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GuestBook Log 1999
Neurosurgical Service at MGH

Main GuestBook Log

Archived versions are found at:
Guest99 (Jan '99 - Dec '99)
Guest98 (Jan '98 - Dec '98)
Guest97 (Jan '97 - Dec '97)
Guest96 (Aug '96 - Dec '96)
Guest95 (Mar '95 - Jul '96)

Thank you for visiting our pages. We would appreciate it if you would add to our GuestBook(s). Please choose the the Web Service that you are interested in, as each Neurosurgical speciality has there own GuestBook.

Please Note: This is an unmonitored guestbook. We can not endorse or be responsible for its content. It is not, of course, an appropriate place to seek medical advice; rather to provide mutual support.  For medical advice consult your physician.

Note: We do not ordinarily edit the posts to these GuestBooks, so please be careful with what information you post.  If you do not want to be contacted by others, then do not post your e-mail address.  Remember - these are public GuestBooks and search engines will find your e-mail address.

Comments and additional links are also welcomed.

If you are interested in a referral for a medical opinion see the MGH Neurosurgical Service referral page or consult one of the many speciality pages listed on our site.


I just got into this and I have a question about my back pain but I don't know where to ask it could you please let me know how I can do it .Thankyou catherine hurley
catherine hurley <hurley_AT_blclinks_DOT_net>
silverwood, mi - Monday, December 13, 1999 at 18:05:15


I am going to be a neurosurgeon so i can afford the kind of hooker you can take out first.
James Seabrook <flow79_AT_hotmail_DOT_com>
Thessalon, ON - Monday, December 13, 1999 at 09:23:08


F-48 : I have had two piturtary tumor surgery - 1998. I was told that the tumor would be 80% removed. I did my homework and felt along with my other doctors I had the right doctor for the surgery. I am in no way saying he did not do his best but the surgery in both cases did not remove but a total of 10%. It has been a year now and I have had one MRI that showed no new growth. Do you think I should opt for radiation or one more surgery? It is my concern for my eyesight that I even give this any consideration, now. I was diagnosis in 1988. The tumor had grown to 3cm before 1st surgery. Thank you for any comment ....Micheale
Micheale Wicks <Micheale03_AT_AOL_DOT_com>
Austin, Tx - Tuesday, November 16, 1999 at 14:30:31


I am looking forward to second microdisectomy in a few weeks. Looking for people wilth similar stories.
Loretta Mackay <arjbapmom_AT_aol_DOT_com>
Sandwich, MA - Sunday, November 14, 1999 at 17:20:50


I was dianogsised with acute trigenimal neurolgia this year in June99. I have been doing a lot of research of my disease. I have been in pain for the last two years and would listen about the pain. I was referred by the trigenial neurolgia association to see the doctor April Vallerand who inturn got me appointment with her husband who knows a lot more then other doctors about this disorder. My concern is that since I have all three branches effected by this disorder is that I already lost my hearing in my ear because of this and also I am about 20% blind in my left eye and when the seizures get worse my eye loses vision. My concern now I am experiencing memory lost or forgeting thing can this be contribute to ATN? I am open to any sugguestion anyone would have. I have a MRI every six months to rule out a tumor or an anyerism.
DEAN GLENN <daglenn_AT_americanspeedy_DOT_com>
troy , mi - Saturday, November 6, 1999 at 11:48:14


Dear Sir, My daughter is suffering from patial seizer and now been treated by doctors under durg valporic acid (epilimin 200 mgs x 3 times a day) and chlonezipam 0.5mgs per day.However she is very slow in her day to day activities and in studies. Once in a while she gets this fit and last about 2-3 minutes.I am planning to come to vist with her next year to seek a treatment and could be able to assist me in finding soultion to this problem and assisting me in funding to make here cure. Thanking You sir Looking forwrad to hearing from you soon Yours Upul Gunasekera Sri-Lanka Fax:011-94-1-699194 e-mail:shantha_AT_itmin_DOT_com
Upul Gunasekera <shantha_AT_itmin_DOT_com>
Colombo, - Friday, November 5, 1999 at 05:55:52


Have you heard of the "IDET" proceedure for disk problems/ I DONT want surgery(fusion) and dr said I might be a good canidate for I.D.E.T.?????anyone have information on this? ANYTHINGS BETTER THAN A KNIFE~~~~~~~~~
Lynne <rsdsux_AT_aol_DOT_com>
Longview, Tx - Tuesday, October 26, 1999 at 18:04:04


My husband, Granger, 69, has Stage IV Lung Cancer. He was operated on Dec. 94 for an encapsulated adenocarcinoma, with no chemo or radiation. Three yrs later, same cell was in parietal lobe of brain, 3cm, operated on and followed up by 5 wks radiation. 1 yr later another tumor, 2 cm. in frontal lobe, operated on, followed up by stereotactic radiosurgery. He has been functioning very well but latest MRI show two more tumor sights. We will have stereo RS tomorrow in Boston and follow up radiation for others for 4 wks. Drs. give a grim prognosis so I am looking for anyone with a similar situation to know what all this radiation will do to him. Will it actually help or send him into an unpleasant way of life. Scared in Maine.
Judy Ottley <ottley_AT_megalink_DOT_net>
Bridgton, ME - Wednesday, October 20, 1999 at 09:43:46


very exstential
Tiffany masters <Masterst2_AT_odc.edu>
Columbus, , Oh - Monday, October 18, 1999 at 13:19:47


My sister, 64 years old, has had back problems for about 30 years. She has had 4 surgeries on her back and each time the nerves are affected by scar tissue. She read an article in the paper that said the scar tissue could be removed by Epiduroscopy using a Myeloscope. Does anyone know anything about this? Please respond if you do.
Lola Cunningham <lola1cat_AT_aol_DOT_com>
Bend, OR - Monday, October 18, 1999 at 00:53:07


I'd like to get off of my seizure medication - well, wouldn't we all? I'm 25 and would like to think about having children - without being on dilatin as it can be quite harmful to a fetus. Anyone have any luck getting off their medication using alternatives to medication/ surgery???
Davika Schackman <davika.schackman_AT_brannsf_DOT_com>
San Francisco, CA - Wednesday, October 13, 1999 at 16:53:29


I'Ve been diagnosed with a pinched nerve a C7. This followed a separated shoulder. I'm interested in the different types of treatment for this problem. I've had rotator cuff surgery. The pinched nerve was just diagnosed. Thanks Kathy
Kathy Burns <Kaburns_AT_concentric_DOT_net>
San Jose, CA - Sunday, September 26, 1999 at 23:41:24


please provide information on studies of success rate on allographs in the cervical spine. Thank you
kendall e snyder <ksnyder_AT_mizar.usc.edu>
fullerton, ca - Monday, September 6, 1999 at 23:24:52


looking for parents of children w/ vp/va shunts and or hydrocephalus, that would like to form a support group in the Minnesota twin cities area. Would also like to hear pointers on how to start a support group and the best route to do so. I'm A single mom of a 4yr old son ww/ hydro. would really like to hear from other single parents also. you could also leave be a voicce mail message at 1-888-366-0315. Thanx, JennellHolm
Jennell Holm <jennell_holm_AT_starkey_DOT_com>
anoka, mn - Sunday, September 5, 1999 at 00:37:57


I have basic info on Tarlov Cysts, but would like to know of any research or methods to get rid of one that is on LS1-2 (at very base of spine). Docs tell me nothing can be done.
Sally Marvin <sdmarvin_AT_hotmail_DOT_com>
St. Petersburg, FL - Thursday, August 26, 1999 at 10:26:23


I have concerns about weaning off of one of my anti seizure medications to stay on just one. My doctor says I will most likely have multiple seizures while getting off of one and that I will always be a two drug person. I wasn't before until they switched me to a new drug. I would just like to hear from people who have gotten off of some anti-seizure medication. I am 25 and looking to have children some day. I want as little toxic risk as possible.
Sandra Williams <swilli_AT_acninc_DOT_net>
- Wednesday, August 25, 1999 at 19:44:19


my mother sufers from trigeminal neuralgia, sheŽs had allot of tritments and nothing if somebody can tell me of new medicines iŽll gladli have them in mine
maru chavez
- Saturday, August 21, 1999 at 14:51:22


I read recently in the US News and World Report that Mass General has a fantastic Neurology and Neurosurgery division. Since I have been having some increasing debilitating Neurlological problems and the current Neurologist that I am seeing seems in ept to handle my case........moving too slow, in three months progression has been from outer extremities to the entire body, despite the Nerotnin (1800 mg) I take now. I need some help desperately because this has been depressing the life out of me. Anyhow, Keep up the good work, "we" need hospitals like yours around.
Theresa Chartienitz <TerryC_AT_Doble_DOT_com>
Lexington, M MA - Thursday, August 19, 1999 at 13:40:44


I read recently in the US News and World Report that Mass General has a fantastic Neurology and Neurosurgery division. Since I have been having some increasing debilitating Neurlological problems and the current Neurologist that I am seeing seems in ept to handle my case........moving too slow, in three months progression has been from outer extremities to the entire body, despite the Nerotnin (1800 mg) I take now. I need some help desperately because this has been depressing the life out of me. Anyhow, Keep up the good work, "we" need hospitals like yours around.
Theresa Chartienitz <TerryC_AT_Doble_DOT_com>
Lexington, MMA - Thursday, August 19, 1999 at 13:40:10


Hi, I had the IDET procedure 4/22/99 and my recovery has been very slow. After 4 months now I am still more sore and in more pain than pre-IDET. My sitting tollerance has been reduced to about 20nim. (max) now. I was told by my Dr. that there are certain cases that are very sore for up to 6 months after IDET but then begin to get better and in the end are better off than pre-IDET. Is there anyone out there that has had a similar response to mine? If so please email me. Thank you, Mark
Mark Baumeister <Mark_Baumeister_AT_cc.chiron_DOT_com>
El Cerrito, CA - Monday, August 16, 1999 at 15:33:20


I'm 34yrs. old, I have a page, very small with my inspired true stories. Title "SurvivingBrain Injury" I have put together some stories after my TBI which happened on 6-29-94. Go ahead click on my name and visit. Thanks Take Care..
David R. <ElToro518_AT_aol_DOT_com>
Lynn,, MA. - Thursday, August 12, 1999 at 14:50:26


I have been treated for a c-spine AVM. I know it is a rare defect but i would like to talk to someone about it. I had the surgery done in 1995 by a sergeon Mark V. Riechman who had only done the procedure a few times before in the spinal chord. Anyway I want to relate to someone who may have had the same thing happen to them. THANKS!!
Nathan Terry <nate_AT_royalnoni_DOT_com>
St. George, UT - Wednesday, August 11, 1999 at 11:13:15


I am particularly interested in any information you have about aneurysms
CORI GRAY <cori.gray_AT_ncpanet.org>
Alexandria, VA - Tuesday, August 3, 1999 at 17:23:48


The World Wide Web home of the Department of Neurological Surgery at Strong Memorial Hospital in Rochester, NY.
University of Rochester Department of Neurological Surgery <Neurosurgery_AT_urmc.rochester.edu>
Rochester, NY - Thursday, July 29, 1999 at 14:36:53


In frantic search of procedure for damaged disks,C4,5,6. Nothing of note in state of florida. by rec., would like to contact MGH via E-mail or "800". I am new to computer, located Neuro. page, still searching. Is there anyone who uses laser tech. on cervical? Important to collect best infor before I can travel for TX. Please advise. Thank you.
P. Sondrol-O'Day <calvoyage_AT_aol_DOT_com>
orlando, fl - Tuesday, July 27, 1999 at 12:32:18


I am a brazilian neurosurgery resident and I always visit the MGH Neurosurgery home page and reffer to your service very often to discuss some cases.
Benedito Domingos Amorim F. <btbenedi_AT_zaz_DOT_com.br>
Botucatu, SP - Monday, July 26, 1999 at 18:24:18


My wife (34 years) is sufferring from astrocytoma 3. She had radiation and right now the last PVC. Nothing seems to work. Surgery ain't possible. Can somebody help?
Maurice Willemsen <m.j.j.m.willemsen_AT_avv.rws.minvenw.nl>
Landgraaf, - Friday, July 23, 1999 at 04:32:22


Can archnoid cyst cause dizziness on one side of the head?
Barbara Adams <Barb620_AT_aol_DOT_com>
Westminster, CO - Wednesday, July 21, 1999 at 14:37:10


I'm trying so hard to get better.
Alli <Alli14956_AT_aol_DOT_com>
Stone Ridge, NY - Tuesday, July 20, 1999 at 19:18:35


I would really appreciate any information or web sites concerning the neuronal xenotransplantation of pig fetuses into patients suffereing from Parkinsons disease, especially the specific technique involved. Thankyou
Felicity <fliss18_AT_hotmail_DOT_com>
Melbourne, Vic - Thursday, July 15, 1999 at 22:36:43


I herniated C-6 in Dec. 1996. Recovery took approximately 2 months. I then developed fibromyalgia. From what I can ascertain fibromyalgia often follows a trauma, especially of the upper body. I currently take Zoloft 100mg hs & Trazadone 150mg hs. I have been scanned, x-rayed, etc., and the 'impression' from my MRI and complete body scan of 3/99 is arthritis. Among my most prominent symptoms are generalized upper body pain, extreme fatigue and a burning sensation and headaches from tightness of my muscles up the back of my neck and across my shoulders. On and off, and more frequently occurring, is this tingling/burning sensation of my lower jaw, tongue and roof of mouth. The neurologist I have been seeing for almost 3 years does not think there is a connection between the arthritis and these sensations. I would greatly appreciate any information, guidance on how to research this problem and possible explanations as to what these symptoms are. Thanking you in advance, Marjory Greenberg-Vaughn
Marjory Greenberg-Vaughn <msbirdgirl_AT_ibm_DOT_net>
Saugerties, NY - Tuesday, July 13, 1999 at 11:20:17


My sister has epilepsy, including grand maul seizures, since the age of 8. She is now 27 with 3 children. She can not work, therefore has no income or insurance. She only sees a general practitioner and has not had an EEG or CAT scan in nearly 10 years. My concern for her is some information on any financial assistance programs or medication assistance.
Shelly Toutant <tytoot6_AT_ticon_DOT_net>
Jefferson, WI - Friday, July 2, 1999 at 14:40:52


My sister has epilepsy, including grand maul seizures, since the age of 8. She is now 27 with 3 children. She can not work, therefore has no income or insurance. She only sees a general practitioner and has not had an EEG or CAT scan in nearly 10 years. My concern for her is some information on any financial assistance programs or medication assistance.
Shelly Toutant <tytoot6_AT_ticon_DOT_net>
Jefferson, WI - Friday, July 2, 1999 at 14:31:09


My 9 year old daughter has been diagnosed with an inoperable brain stem tumor. Looking for any information, help or guidance on the subject.
Susan Coffey <helen4loan_AT_aol_DOT_com>
- Friday, June 25, 1999 at 23:49:06


Would like to see any information on strokes: advances in the field, therapies, names of pioneers in the research efforts currently going on.
Keith S. Hammer <aardvark_AT_alaska_DOT_net>
Eagle River, AK - Friday, June 25, 1999 at 17:24:25


I am a novelist, currently writing a book that involves a middle aged patient (male) diagnosed with a grade III astrocytoma. A year after surgery, radiation and chemotherapy, the tumor recurs as a grade IV glioblastoma. I would be very grateful to hear from patients or their families regarding their experiences, thoughts and emotions on dealing with this terrible disease. I know how difficult it must be to discuss this, but I want so much to make my character as real as possible. Thank you!
Julie Freeman <roblie_AT_flinet_DOT_com>
Tequesta, FL - Thursday, June 10, 1999 at 18:01:20


I am looking for a specialist in the area of back surgery dealing in particular with "Faucet vertebre" in the back of a 42 year old male. If anyone can help me please e-mail me as soon as possible. I will add more information as I receive it. Thanks, Jennifer Creveling (253) 884-2784 jennifercrevelin_AT_hotmail_DOT_com
jennifer creveling <jennifercrevelin_AT_hotmail_DOT_com>
vaughn, wa - Tuesday, June 8, 1999 at 12:52:40


Hi, I have had Tourette Syndrome since childhood, I am now 25, I am looking for some good adult TS chatrooms. The ones that I have already found seem to be for mostly children. If someone could e-mail me to let me know if they have found any I would greatly appreciate it. Also, if anyone who has TS could also e-mail me I would like to have some support and exchange experiences. Thank you.
Steve <Xceptenz_AT_aol_DOT_com>
- Tuesday, June 8, 1999 at 10:25:02


I have some questions about communicating vs. noncommunicating hydrocephalus. What is the difference? I contracted bacterial meningitis as a newborn. The doctor treated the infection, and sent me home. At the age of six weeks, my head was the size of the rest of my body. I was under the impression that meningitis caused scarring in the ventricular system, thus blocking it. In my understanding, this constitutes non-communicating hydrocephalus. I spoke with a neursurgical nurse, and her comments caused me to think this is untrue. If you have any thoughts on this, email me.
Brenda Standefer <standefe_AT_mscd.edu>
Denver, CO - Wednesday, May 12, 1999 at 19:38:41


This is the best thing that has ever happened to my computer! This site is wonderfully informative. I need information on a nuerosurgeon who specializes in Spina -Bifida and re-untethering spinal cord procedures.Any names or institutions would be greatly appreciated. I forgot to mention, someone in Upstate NY. Thank you.. Sherri
Sherri <mintcreek_AT_a-znet_DOT_com>
Weedsport, NY - Thursday, April 22, 1999 at 23:11:02


This is the best thing that has ever happened to my computer! This site is wonderfully informative. I need information on a nuerosurgeon who specializes in Spina -Bifida and re-untethering spinal cord procedures.Any names or institutions would be greatly appreciated. Thank you!!
Sherri <mintcreek_AT_a-znet_DOT_com>
Weedsport, NY - Thursday, April 22, 1999 at 23:09:47


Anyone with knowledge about psychosurgery for refractory depression....could you get in touch with me. I need to talk to someone who knows about the Stereotactic Cingulatomy Neurosurgery procedure. Thanks.
Lisa Bowe <Reinbow1_AT_aol_DOT_com>
Doylestown, PA - Thursday, April 22, 1999 at 22:18:19


We provide full Pallidotomy neurosurgical treatment at Indiana University
Indiana University Medical Center Division of Neurosurgery <worth_AT_nur.iupui.edu>
Indianapolis, IN - Wednesday, April 21, 1999 at 17:00:14


I have had a Cervical Disectamy, with a Allograph Fusion on C-6 C-7. I was told that I would be back to work in 6-8 weeks without pain. I am 7 months out of surgery and the pain seems to be getting worse. Arms and neck burning and aching. Medication is only a surface fix the pain is still very much there. I have been prompted to get Epidural shots, Iam afraid of possible side affects, bone deteriation. Is this realy an issue that I should be concerned with? My pain medication seems to be looseing its affect. I would realy appreciate some feedback, Thanks Chris
Chris <Trnsient_AT_aol_DOT_com>
- Sunday, April 18, 1999 at 13:25:37


I have been diagnost with hydrocephalus since 1987. I am 35 years old. I have a "Medos Valve" inserted for a shunt. I would like to talk to people that also have this shunt or any that would just like to talk. Thanks
James Perkins <james_AT_ime_DOT_net>
Oxford, ME - Wednesday, April 14, 1999 at 22:28:01


Test Post.
C. Owen <PageServant_AT_Neurosurgery.MassGeneral.org>
- Wednesday, April 14, 1999 at 10:50:32


I have recently been diagnosed with meningioma en plaque. I have lost nearly full vision in my right eye and have constant headaches. I am due to have an operation soon but would like to know more about the tumor. Anybody with information, could you please reply to jaybo_AT_zen.co.uk
susan largey <jaybo_AT_zen.co.uk>
MANCHESTER, - Tuesday, April 13, 1999 at 10:13:06


I recently had two seizers within hours of each other. I had never experienced a seizer before last saturday. I was admitted to the hospital, had every test know to mankind all came back normal. I was released 3 days later still unclear of why it was brought on. My neurologist thinks it was a video game I was playing minutes before my seizer. Have you ever heard of such a thing? I am a healthy young adult who has no such family history. Should I be concerned of this happening again?
S.Becker <Nipaliptis_AT_aol_DOT_com>
- Thursday, April 8, 1999 at 14:23:25


My brother has Anaplastic Astrocytoma. I do not know much about this. I am his only family to deal with this.If anyone knows of an online support group or any new or good info on this please e- mail me I truly would be thankful.
Donna Barker <Dbarker310_AT_aol_DOT_com>
Winthrop, ma. - Wednesday, April 7, 1999 at 10:53:43


My sister has a double aneurysm in her brain and my husband has an AVM - also in the brain. I'm a little overwhelmed at the possibility of my husband having a stroke while waiting for a new glue to be released by the FDA for trials. My sister had a stroke in January followed by two brain surgeries to repair the aneurysms and a third to insert a tube to drain off the fluid. It really screwed up her short term memory. She's only now starting to come back to where she was and I don't think she'll ever be 100%. She's 48. My husband is 51. The family seems to be handling this ok, but my sister is having a large case of denial. How does one get her to accept the fact that she's had a stroke and has some limitations without beating her over the head? It is very frustrating.
Hazel Knof <TheKnest_AT_AOL_DOT_com>
Oakton, va - Tuesday, April 6, 1999 at 19:17:12


Can someone give me an explanation of a "schwannoma" tumor?
Sandi Andreas <omandreas_AT_aol_DOT_com>
Fresno, Ca - Saturday, April 3, 1999 at 01:06:08


Informative web site enjoyed browsing. I teach at a community college ADN program and found the research informative
Carolyn ''Stovall <cstovall_AT_faytech.nc.us>
Fayetteville , nc - Tuesday, March 23, 1999 at 21:20:58


Always impressed with the depth and content of your website. No others compare, but what else should one expect from Harvard University!
Mark L. Goldberger, D.O., M.S. <gobegeh_AT_aol_DOT_com / mgoldberger%pcs_AT_mcgh.org>
Oak Park, MI - Tuesday, March 23, 1999 at 16:27:19


To whom it may concern: The department of neurological surgery at the University of Wisconsin has developed a webpage. Could you please add this name to the list of the other neurological surgery departments. Thank you, Bill
William D. Hunter, MD <hunter_AT_neurosurg.wisc.edu>
Madison, WI - Tuesday, March 23, 1999 at 08:55:49


I am only a freshman in High School, but i want to be a neurosurgeon. I am looking to go into that field, and your college and center is one of the institutes that I'm looking at.
Matthew Johnson <MRJ91383_AT_AOL_DOT_com>
Batavia, IL - Monday, March 22, 1999 at 15:29:50


I am only a freshman in High School, but i want to be a neurosurgeon. I am looking to go into that field, and your college and center is one of the institutes that I'm looking at.
Matthew Johnson <MRJ91383_AT_AOL_DOT_com>
Batavia, IL - Monday, March 22, 1999 at 15:29:39


Recently my sister had MUSCULAR DECOMPRESSION (a teflon disk was inserted between the Nerve and the offending Artery?)performed on herself. She still has pain in the same area so now she is getting Accupuncture treatments and Cranial Pain Therapy. Is it possible that the disk slipped? Does this operation have a high fialure rate? TIA DougR
Douglas Richardson <43maxput_AT_sympatico.ca>
Toronto, ON - Saturday, March 20, 1999 at 11:51:12


I am a 58 year old lady with a 3.5 meningoma tumor.I had 3 surgeries in 1996.I had the most wonderful doctor. He did a great job. My tumor was almost unoperable, but he got most of it. Then in 1997 I had the Gamma Knife surgery with chemo Anyone that is wondering about the gamma Knife surgery, it was not bad. It can be done as an outpatient, but I had to stay over night because the pain medication made me sick and they would no release me until i stopped being sick. Don't hesitate to have the surgery, it's not that bad.I have to have an MRI done yearly to see is my tumor has started to grow. Thank GOD so far I have been lucky. I went back to work after 1 year. I am an accountant. I have some memory lapse at times and my mobility gets a little shaky , but otherwise I am doing. Just keep your faith and trust in GOD and we will all make it OK.
carol frenza <cfrenza_AT_yahoo_DOT_com>
Houston, TX - Friday, March 19, 1999 at 21:13:53


Looking for various chat rooms regarding paralysis.
bss <stobar18_AT_yahoo_DOT_com>
- Tuesday, March 16, 1999 at 23:06:27


My 34 year old daughter had surgery for an aneurysm 3 weeks ago. She has progressed nicely for the most part with some loss of motor skills to her left side and appears to have some mental instability in as much as she remembers who her family members are and that she has a new granddaughter but wants deceased members to come to the rehab unit to see her and her new grandchild. It's frustrating to see her stare off into space knowing that she's trying to act like she knows what we are say or is trying to remember something she has no recollection of. Has your research given any indication that her mental capacities can be brought back with rehabilitation?
Sandra Taylor <sandit6_AT_aol_DOT_com>
memphis, TN - Sunday, March 14, 1999 at 22:42:33


i have been diagnosed with galatorrhea and i would like more information about this subject.thanks
Jennifer <jennifer_AT_virtuel.qa.>
- Wednesday, March 10, 1999 at 07:57:15


In 1984, my wife suffered a major subarchnoid brain hemorrage due to the rupture of an AV malformation. She was in her 5th month of pregnancy with our first child. My wife and my child both survived. My wife had surgery at Duke Medical Center to repair the malformation. She still has problems with keeping her balance and with certain mermory loss. She would like to hear from anyone who has a similar experience or problems. There are no support groups in our area. Please send comments to my E-mail and I will pass them on to her. Thank you.
Charles Lowther <lowtherco_AT_hotmail_DOT_com>
Folkston, GA - Thursday, March 4, 1999 at 12:45:48


About a month ago my mom had a brain anurysm and she under gone surgery and she pulled through and now shes halfway healed
amy ferge <snowflake2002.hotmail_DOT_com>
new london , WI - Thursday, February 25, 1999 at 12:57:32


I am 49 and diagnosed approx. 6 years ago with TN.I have tried Tegritol, Dilanton, Baclofen, Nortriptyline,and more, but I finally got complete relief with Lamictal. This is a fairly new drug, and it has no side effects. I have been pain free since Sept. 1998, so I highly recommend Lamictal. This guestbook is a great idea-thanks.
phyllis <pcox_AT_sscc.cc.tn.us>
memphis, tn - Thursday, February 25, 1999 at 09:20:48


My 45 year old husband has recently undergone total resection of a primitive neuroectodermal tumor. He has also been through radiation therapy and we are now entering into the chemotherapy process. I am just curious if anyone has the statistics for survival of this rare tumor or any other information that you could pass on. Thank you!
judy bloomquist <judyb21_AT_juno_DOT_com>
Meridian, ID - Monday, February 22, 1999 at 21:05:12


The web forums have helped me so much.They have helped me more than any medication or therapy ever has.It is nice to have people who can relate to you.
Amy Goff <agoff_AT_email.sjsu.edu>
San Jose, CA - Monday, February 22, 1999 at 02:39:48


Hello everyone surviving and others.I want to invite everyone to a brain injury support group in Salem Mass. If interested please e-mail me? I also want you to visit my home page and sign my guest book. Go ahead just click on my name and visit ? Thank You. "Still Surviving" David R. :)
David R. <ElToro518_AT_aol_DOT_com>
Lynn,, MA. - Sunday, February 21, 1999 at 19:04:17


I'm a thirty-one year old mother of two and suffered a large subarachnoid haemorrhage in June 98 due to congenital AVM. I knew I was epileptic but had no idea about the AVM until last year. In the Uk there's little in the way of patient support following brain surgery for AVM/SAH. If you've suffered similar and you'd like to make contact with someone who understands how it feels, please email direct. Or if you can offer support I'd be very grateful too!
Sandra Woodhall <hello_AT_swoodhall.freeserve.co.uk>
London, - Wednesday, February 17, 1999 at 19:09:32


HELLO, MY NAME IS MICHAEL. THIS ISN'T REALLY A COMMENT ,IT IS A QUESTION. i WAS DX IN APRIL OF 1997, I HAVE BEEN FEELING BAD SINCE NOV.96. I HAD IT REMOVED SEPT.98. WHAT I DONT UNDERSTAND IS WHY MY HEAD FEELS SO BAD? IS NOT PAIN. I HAVE SO MANY SYMPTOMS. AND THE DOCOTRS SAY IT ISNT FROM THE TUMOR. THEN WHAT IS IT?? I JUST DONT UNDERSTAND. I AM A 21 YEAROLD WOMAN WHO FEELS 63. IT IS AN EVERYDAY STRUGGLE FOR M. I CANT EVEN SPEND TIME WITH MY KIDS. weLL I FEEL WORSE WHEN I EAT. I FEEL DIZZY,LIGHT HEADED,WEAK NERVOUS,I FEEL LIKE PASSING OUT ALL THE TIME, MY STOMACH BUBBLES WHEN I EAT AND BEFORE I EAT. MY STOMACH SEEMS LIKE ITS GETING WORSE AND WORSE. LIKE I SAID MY HEAD FELLS WORSE AFTER I EAT. AND WHEN I DONT EAT IT FEELS BAD TOO. I JUST NEED ANSWERS. CAN SOMEONE PLEASE TELL ME WHAT STEPS I SHOULD TAKE TO TO RESOLVE MY PROBLEM TO BE ABLE TO LIVE A NORMAL LIFE AGAIN. TO FEEL NORMAL. THATS ALL I WANT.. I WANT TO KNOW IF THERE IS ANYONE ELSE WITH THE SAME PROBLEMS AND SYMPTOMS AS ME? IS THIS FEELING EVER GONNA END OR GO AWAY? THANKS SO MUCH, ] GOD BLESS YOU.. KEEP ME IN YOUR PRAYERS...... MICAHEL
MICHAEL PATRIDGE <BOOKIE68_AT_AOL_DOT_com>
LONG BEACH, CA - Tuesday, February 16, 1999 at 14:23:24


We are just checking around to know where to send copies of my dad's mri's and biopsy report. We need to know the best brain tumor centers to send them to. He is looking to have surgery done.
Cheri Box <TCBox_AT_aol_DOT_com>
Aurora, Co - Monday, February 15, 1999 at 19:51:09


I have Trigeminaial Neuralgia and am looking for support or help in dealing with chronic pain
mssj8500_AT_aol_DOT_com
swartz creek, mi - Monday, February 15, 1999 at 19:30:24


I started having problems with double vision approximately 6 months ago. I tried new glasses and it only got worse. My doctor suspected Myasthenia Gravis and sent me to a Neurologist. I have had all the complex tests plus a MRI of the brain. The final diagnosis is Ocular Myasthenia Gravis with no signs of general Myasthenia Gravis. Medication is of no help for the double vision. Has anyone lived with this for several months or years? What can I expect and what can I do to help with the situation?
Ron <jimsue_AT_hitter_DOT_net>
- Thursday, February 11, 1999 at 12:04:48


I had surgery for ACM1 in May of 97. Now I'm experiencing the same problems again. Will I have to have the operation?
Jean Hochgesang <jean.a.hochgesang_AT_boeing_DOT_com>
St. Louis, MO - Wednesday, February 10, 1999 at 15:54:08


My mother has suffered with trigeminal neuralgia for 10 years. She would like to have microvascular decompression surgery, but has no insurance. She was seen at the Mayo clinic because we thought she could have surgery there even though money is an issue. We were wrong. Please - anyone out there that knows of funding or a program that can help, please let me know. Thanks!
Tammi Light <t.light_AT_gte_DOT_net>
Kansas City, MO - Wednesday, February 10, 1999 at 01:04:57


My mother has suffered with trigeminal neuralgia for 10 years. She would like to have microvascular decompressioni surgery, but has no insurance. She was seen at the Mayo clinic because we thought she would have surgery there even though money is an issue. We were wrong. Please - anyone out there that knows of funding or a program that can help, please let me know. Thanks!
Tammi Light <t.light_AT_gte_DOT_net>
Kansas City, MO - Wednesday, February 10, 1999 at 01:02:57


NON-PROFIT ORGINAZITIONS: This is the letter that goes out to different types of businesses. We would like to propose to you that by placing our Banner on your Home Page, we will place your organization on a "drop down" bar. Anyone purchasing Advertising (Banners, Buttons & Snap Shots) from The Online Directory will choose which Non-Profit Organization they wish us to donate 10% of the sale to. Your organization will be making money by just having our Banner on your site. We invite you to list your business on "THE ONLINE DIRECTORY" "The Only BUSINESS SEARCH ENGINE You'll Ever Need!" List your business name, address, telephone number (including your extension--if applicable), fax number, slogan / motto, URL (web site) and your e-mail for FREE!!!! That's right--FREE. Due to the overwhelming response to "The Online Directory", We have become one of the ONLY Business / Service orientated Search Engines on the World Wide Web. Find the business you need in a matter of a few clicks. There is no typing involved, let your "mouse do the clicking" for you. To Receive All Of The Above FREE Advertising, Simply Let Your Mouse Begin By Clicking On: http://www.theonlinedirectory_DOT_com If you have any questions or comments, please contact us at any of the below listed methods: Sincerely, Ann Marie The Online Directory 3572 Spencer Street Las Vegas, NV 89109-3174 Telephone: (702) 440-1603 Fax: (702) 369-8213 URL: http://www.theonlinedirectory_DOT_com E-mail: tod_AT_theonlinedirectory_DOT_com
Ann Marie <tod_AT_theonlinedirectory_DOT_com>
Las Vegas, NV - Saturday, February 6, 1999 at 17:29:50


I WOULD LIKE TO E-MAIL A QUESTION REGARDING A PROBLEM I HAVE BEEN HAVING IN HOPES OF GETTING A RECOMMENDATION. THANK YOU.
jodi marton <smarton_AT_qual_DOT_net>
lyndhurst, oh - Friday, January 29, 1999 at 01:16:43


Great site
Dwayne Ramsey <wdramsey_AT_globalbiz_DOT_net>
Taylor, MI - Wednesday, January 27, 1999 at 23:41:02


t
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- Monday, January 25, 1999 at 14:22:31


I am a 72 year old female with Stenosis in the Cervical part of my spine. The pain is terrible. I have had the Cortisone shots, with no success. Can anyone give me any information on other treatments. Or could you tell me about your experience? Thank you.
Rose <pebbles_AT_citrus.infi_DOT_net>
- Thursday, January 21, 1999 at 18:59:36


Thanks for this webpage. I am a High School Senior and have just been accepted into the pre-medical program at the University of Oklahoma. I plan become a neurosurgeon and I am trying to see just what I am getting myself into! Thanks again for the insight!
April Williams <JWill12169_AT_aol_DOT_com>
Allen, TX - Thursday, January 21, 1999 at 14:01:34


I am looking to correspond with someone who has or who knows about Erbs Palsy. My daughter is 5 months old and has it. I would enjoy exchanging stories, etc.
Heather Petersen <thepetes_AT_pacbell_DOT_net>
Vacaville, Ca - Wednesday, January 20, 1999 at 17:47:49


I was dxed w/ Parkinsons Disease 2 1/2 ys ago and i am now 59. I was referred yothese pages by folks at the PWP chat room. I think your information is very readable and recent . keep up the good work
Bruce Morgan <mormaps_AT_snip_DOT_net>
Cherry Hill, NJ - Monday, January 18, 1999 at 15:18:08


I am a medicine student at "La Sapienza" University,Rome, I will graduate at July 1999. I am attending the Neurosurgery/Neurotraumatology Dept. and I am interested twith etiology of Subdural Hematoma and the subdural space. I would like to receive information about Internschip; Residency or research programs in Neurosurgery in the United States, Thank you for attention. My address: Via Virgilio Ramperti,10 Roma 00159 Italy
Emiliano Passacantilli
Rome, Ita - Thursday, January 14, 1999 at 06:08:33


My pain stay's with me constantly; i have been diagnosis with sciatic nerve damage with the pain radiating down both leg. i need to know if surgery is my best option; since i have taken a pain known.
illinoiscarol_AT_worldnet.att_DOT_net
chicago, il - Friday, January 8, 1999 at 08:38:27


Check out www.pituitary_DOT_com! They have a wonderful Q+A forum, plus it's jam-packed with other great information about pituitary disorders!
Jeff Hansen <jhansen_AT_imt_DOT_net>
- Friday, January 8, 1999 at 01:58:23


I read the article in Newsweek Mazagine and I'd like to contact Dr. Michael Moskowitz regarding some remarkable experiences with migraines. If this could be forwarded I'd like to give him the information in order to help others.
Bea <beasylvia_AT_aol_DOT_com>
Burbank, ca - Thursday, January 7, 1999 at 23:29:01


I wish I would have known about this information alot sooner. I have had 4 surgeries for brain aneurisms; 2 ruptured and clipped, 1 other clipped (right side), cranioplasty and a coil placement for a re-occurance. I don't remember all the proper names. My neur-surgeon is not great at explaining and I have not found a support group in this area. From what I've heard from people & Dr's, I should be dead or a semi vegetable. I am not and am 38 (my 1st surgery was in '92). I look forward to reading all the information you have provide and hope that the chat sites prove informative. Thanks.
Cindy Bergman <bergman_AT_telusplanet_DOT_net>
Keoma, AB - Wednesday, January 6, 1999 at 23:49:17


I am looking for overseas support as we are lacking such here in Australia. What educational/emotional support tools are available to me? I would like to chat with an expert neuroradiologist and neurosurgeon about my AVM before treatment begins. Who can help me?
Kerryn Abagi <abagi_AT_bigpond_DOT_com>
Sydney, - Wednesday, January 6, 1999 at 22:09:24


I am trying to find some literature for my mother on Corticalbasal Ganglionic Degeneration. My Aunt has this and we are trying to find out some information on it so we can understand. Please let me know how or where I can get this to print it out for my mother. Thanks I appreciate it!
Lisha Russell <david.russell_AT_gowebway_DOT_com>
Roy, UT - Wednesday, January 6, 1999 at 20:50:01


Hello I'm 33yrs Just surfing on. I would like for people from all over the world to take time and please read my inspired true storings. And to sign my guest book. Thank you and Bless everyone...... David R.
David R. <ElToro518_AT_aol_DOT_com>
Lynn, MA - Saturday, January 2, 1999 at 13:39:52

Disclaimer About Medical Information: The information and reference materials contained herein is intended solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient's own physician. All visitors to this and associated sites from the Neurosurgical Service at MGH agree to read and abide by the the complete terms of legal agreement found at the Neurosurgery "disclaimer & legal agreement." See also: the MGH Disclaimer, the MGH Privacy Policy, and the MGH Interactive Program Disclaimer - © Copyright 2005.
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