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GuestBook
Log 1999
Neurosurgical Service at MGH
Thank you for visiting
our pages. We would appreciate it if you would add to our GuestBook(s).
Please choose the the Web Service that you are interested in, as
each Neurosurgical speciality has there own GuestBook.
Please
Note: This is an unmonitored guestbook. We can not endorse
or be responsible for its content. It is not, of course, an appropriate
place to seek medical advice; rather to provide mutual support.
For medical advice consult your physician.
Note:
We do not ordinarily edit the posts to these GuestBooks, so please
be careful with what information you post. If you do not want
to be contacted by others, then do not post your e-mail address.
Remember - these are public GuestBooks and search engines will find
your e-mail address.
Comments and additional
links are also welcomed.
If you are interested
in a referral
for a medical opinion see the MGH
Neurosurgical Service referral page or consult one of
the many speciality
pages listed on our site.
I just got
into this and I have a question about my back pain but I don't know
where to ask it could you please let me know how I can do it .Thankyou
catherine hurley
catherine hurley <hurley_AT_blclinks_DOT_net>
silverwood, mi - Monday, December 13, 1999 at 18:05:15
I am going
to be a neurosurgeon so i can afford the kind of hooker you can
take out first.
James Seabrook <flow79_AT_hotmail_DOT_com>
Thessalon, ON - Monday, December 13, 1999 at 09:23:08
F-48 : I have
had two piturtary tumor surgery - 1998. I was told that the tumor
would be 80% removed. I did my homework and felt along with my other
doctors I had the right doctor for the surgery. I am in no way saying
he did not do his best but the surgery in both cases did not remove
but a total of 10%. It has been a year now and I have had one MRI
that showed no new growth. Do you think I should opt for radiation
or one more surgery? It is my concern for my eyesight that I even
give this any consideration, now. I was diagnosis in 1988. The tumor
had grown to 3cm before 1st surgery. Thank you for any comment ....Micheale
Micheale Wicks <Micheale03_AT_AOL_DOT_com>
Austin, Tx - Tuesday, November 16, 1999 at 14:30:31
I am looking
forward to second microdisectomy in a few weeks. Looking for people
wilth similar stories.
Loretta Mackay <arjbapmom_AT_aol_DOT_com>
Sandwich, MA - Sunday, November 14, 1999 at 17:20:50
I was dianogsised
with acute trigenimal neurolgia this year in June99. I have been
doing a lot of research of my disease. I have been in pain for the
last two years and would listen about the pain. I was referred by
the trigenial neurolgia association to see the doctor April Vallerand
who inturn got me appointment with her husband who knows a lot more
then other doctors about this disorder. My concern is that since
I have all three branches effected by this disorder is that I already
lost my hearing in my ear because of this and also I am about 20%
blind in my left eye and when the seizures get worse my eye loses
vision. My concern now I am experiencing memory lost or forgeting
thing can this be contribute to ATN? I am open to any sugguestion
anyone would have. I have a MRI every six months to rule out a tumor
or an anyerism.
DEAN GLENN <daglenn_AT_americanspeedy_DOT_com>
troy , mi - Saturday, November 6, 1999 at 11:48:14
Dear Sir, My
daughter is suffering from patial seizer and now been treated by
doctors under durg valporic acid (epilimin 200 mgs x 3 times a day)
and chlonezipam 0.5mgs per day.However she is very slow in her day
to day activities and in studies. Once in a while she gets this
fit and last about 2-3 minutes.I am planning to come to vist with
her next year to seek a treatment and could be able to assist me
in finding soultion to this problem and assisting me in funding
to make here cure. Thanking You sir Looking forwrad to hearing from
you soon Yours Upul Gunasekera Sri-Lanka Fax:011-94-1-699194 e-mail:shantha_AT_itmin_DOT_com
Upul Gunasekera <shantha_AT_itmin_DOT_com>
Colombo, - Friday, November 5, 1999 at 05:55:52
Have you heard
of the "IDET" proceedure for disk problems/ I DONT want
surgery(fusion) and dr said I might be a good canidate for I.D.E.T.?????anyone
have information on this? ANYTHINGS BETTER THAN A KNIFE~~~~~~~~~
Lynne <rsdsux_AT_aol_DOT_com>
Longview, Tx - Tuesday, October 26, 1999 at 18:04:04
My husband,
Granger, 69, has Stage IV Lung Cancer. He was operated on Dec. 94
for an encapsulated adenocarcinoma, with no chemo or radiation.
Three yrs later, same cell was in parietal lobe of brain, 3cm, operated
on and followed up by 5 wks radiation. 1 yr later another tumor,
2 cm. in frontal lobe, operated on, followed up by stereotactic
radiosurgery. He has been functioning very well but latest MRI show
two more tumor sights. We will have stereo RS tomorrow in Boston
and follow up radiation for others for 4 wks. Drs. give a grim prognosis
so I am looking for anyone with a similar situation to know what
all this radiation will do to him. Will it actually help or send
him into an unpleasant way of life. Scared in Maine.
Judy Ottley <ottley_AT_megalink_DOT_net>
Bridgton, ME - Wednesday, October 20, 1999 at 09:43:46
very exstential
Tiffany masters <Masterst2_AT_odc.edu>
Columbus, , Oh - Monday, October 18, 1999 at 13:19:47
My sister,
64 years old, has had back problems for about 30 years. She has
had 4 surgeries on her back and each time the nerves are affected
by scar tissue. She read an article in the paper that said the scar
tissue could be removed by Epiduroscopy using a Myeloscope. Does
anyone know anything about this? Please respond if you do.
Lola Cunningham <lola1cat_AT_aol_DOT_com>
Bend, OR - Monday, October 18, 1999 at 00:53:07
I'd like to
get off of my seizure medication - well, wouldn't we all? I'm 25
and would like to think about having children - without being on
dilatin as it can be quite harmful to a fetus. Anyone have any luck
getting off their medication using alternatives to medication/ surgery???
Davika Schackman <davika.schackman_AT_brannsf_DOT_com>
San Francisco, CA - Wednesday, October 13, 1999 at 16:53:29
I'Ve been diagnosed
with a pinched nerve a C7. This followed a separated shoulder. I'm
interested in the different types of treatment for this problem.
I've had rotator cuff surgery. The pinched nerve was just diagnosed.
Thanks Kathy
Kathy Burns <Kaburns_AT_concentric_DOT_net>
San Jose, CA - Sunday, September 26, 1999 at 23:41:24
please provide
information on studies of success rate on allographs in the cervical
spine. Thank you
kendall e snyder <ksnyder_AT_mizar.usc.edu>
fullerton, ca - Monday, September 6, 1999 at 23:24:52
looking for
parents of children w/ vp/va shunts and or hydrocephalus, that would
like to form a support group in the Minnesota twin cities area.
Would also like to hear pointers on how to start a support group
and the best route to do so. I'm A single mom of a 4yr old son ww/
hydro. would really like to hear from other single parents also.
you could also leave be a voicce mail message at 1-888-366-0315.
Thanx, JennellHolm
Jennell Holm <jennell_holm_AT_starkey_DOT_com>
anoka, mn - Sunday, September 5, 1999 at 00:37:57
I have basic
info on Tarlov Cysts, but would like to know of any research or
methods to get rid of one that is on LS1-2 (at very base of spine).
Docs tell me nothing can be done.
Sally Marvin <sdmarvin_AT_hotmail_DOT_com>
St. Petersburg, FL - Thursday, August 26, 1999 at 10:26:23
I have concerns
about weaning off of one of my anti seizure medications to stay
on just one. My doctor says I will most likely have multiple seizures
while getting off of one and that I will always be a two drug person.
I wasn't before until they switched me to a new drug. I would just
like to hear from people who have gotten off of some anti-seizure
medication. I am 25 and looking to have children some day. I want
as little toxic risk as possible.
Sandra Williams <swilli_AT_acninc_DOT_net>
- Wednesday, August 25, 1999 at 19:44:19
my mother sufers
from trigeminal neuralgia, sheŽs had allot of tritments and nothing
if somebody can tell me of new medicines iŽll gladli have them in
mine
maru chavez
- Saturday, August 21, 1999 at 14:51:22
I read recently
in the US News and World Report that Mass General has a fantastic
Neurology and Neurosurgery division. Since I have been having some
increasing debilitating Neurlological problems and the current Neurologist
that I am seeing seems in ept to handle my case........moving too
slow, in three months progression has been from outer extremities
to the entire body, despite the Nerotnin (1800 mg) I take now. I
need some help desperately because this has been depressing the
life out of me. Anyhow, Keep up the good work, "we" need
hospitals like yours around.
Theresa Chartienitz <TerryC_AT_Doble_DOT_com>
Lexington, M MA - Thursday, August 19, 1999 at 13:40:44
I read recently
in the US News and World Report that Mass General has a fantastic
Neurology and Neurosurgery division. Since I have been having some
increasing debilitating Neurlological problems and the current Neurologist
that I am seeing seems in ept to handle my case........moving too
slow, in three months progression has been from outer extremities
to the entire body, despite the Nerotnin (1800 mg) I take now. I
need some help desperately because this has been depressing the
life out of me. Anyhow, Keep up the good work, "we" need
hospitals like yours around.
Theresa Chartienitz <TerryC_AT_Doble_DOT_com>
Lexington, MMA - Thursday, August 19, 1999 at 13:40:10
Hi, I had the
IDET procedure 4/22/99 and my recovery has been very slow. After
4 months now I am still more sore and in more pain than pre-IDET.
My sitting tollerance has been reduced to about 20nim. (max) now.
I was told by my Dr. that there are certain cases that are very
sore for up to 6 months after IDET but then begin to get better
and in the end are better off than pre-IDET. Is there anyone out
there that has had a similar response to mine? If so please email
me. Thank you, Mark
Mark Baumeister <Mark_Baumeister_AT_cc.chiron_DOT_com>
El Cerrito, CA - Monday, August 16, 1999 at 15:33:20
I'm 34yrs.
old, I have a page, very small with my inspired true stories. Title
"SurvivingBrain Injury" I have put together some stories
after my TBI which happened on 6-29-94. Go ahead click on my name
and visit. Thanks Take Care..
David R.
<ElToro518_AT_aol_DOT_com>
Lynn,, MA. - Thursday, August 12, 1999 at 14:50:26
I have been
treated for a c-spine AVM. I know it is a rare defect but i would
like to talk to someone about it. I had the surgery done in 1995
by a sergeon Mark V. Riechman who had only done the procedure a
few times before in the spinal chord. Anyway I want to relate to
someone who may have had the same thing happen to them. THANKS!!
Nathan Terry <nate_AT_royalnoni_DOT_com>
St. George, UT - Wednesday, August 11, 1999 at 11:13:15
I am particularly
interested in any information you have about aneurysms
CORI GRAY <cori.gray_AT_ncpanet.org>
Alexandria, VA - Tuesday, August 3, 1999 at 17:23:48
The World Wide
Web home of the Department of Neurological Surgery at Strong Memorial
Hospital in Rochester, NY.
University of Rochester Department of Neurological Surgery <Neurosurgery_AT_urmc.rochester.edu>
Rochester, NY - Thursday, July 29, 1999 at 14:36:53
In frantic
search of procedure for damaged disks,C4,5,6. Nothing of note in
state of florida. by rec., would like to contact MGH via E-mail
or "800". I am new to computer, located Neuro. page, still
searching. Is there anyone who uses laser tech. on cervical? Important
to collect best infor before I can travel for TX. Please advise.
Thank you.
P. Sondrol-O'Day <calvoyage_AT_aol_DOT_com>
orlando, fl - Tuesday, July 27, 1999 at 12:32:18
I am a brazilian
neurosurgery resident and I always visit the MGH Neurosurgery home
page and reffer to your service very often to discuss some cases.
Benedito Domingos Amorim F. <btbenedi_AT_zaz_DOT_com.br>
Botucatu, SP - Monday, July 26, 1999 at 18:24:18
My wife (34
years) is sufferring from astrocytoma 3. She had radiation and right
now the last PVC. Nothing seems to work. Surgery ain't possible.
Can somebody help?
Maurice Willemsen <m.j.j.m.willemsen_AT_avv.rws.minvenw.nl>
Landgraaf, - Friday, July 23, 1999 at 04:32:22
Can archnoid
cyst cause dizziness on one side of the head?
Barbara Adams <Barb620_AT_aol_DOT_com>
Westminster, CO - Wednesday, July 21, 1999 at 14:37:10
I'm trying
so hard to get better.
Alli <Alli14956_AT_aol_DOT_com>
Stone Ridge, NY - Tuesday, July 20, 1999 at 19:18:35
I would really
appreciate any information or web sites concerning the neuronal
xenotransplantation of pig fetuses into patients suffereing from
Parkinsons disease, especially the specific technique involved.
Thankyou
Felicity <fliss18_AT_hotmail_DOT_com>
Melbourne, Vic - Thursday, July 15, 1999 at 22:36:43
I herniated
C-6 in Dec. 1996. Recovery took approximately 2 months. I then developed
fibromyalgia. From what I can ascertain fibromyalgia often follows
a trauma, especially of the upper body. I currently take Zoloft
100mg hs & Trazadone 150mg hs. I have been scanned, x-rayed,
etc., and the 'impression' from my MRI and complete body scan of
3/99 is arthritis. Among my most prominent symptoms are generalized
upper body pain, extreme fatigue and a burning sensation and headaches
from tightness of my muscles up the back of my neck and across my
shoulders. On and off, and more frequently occurring, is this tingling/burning
sensation of my lower jaw, tongue and roof of mouth. The neurologist
I have been seeing for almost 3 years does not think there is a
connection between the arthritis and these sensations. I would greatly
appreciate any information, guidance on how to research this problem
and possible explanations as to what these symptoms are. Thanking
you in advance, Marjory Greenberg-Vaughn
Marjory Greenberg-Vaughn <msbirdgirl_AT_ibm_DOT_net>
Saugerties, NY - Tuesday, July 13, 1999 at 11:20:17
My sister has
epilepsy, including grand maul seizures, since the age of 8. She
is now 27 with 3 children. She can not work, therefore has no income
or insurance. She only sees a general practitioner and has not had
an EEG or CAT scan in nearly 10 years. My concern for her is some
information on any financial assistance programs or medication assistance.
Shelly Toutant <tytoot6_AT_ticon_DOT_net>
Jefferson, WI - Friday, July 2, 1999 at 14:40:52
My sister has
epilepsy, including grand maul seizures, since the age of 8. She
is now 27 with 3 children. She can not work, therefore has no income
or insurance. She only sees a general practitioner and has not had
an EEG or CAT scan in nearly 10 years. My concern for her is some
information on any financial assistance programs or medication assistance.
Shelly Toutant <tytoot6_AT_ticon_DOT_net>
Jefferson, WI - Friday, July 2, 1999 at 14:31:09
My 9 year old
daughter has been diagnosed with an inoperable brain stem tumor.
Looking for any information, help or guidance on the subject.
Susan Coffey <helen4loan_AT_aol_DOT_com>
- Friday, June 25, 1999 at 23:49:06
Would like
to see any information on strokes: advances in the field, therapies,
names of pioneers in the research efforts currently going on.
Keith S. Hammer <aardvark_AT_alaska_DOT_net>
Eagle River, AK - Friday, June 25, 1999 at 17:24:25
I am a novelist,
currently writing a book that involves a middle aged patient (male)
diagnosed with a grade III astrocytoma. A year after surgery, radiation
and chemotherapy, the tumor recurs as a grade IV glioblastoma. I
would be very grateful to hear from patients or their families regarding
their experiences, thoughts and emotions on dealing with this terrible
disease. I know how difficult it must be to discuss this, but I
want so much to make my character as real as possible. Thank you!
Julie Freeman <roblie_AT_flinet_DOT_com>
Tequesta, FL - Thursday, June 10, 1999 at 18:01:20
I am looking
for a specialist in the area of back surgery dealing in particular
with "Faucet vertebre" in the back of a 42 year old male.
If anyone can help me please e-mail me as soon as possible. I will
add more information as I receive it. Thanks, Jennifer Creveling
(253) 884-2784 jennifercrevelin_AT_hotmail_DOT_com
jennifer creveling <jennifercrevelin_AT_hotmail_DOT_com>
vaughn, wa - Tuesday, June 8, 1999 at 12:52:40
Hi, I have
had Tourette Syndrome since childhood, I am now 25, I am looking
for some good adult TS chatrooms. The ones that I have already found
seem to be for mostly children. If someone could e-mail me to let
me know if they have found any I would greatly appreciate it. Also,
if anyone who has TS could also e-mail me I would like to have some
support and exchange experiences. Thank you.
Steve <Xceptenz_AT_aol_DOT_com>
- Tuesday, June 8, 1999 at 10:25:02
I have some
questions about communicating vs. noncommunicating hydrocephalus.
What is the difference? I contracted bacterial meningitis as a newborn.
The doctor treated the infection, and sent me home. At the age of
six weeks, my head was the size of the rest of my body. I was under
the impression that meningitis caused scarring in the ventricular
system, thus blocking it. In my understanding, this constitutes
non-communicating hydrocephalus. I spoke with a neursurgical nurse,
and her comments caused me to think this is untrue. If you have
any thoughts on this, email me.
Brenda Standefer <standefe_AT_mscd.edu>
Denver, CO - Wednesday, May 12, 1999 at 19:38:41
This is the
best thing that has ever happened to my computer! This site is wonderfully
informative. I need information on a nuerosurgeon who specializes
in Spina -Bifida and re-untethering spinal cord procedures.Any names
or institutions would be greatly appreciated. I forgot to mention,
someone in Upstate NY. Thank you.. Sherri
Sherri <mintcreek_AT_a-znet_DOT_com>
Weedsport, NY - Thursday, April 22, 1999 at 23:11:02
This is the
best thing that has ever happened to my computer! This site is wonderfully
informative. I need information on a nuerosurgeon who specializes
in Spina -Bifida and re-untethering spinal cord procedures.Any names
or institutions would be greatly appreciated. Thank you!!
Sherri <mintcreek_AT_a-znet_DOT_com>
Weedsport, NY - Thursday, April 22, 1999 at 23:09:47
Anyone with
knowledge about psychosurgery for refractory depression....could
you get in touch with me. I need to talk to someone who knows about
the Stereotactic Cingulatomy Neurosurgery procedure. Thanks.
Lisa Bowe <Reinbow1_AT_aol_DOT_com>
Doylestown, PA - Thursday, April 22, 1999 at 22:18:19
We provide
full Pallidotomy neurosurgical treatment at Indiana University
Indiana University Medical Center Division of Neurosurgery
<worth_AT_nur.iupui.edu>
Indianapolis, IN - Wednesday, April 21, 1999 at 17:00:14
I have had
a Cervical Disectamy, with a Allograph Fusion on C-6 C-7. I was
told that I would be back to work in 6-8 weeks without pain. I am
7 months out of surgery and the pain seems to be getting worse.
Arms and neck burning and aching. Medication is only a surface fix
the pain is still very much there. I have been prompted to get Epidural
shots, Iam afraid of possible side affects, bone deteriation. Is
this realy an issue that I should be concerned with? My pain medication
seems to be looseing its affect. I would realy appreciate some feedback,
Thanks Chris
Chris <Trnsient_AT_aol_DOT_com>
- Sunday, April 18, 1999 at 13:25:37
I have been
diagnost with hydrocephalus since 1987. I am 35 years old. I have
a "Medos Valve" inserted for a shunt. I would like to
talk to people that also have this shunt or any that would just
like to talk. Thanks
James Perkins <james_AT_ime_DOT_net>
Oxford, ME - Wednesday, April 14, 1999 at 22:28:01
Test Post.
C. Owen <PageServant_AT_Neurosurgery.MassGeneral.org>
- Wednesday, April 14, 1999 at 10:50:32
I have recently
been diagnosed with meningioma en plaque. I have lost nearly full
vision in my right eye and have constant headaches. I am due to
have an operation soon but would like to know more about the tumor.
Anybody with information, could you please reply to jaybo_AT_zen.co.uk
susan largey <jaybo_AT_zen.co.uk>
MANCHESTER, - Tuesday, April 13, 1999 at 10:13:06
I recently
had two seizers within hours of each other. I had never experienced
a seizer before last saturday. I was admitted to the hospital, had
every test know to mankind all came back normal. I was released
3 days later still unclear of why it was brought on. My neurologist
thinks it was a video game I was playing minutes before my seizer.
Have you ever heard of such a thing? I am a healthy young adult
who has no such family history. Should I be concerned of this happening
again?
S.Becker <Nipaliptis_AT_aol_DOT_com>
- Thursday, April 8, 1999 at 14:23:25
My brother
has Anaplastic Astrocytoma. I do not know much about this. I am
his only family to deal with this.If anyone knows of an online support
group or any new or good info on this please e- mail me I truly
would be thankful.
Donna Barker <Dbarker310_AT_aol_DOT_com>
Winthrop, ma. - Wednesday, April 7, 1999 at 10:53:43
My sister has
a double aneurysm in her brain and my husband has an AVM - also
in the brain. I'm a little overwhelmed at the possibility of my
husband having a stroke while waiting for a new glue to be released
by the FDA for trials. My sister had a stroke in January followed
by two brain surgeries to repair the aneurysms and a third to insert
a tube to drain off the fluid. It really screwed up her short term
memory. She's only now starting to come back to where she was and
I don't think she'll ever be 100%. She's 48. My husband is 51. The
family seems to be handling this ok, but my sister is having a large
case of denial. How does one get her to accept the fact that she's
had a stroke and has some limitations without beating her over the
head? It is very frustrating.
Hazel Knof <TheKnest_AT_AOL_DOT_com>
Oakton, va - Tuesday, April 6, 1999 at 19:17:12
Can someone
give me an explanation of a "schwannoma" tumor?
Sandi Andreas <omandreas_AT_aol_DOT_com>
Fresno, Ca - Saturday, April 3, 1999 at 01:06:08
Informative
web site enjoyed browsing. I teach at a community college ADN program
and found the research informative
Carolyn ''Stovall <cstovall_AT_faytech.nc.us>
Fayetteville , nc - Tuesday, March 23, 1999 at 21:20:58
Always impressed
with the depth and content of your website. No others compare, but
what else should one expect from Harvard University!
Mark L. Goldberger, D.O., M.S. <gobegeh_AT_aol_DOT_com
/ mgoldberger%pcs_AT_mcgh.org>
Oak Park, MI - Tuesday, March 23, 1999 at 16:27:19
To whom it
may concern: The department of neurological surgery at the University
of Wisconsin has developed a webpage. Could you please add this
name to the list of the other neurological surgery departments.
Thank you, Bill
William D. Hunter,
MD <hunter_AT_neurosurg.wisc.edu>
Madison, WI - Tuesday, March 23, 1999 at 08:55:49
I am only a
freshman in High School, but i want to be a neurosurgeon. I am looking
to go into that field, and your college and center is one of the
institutes that I'm looking at.
Matthew Johnson <MRJ91383_AT_AOL_DOT_com>
Batavia, IL - Monday, March 22, 1999 at 15:29:50
I am only a
freshman in High School, but i want to be a neurosurgeon. I am looking
to go into that field, and your college and center is one of the
institutes that I'm looking at.
Matthew Johnson <MRJ91383_AT_AOL_DOT_com>
Batavia, IL - Monday, March 22, 1999 at 15:29:39
Recently my
sister had MUSCULAR DECOMPRESSION (a teflon disk was inserted between
the Nerve and the offending Artery?)performed on herself. She still
has pain in the same area so now she is getting Accupuncture treatments
and Cranial Pain Therapy. Is it possible that the disk slipped?
Does this operation have a high fialure rate? TIA DougR
Douglas Richardson <43maxput_AT_sympatico.ca>
Toronto, ON - Saturday, March 20, 1999 at 11:51:12
I am a 58 year
old lady with a 3.5 meningoma tumor.I had 3 surgeries in 1996.I
had the most wonderful doctor. He did a great job. My tumor was
almost unoperable, but he got most of it. Then in 1997 I had the
Gamma Knife surgery with chemo Anyone that is wondering about the
gamma Knife surgery, it was not bad. It can be done as an outpatient,
but I had to stay over night because the pain medication made me
sick and they would no release me until i stopped being sick. Don't
hesitate to have the surgery, it's not that bad.I have to have an
MRI done yearly to see is my tumor has started to grow. Thank GOD
so far I have been lucky. I went back to work after 1 year. I am
an accountant. I have some memory lapse at times and my mobility
gets a little shaky , but otherwise I am doing. Just keep your faith
and trust in GOD and we will all make it OK.
carol frenza <cfrenza_AT_yahoo_DOT_com>
Houston, TX - Friday, March 19, 1999 at 21:13:53
Looking for
various chat rooms regarding paralysis.
bss <stobar18_AT_yahoo_DOT_com>
- Tuesday, March 16, 1999 at 23:06:27
My 34 year
old daughter had surgery for an aneurysm 3 weeks ago. She has progressed
nicely for the most part with some loss of motor skills to her left
side and appears to have some mental instability in as much as she
remembers who her family members are and that she has a new granddaughter
but wants deceased members to come to the rehab unit to see her
and her new grandchild. It's frustrating to see her stare off into
space knowing that she's trying to act like she knows what we are
say or is trying to remember something she has no recollection of.
Has your research given any indication that her mental capacities
can be brought back with rehabilitation?
Sandra Taylor <sandit6_AT_aol_DOT_com>
memphis, TN - Sunday, March 14, 1999 at 22:42:33
i have been
diagnosed with galatorrhea and i would like more information about
this subject.thanks
Jennifer <jennifer_AT_virtuel.qa.>
- Wednesday, March 10, 1999 at 07:57:15
In 1984, my
wife suffered a major subarchnoid brain hemorrage due to the rupture
of an AV malformation. She was in her 5th month of pregnancy with
our first child. My wife and my child both survived. My wife had
surgery at Duke Medical Center to repair the malformation. She still
has problems with keeping her balance and with certain mermory loss.
She would like to hear from anyone who has a similar experience
or problems. There are no support groups in our area. Please send
comments to my E-mail and I will pass them on to her. Thank you.
Charles Lowther <lowtherco_AT_hotmail_DOT_com>
Folkston, GA - Thursday, March 4, 1999 at 12:45:48
About a month
ago my mom had a brain anurysm and she under gone surgery and she
pulled through and now shes halfway healed
amy ferge <snowflake2002.hotmail_DOT_com>
new london , WI - Thursday, February 25, 1999 at 12:57:32
I am 49 and
diagnosed approx. 6 years ago with TN.I have tried Tegritol, Dilanton,
Baclofen, Nortriptyline,and more, but I finally got complete relief
with Lamictal. This is a fairly new drug, and it has no side effects.
I have been pain free since Sept. 1998, so I highly recommend Lamictal.
This guestbook is a great idea-thanks.
phyllis <pcox_AT_sscc.cc.tn.us>
memphis, tn - Thursday, February 25, 1999 at 09:20:48
My 45 year
old husband has recently undergone total resection of a primitive
neuroectodermal tumor. He has also been through radiation therapy
and we are now entering into the chemotherapy process. I am just
curious if anyone has the statistics for survival of this rare tumor
or any other information that you could pass on. Thank you!
judy bloomquist <judyb21_AT_juno_DOT_com>
Meridian, ID - Monday, February 22, 1999 at 21:05:12
The web forums
have helped me so much.They have helped me more than any medication
or therapy ever has.It is nice to have people who can relate to
you.
Amy Goff <agoff_AT_email.sjsu.edu>
San Jose, CA - Monday, February 22, 1999 at 02:39:48
Hello everyone
surviving and others.I want to invite everyone to a brain injury
support group in Salem Mass. If interested please e-mail me? I also
want you to visit my home page and sign my guest book. Go ahead
just click on my name and visit ? Thank You. "Still Surviving"
David R. :)
David R.
<ElToro518_AT_aol_DOT_com>
Lynn,, MA. - Sunday, February 21, 1999 at 19:04:17
I'm a thirty-one
year old mother of two and suffered a large subarachnoid haemorrhage
in June 98 due to congenital AVM. I knew I was epileptic but had
no idea about the AVM until last year. In the Uk there's little
in the way of patient support following brain surgery for AVM/SAH.
If you've suffered similar and you'd like to make contact with someone
who understands how it feels, please email direct. Or if you can
offer support I'd be very grateful too!
Sandra Woodhall <hello_AT_swoodhall.freeserve.co.uk>
London, - Wednesday, February 17, 1999 at 19:09:32
HELLO, MY NAME
IS MICHAEL. THIS ISN'T REALLY A COMMENT ,IT IS A QUESTION. i WAS
DX IN APRIL OF 1997, I HAVE BEEN FEELING BAD SINCE NOV.96. I HAD
IT REMOVED SEPT.98. WHAT I DONT UNDERSTAND IS WHY MY HEAD FEELS
SO BAD? IS NOT PAIN. I HAVE SO MANY SYMPTOMS. AND THE DOCOTRS SAY
IT ISNT FROM THE TUMOR. THEN WHAT IS IT?? I JUST DONT UNDERSTAND.
I AM A 21 YEAROLD WOMAN WHO FEELS 63. IT IS AN EVERYDAY STRUGGLE
FOR M. I CANT EVEN SPEND TIME WITH MY KIDS. weLL I FEEL WORSE WHEN
I EAT. I FEEL DIZZY,LIGHT HEADED,WEAK NERVOUS,I FEEL LIKE PASSING
OUT ALL THE TIME, MY STOMACH BUBBLES WHEN I EAT AND BEFORE I EAT.
MY STOMACH SEEMS LIKE ITS GETING WORSE AND WORSE. LIKE I SAID MY
HEAD FELLS WORSE AFTER I EAT. AND WHEN I DONT EAT IT FEELS BAD TOO.
I JUST NEED ANSWERS. CAN SOMEONE PLEASE TELL ME WHAT STEPS I SHOULD
TAKE TO TO RESOLVE MY PROBLEM TO BE ABLE TO LIVE A NORMAL LIFE AGAIN.
TO FEEL NORMAL. THATS ALL I WANT.. I WANT TO KNOW IF THERE IS ANYONE
ELSE WITH THE SAME PROBLEMS AND SYMPTOMS AS ME? IS THIS FEELING
EVER GONNA END OR GO AWAY? THANKS SO MUCH, ] GOD BLESS YOU.. KEEP
ME IN YOUR PRAYERS...... MICAHEL
MICHAEL PATRIDGE <BOOKIE68_AT_AOL_DOT_com>
LONG BEACH, CA - Tuesday, February 16, 1999 at 14:23:24
We are just
checking around to know where to send copies of my dad's mri's and
biopsy report. We need to know the best brain tumor centers to send
them to. He is looking to have surgery done.
Cheri Box <TCBox_AT_aol_DOT_com>
Aurora, Co - Monday, February 15, 1999 at 19:51:09
I have Trigeminaial
Neuralgia and am looking for support or help in dealing with chronic
pain
mssj8500_AT_aol_DOT_com
swartz creek, mi - Monday, February 15, 1999 at 19:30:24
I started having
problems with double vision approximately 6 months ago. I tried
new glasses and it only got worse. My doctor suspected Myasthenia
Gravis and sent me to a Neurologist. I have had all the complex
tests plus a MRI of the brain. The final diagnosis is Ocular Myasthenia
Gravis with no signs of general Myasthenia Gravis. Medication is
of no help for the double vision. Has anyone lived with this for
several months or years? What can I expect and what can I do to
help with the situation?
Ron <jimsue_AT_hitter_DOT_net>
- Thursday, February 11, 1999 at 12:04:48
I had surgery
for ACM1 in May of 97. Now I'm experiencing the same problems again.
Will I have to have the operation?
Jean Hochgesang <jean.a.hochgesang_AT_boeing_DOT_com>
St. Louis, MO - Wednesday, February 10, 1999 at 15:54:08
My mother has
suffered with trigeminal neuralgia for 10 years. She would like
to have microvascular decompression surgery, but has no insurance.
She was seen at the Mayo clinic because we thought she could have
surgery there even though money is an issue. We were wrong. Please
- anyone out there that knows of funding or a program that can help,
please let me know. Thanks!
Tammi Light <t.light_AT_gte_DOT_net>
Kansas City, MO - Wednesday, February 10, 1999 at 01:04:57
My mother has
suffered with trigeminal neuralgia for 10 years. She would like
to have microvascular decompressioni surgery, but has no insurance.
She was seen at the Mayo clinic because we thought she would have
surgery there even though money is an issue. We were wrong. Please
- anyone out there that knows of funding or a program that can help,
please let me know. Thanks!
Tammi Light <t.light_AT_gte_DOT_net>
Kansas City, MO - Wednesday, February 10, 1999 at 01:02:57
NON-PROFIT
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of businesses. We would like to propose to you that by placing our
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Fax: (702) 369-8213 URL: http://www.theonlinedirectory_DOT_com E-mail:
tod_AT_theonlinedirectory_DOT_com
Ann Marie <tod_AT_theonlinedirectory_DOT_com>
Las Vegas, NV - Saturday, February 6, 1999 at 17:29:50
I WOULD LIKE
TO E-MAIL A QUESTION REGARDING A PROBLEM I HAVE BEEN HAVING IN HOPES
OF GETTING A RECOMMENDATION. THANK YOU.
jodi marton <smarton_AT_qual_DOT_net>
lyndhurst, oh - Friday, January 29, 1999 at 01:16:43
Great site
Dwayne Ramsey <wdramsey_AT_globalbiz_DOT_net>
Taylor, MI - Wednesday, January 27, 1999 at 23:41:02
t
t
- Monday, January 25, 1999 at 14:22:31
I am a 72 year
old female with Stenosis in the Cervical part of my spine. The pain
is terrible. I have had the Cortisone shots, with no success. Can
anyone give me any information on other treatments. Or could you
tell me about your experience? Thank you.
Rose <pebbles_AT_citrus.infi_DOT_net>
- Thursday, January 21, 1999 at 18:59:36
Thanks for
this webpage. I am a High School Senior and have just been accepted
into the pre-medical program at the University of Oklahoma. I plan
become a neurosurgeon and I am trying to see just what I am getting
myself into! Thanks again for the insight!
April Williams <JWill12169_AT_aol_DOT_com>
Allen, TX - Thursday, January 21, 1999 at 14:01:34
I am looking
to correspond with someone who has or who knows about Erbs Palsy.
My daughter is 5 months old and has it. I would enjoy exchanging
stories, etc.
Heather Petersen <thepetes_AT_pacbell_DOT_net>
Vacaville, Ca - Wednesday, January 20, 1999 at 17:47:49
I was dxed
w/ Parkinsons Disease 2 1/2 ys ago and i am now 59. I was referred
yothese pages by folks at the PWP chat room. I think your information
is very readable and recent . keep up the good work
Bruce Morgan <mormaps_AT_snip_DOT_net>
Cherry Hill, NJ - Monday, January 18, 1999 at 15:18:08
I am a medicine
student at "La Sapienza" University,Rome, I will graduate
at July 1999. I am attending the Neurosurgery/Neurotraumatology
Dept. and I am interested twith etiology of Subdural Hematoma and
the subdural space. I would like to receive information about Internschip;
Residency or research programs in Neurosurgery in the United States,
Thank you for attention. My address: Via Virgilio Ramperti,10 Roma
00159 Italy
Emiliano Passacantilli
Rome, Ita - Thursday, January 14, 1999 at 06:08:33
My pain stay's
with me constantly; i have been diagnosis with sciatic nerve damage
with the pain radiating down both leg. i need to know if surgery
is my best option; since i have taken a pain known.
illinoiscarol_AT_worldnet.att_DOT_net
chicago, il - Friday, January 8, 1999 at 08:38:27
Check out www.pituitary_DOT_com!
They have a wonderful Q+A forum, plus it's jam-packed with other
great information about pituitary disorders!
Jeff Hansen <jhansen_AT_imt_DOT_net>
- Friday, January 8, 1999 at 01:58:23
I read the
article in Newsweek Mazagine and I'd like to contact Dr. Michael
Moskowitz regarding some remarkable experiences with migraines.
If this could be forwarded I'd like to give him the information
in order to help others.
Bea <beasylvia_AT_aol_DOT_com>
Burbank, ca - Thursday, January 7, 1999 at 23:29:01
I wish I would
have known about this information alot sooner. I have had 4 surgeries
for brain aneurisms; 2 ruptured and clipped, 1 other clipped (right
side), cranioplasty and a coil placement for a re-occurance. I don't
remember all the proper names. My neur-surgeon is not great at explaining
and I have not found a support group in this area. From what I've
heard from people & Dr's, I should be dead or a semi vegetable.
I am not and am 38 (my 1st surgery was in '92). I look forward to
reading all the information you have provide and hope that the chat
sites prove informative. Thanks.
Cindy Bergman <bergman_AT_telusplanet_DOT_net>
Keoma, AB - Wednesday, January 6, 1999 at 23:49:17
I am looking
for overseas support as we are lacking such here in Australia. What
educational/emotional support tools are available to me? I would
like to chat with an expert neuroradiologist and neurosurgeon about
my AVM before treatment begins. Who can help me?
Kerryn Abagi <abagi_AT_bigpond_DOT_com>
Sydney, - Wednesday, January 6, 1999 at 22:09:24
I am trying
to find some literature for my mother on Corticalbasal Ganglionic
Degeneration. My Aunt has this and we are trying to find out some
information on it so we can understand. Please let me know how or
where I can get this to print it out for my mother. Thanks I appreciate
it!
Lisha Russell <david.russell_AT_gowebway_DOT_com>
Roy, UT - Wednesday, January 6, 1999 at 20:50:01
Hello I'm 33yrs
Just surfing on. I would like for people from all over the world
to take time and please read my inspired true storings. And to sign
my guest book. Thank you and Bless everyone...... David R.
David R.
<ElToro518_AT_aol_DOT_com>
Lynn, MA - Saturday, January 2, 1999 at 13:39:52
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