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Malignant Brain Tumor Information Links
Including information applicable to other benign brain tumors such
as epidermoid, dermoid, hemangioblastoma,
colloid cyst, subependymal giant cell astrocytoma, pleomorphic xanthoastrocytoma,
and craniopharyngioma.
Link
Disclaimer: "Links" are provided only as an informational
resource as a "Patient-to-Patient" service. Please note that many
of the links provided below are not on one of the MGH Neurosurgical
Service servers and are not maintained by us or affiliated with
any services provided by us.
MGH
Neuro-oncology Information Resources
Other NeuroOncology Resources
- Brain
tumor support and education off-line. A listing of contact
information for organizations devoted to providing support for
brain tumor survivors and their care-givers.
- Please, add (and look
for) additional links in the Brain-, Spine-, and, Peripheral-Nerve-Tumor
Guestbook.
Brain tumor information on line
- Brain
tumor mailing list (BRAINTMR@mitvma.mit.edu)
- American
Brain Tumor Association Homepage
- The
Brain Tumor Society in Boston, MA
- Cancer
Net and PDQ are available directly from the National
Cancer Institute (USA)
- Cerebral, cáncer:
NIH PDQ Patient Information is also available in Spanish
from Pregúntale
a NOAH sobre el cáncer
- Information on
Brain & Spinal Cord Tumors from the (US) National Institutes
of Neurological Disorders and Stroke
- Primary Central
Nervous System Tumors
- Central Nervous
System (CNS) Tumor Research
- Al Musella, D.P.M.
maintains a listing of Clinical
Trials and Protocols in the U.S., an example of which
is glioblastoma
treatment protocols . Note that the list is constantly
changing and growing.
- MGH Neuro-oncology
Information Resources
- The New WHO
Classsification of Central Nervous System Tumors
- Astrocytic
Tumor Grading Systems
- Mutations
in Astrocytic Lineage Tumors
- Benign
brain and spine tumors such as meningioma, epidermoid,
dermoid, hemangioblastoma, , colloid cyst, subependymal
giant cell astrocytoma, pleomorphic xanthoastrocytoma,
and craniopharyngioma.
- Acoustic
neuroma and other cerebellopontineangle (cpa) and
skull base tumors
- Pituitary
tumor (adenoma, carcinoma) information
- Neurofibromatosis
(type I, Von Recklinghausen's disease) information
- Tuberous
sclerosis resources
- Von
Hippel-Lindau disease resources
- Spine
tumor information
- Molecular
Neuro-oncology Laboratory Homepage: MGH Research
elucidating the genetic bases of nervous system tumors
- Oncolink
(UPenn)
- MGH Neuro-oncology
(brain and spine tumor) Patient Information
- NYU Neurosurgery
- University of Iowa
- Stereotactic
Procedure: A Guide for Patients
- Also see the newsgroup:
alt.support.cancer
- Please, add (and
look for) additional links in the Brain-, Spine-, and, Peripheral-Nerve-Tumor
Guestbook.
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