Neurofibromatosis Resources


Associated Conditions

    Additional conditions which may accompany Neurofibromatosis

  • Deafblind Link - James Gallagher
    An exceptional site, created and maintained by a man who is deafblind himself.   A wealth of original information and links to resources for people who are blind, deaf, or both.

  • Epilepsy FAQ - Maintained by Andrew Patrick
    Frequently asked questions about a broad range of topics related to epilepsy.

  • NEW resource!Pectus Excavatum and Pectus Carinatum Information Site - U.K.
    "Pectus deformities are the most common congenital chest wall deformities and are more popularly known as 'funnel chest' or 'sunken chest' (pectus excavatum) and 'pigeon chest' (pectus carinatum). This site has been designed primarily to provide those with a pectus deformity with information; to understand what a pectus deformity is, how and why it may affect you and how and where to get further advice. "

  • NEW resource!Pectus Excavatum Information Site - Reid and Gwillim
    Excellent resource for both information and support, including a chat room.

  • lifeclinic.com - Spacelabs Medical
    Information about high blood pressure includes basic facts, lifestyle factors, treatment, home monitoring, and a physician registry.

  • The Brain Tumor Society
    Helpful information, resources, and FAQ (frequently asked questions).   Includes a large list of reviewed links to related sites.

  • The American Brain Tumor Association
    This is the place to go if you're looking for clear, understandable, and comprehensive information about brain tumors.   The site covers a wide array of topics, and even includes a dictionary of terminology.   For easiest browsing, go directly to the Site Map.

  • Brain Cancer - OncoLink
    Lots of information about cancerous tumors of the brain:   screening, treatment, patient support, and much more.

  • NEW resourrce!CancerNet - National Cancer Instititue
    Everything you never wanted to have to know about cancer. An excellent resource.


Neurofibromatosis Resources / Carol