie (Orillia,Ont.Can.)
Debbie / added March 1999