| These Public
GuestBooks are intended for Patients, Family and Friends
as a way to:
post Public
information, comments and feedback
post questions
and concerns to which other patients can respond
get in touch
with others that have had similar concerns
or get support
in knowing that there are others with similar problems
But again,
Please do not ask medical treatment questions here
if you want a direct response from us !
|
Neurosurgical Service
at MGH
Thank you for
visiting our pages. We would appreciate it if you would add to our
GuestBook(s). Please choose the the Web Service
that you are interested in.
If you are interested
in a referral
for a medical opinion you should check out the
MGH Neurosurgical Service referral page
or
consult one of the many
speciality pages listed on our site.
We do not (yet)
offer a Web Forum for direct responses to medical related questions.
Try:
THANK YOU !
I'm speak as a
member of the flemmisch assoc. for Epilepsy IKAROS. Soon IKAROS will
go on the Internet on my HTTP://. This site is only available in dutch,
sorry fot it. The Idea grew in Finland, at the 5th European Epilepsy
Conference "Speaking Out". You can reach me AND Ikaros on
my E-mail: sam.declercq_AT_skynet.be (I 'll transfer personal mail
for Ikaros to the Head-quarter in Belgium). Note: Ikaros is not assoc.
for peoples with epilepsy and is not a centre or something. Myself,
've bin through brainchrugery...that's all.
Sam De Clercq <Sam.declercq_AT_Skynet.be>
Ghent, Belgium - Sat Dec 14 17:20:28 1996
I have multiple
sclerosis and I have used several home page sites at Harvard in the
past. I now have an enlarged pituitary gland that showed up in my
MRI a couple of weeks ago. I am doing the follow up blood work for
the endocrine system. I am always appreciative of the quality of information
that is available through your sites. The information that I found
on pituitary gland, pituitary tumors, and treatments was excellent.
Thank you.
Bonnie Longnion <bonnie.longnion_AT_mail.nhmccd.cc.tx.us>
Houston , TX USA - Mon Dec 9 14:23:33 1996
Ihad back surgery
on the L4 and L5 disc back in January of 1995. Everything was okay
until the last couple of months. The pain is returning and I cannot
stand or set for long periods of time
SUSIE CAMPBELL <brucecolton.Campbell_AT_Worldnet.att_DOT_net>
north myrtle beach , sc USA - Sat Nov 30 22:32:01 1996
Testing Date/Time
& Script
CJO
USA - Thu Nov 7 14:19:05 1996
Testing Script
!
CJO <PageServant_AT_Neurosurgery.MassGeneral.org>
USA - Sat Sep 28 10:16:00 1996
UPDATED perl script.
The GuestBook should now post the the guest.htm page, post an e-mail
copy to the user and also post an e-mail copy to the GuestBook owner
(PageServant).
Christopher Owen <PageServant_AT_Neurosurgery.MassGeneral.org>
Boston, MA USA - Tue Sep 24 10:01:52 1996
I had a ruptured
brain aneurysm 2 years ago. I have been having trouble finding information
for family members on coping with this because I find my children
especially, finding it hard to deal with the changes. They have both
disowned me. Family and friends find it hard to deal with me since
I have been so limited in my abilities for so long. The information
I have found from these pages have helped me and I intend to try to
share them with family members so they may understand that I will
never be the same but that they should be so happy for me that I lived
through this and that I have recovered miraculously. Thanks for the
information. I have found it interesting and helpful. I continue my
therapy and hope for the best.
Doris Aase <sales_AT_aasebros_DOT_com>
Tustin, CA USA - Thu Sep 12 16:56:34 1996
I have been searching
for a website with feedback from individuals who have family members
with severe brain damage. Also, information from professionals on
brain damage. Our son, who was 23 at the time, had an accident which
resulted in severe brain damage as well as daily respiratory problems.
We brought him home after dealing with lack of care in a VA hospital.
We have been caring for him at home for 5 years now. He is total care.
The greatest frustration I have as his mother, is the appearance of
disbelief when I share the responses we see at home. These responses
are recognized by all of our family members - his two brothers and
a sister, as well as a grandchild we are raising. He is on a 3 - 4
level of the Glascow scale. He has seizures and is on dilantin. The
seizures are not as frequent as in past years, and we have become
more acquainted with his nervous jerking as a reaction to his environment,
or his reaction of being upset because he has to cough. He will be
30 in September. We do not expect nor anticipate any improvement,
just take it a day at a time. Our largest problems have been difficulty
with nursing agency attitudes, lack of respect for our home and privacy,
and other outside interferences. We love our children, and as far
as this son, all of us want to make him as comfortable as possible
with the life he has. he is with someone all of the time. We even
have a motorhome to take him with us on vacations. He does respond
to his environment. I have been hoping for someone to interact with
who has the same situation - who also has to deal with physician's
who doubt what you, as a stable and realistic mother, has to say.
We care for him at home by our choice because we want to, as a veteran,
we could place him in a home, but wouldn't do that to him. He was
a very fine son who loved his family very much. This is the least
we can do for him. Thanks! - Jean Ann Sullivan
Jean Ann Sullivan <Purdiladi_AT_aol_DOT_com>
Henderson, NV USA - Mon Aug 26 23:13:52 1996
Hello, I very much
enjoyed my four weeks on your service October 1993. Hope all of you
that I met, as well as all others are well. Would be great to hear
from anybody. CHRIS
Christian R. Otterstedde, M.D. <christian_otterstedde_AT_krzmail.krz.uni-heidelberg.de>
Heidelberg, Germany - Thu Aug 15 7:53:46 1996 |
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