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am looking to join a heart chatline or support groups alsotrigeminal neuralgia chatlinr or support groups could you help? sorry first pc for 1 month thank you patsnoop
pat baggett <snoopy_AT_aol_DoT_com>
quincy, mass - Sunday, October 3, 2004 at 21:35:45
well well welll. haveing like most of you here pain and no end to it. i also have pain caused by disc and L4 L5. like most of you i also was given pain killers great they stoped th epain and i lik emost of you went around doing normal things. Until th epain shot down my leg s left at first then the two of them and was left in th estreet unable to get back up. So i was given more pain killers.But this time they did nothing . i often wonder if me thinking when i took pain killers an di felt ok and got up and did every day things only added to where i find myself now. i am haveing an operation on monday the 20 september 2004. i know th erisks and it has been explained to me it takes time to recover and no matter what the rish of being paralised. I feel i was paralised any way as my life could not go on as normal with the 24 hours a day 7 days aweek pain. and to be paralised i could at least have no pain and work as normal. as i am a none walker as it is and to b ehonest to be paralised and feel no pain for just on eday would be a great realeaf. But i am not looking at it that way. I am looking at it as a chance to be NORMAL again. to be able to play with my kids and do the things i did before. as i can do nothing as i am. so I will return with news of how i am after op[eration and what was envolved. But i think we may be overlooking one vital thing us none walkers we have to survive and we have gotten used to being in pain we remember that when we turned to quick we ended up on the floor and tend not to do it again. People looked at us like we where nuts and dident understand that something like back pain can alter ones life so much in such a short time.I know after th eoperation it will be up to me to do all i can to remove the idea of last time i did something i landed on the flat of my back for six weeks . so i will be pushing myself harder than i have been . but if i have no pain that all i want and my life back Yours none walking soon to be runing Brian P Byrne
Brian P Byrne <boxroomproductions_AT_hotmail_DoT_com>
dublin, - Thursday, September 16, 2004 at 11:59:03
I just want to say, that thanks to an excellent neurosurgeon in Wichita, Ks I am 1 of the 1 in 4 that survived a ruptured brain anuerisim in 2001 & then another one in 2003. I have had 2 successful brain surgeries & am doing quite well except for lingering headaches & tenderness to my head of course. Just want to say thanks to all of the qualified neurosurgeons out there!
Pamela Peterson <vcks2-entry_AT_yahoo_DoT_com>
Valley Center, Ks - Friday, July 23, 2004 at 14:50:26
Back in 1988 I went to see Dr.sjellburg for my avm. He proformed proton beam thearpy. I am doing very well. I am very greatful to all the Doctors at Mass. General Thank-you Debra Yeaples (Sutherland)
Debra Yeaples <Yladychloe_AT_aol_DoT_com>
Columbia Station, ohio - Monday, June 7, 2004 at 23:09:09
I have recently read many letters from cancer survivors. Your courage and determination is amazing. My dad had cancer. He attempted chemo but passed away in 2002 - at that time I made a commitment to get involved and support cancer research. So I started a website business where I donate money from every sale over $40 to non-profit organizations... you can select the organization for the donation, and of course, the American Cancer Society (ACS) is one of them. The website has brand new products at great prices. So you get convenient shopping, great products and prices, AND, you create a donation to the ACS! (Use "ACS" Code during checkout.) We need everyone who has been affected by this disease to help - to make a commitment to get involved. I invite you to please visit ***.WestwindCommunity.com and be sure to read the About Us Page, it will explain what I have discussed here in more detail. Please sign-up in the SALES ALERT section (just your email is needed) so I can send you information on great sales items and special discount events. Please share this with your family and friends. Thanks so much ....Amy
amy <HQ_AT_WestWindCommunity_DoT_com>
- Tuesday, May 4, 2004 at 08:00:05
When my granddaughter was born, she appeared normal. By the time she was two and a half months old, she began having seizures. The doctors diagnosed epilepsy and prescribed phenobarbitol. She was seizure free for 6 months and then the seizures started again. More medication was added, but the seizures continued. She was in Children's hospital numerous times and many tests were run. She is now on 3 medications, but she still has seizures. She is now 13 months old, and cannot do anything. She cannot hold her head up or grasp anything with her hands. She has had a muscle biopsy, and today the doctor said that the results were borderline Complex I deficiency. I have 2 questions: Will a muscle biopsy be accurate if read frozen? and What else can we do to help her? I appreciate any help. Thanks. Joann
Joann Runkle <djrunkle_AT_msn_DoT_com>
Columbus, Oh - Tuesday, April 27, 2004 at 15:09:15
Have had TN for about 30 years now. I have taken all the medications prescribed for this. I am currently spending about $400.00 a month on medications and still in a great deal of pain. Insurance companies need to be better informed on TN and the medications needed to relieve the pain. They do not want to cover too many of them. Any suggestions. I am in my early 70's and would like to have some pain free time in my life. Thanks for any help J. Heien Grand Prairie TX.
JULIA HEIEN <bjheien_AT_juno_DoT_com>
GRAND PRAIRIE, TX - Sunday, April 25, 2004 at 23:01:23
Thanks for the info you provided on your website regarding proton radiology. I am currently on an infusion regime of etoposide once each month for three days, followed by 5 days of Temodar pills. Any additional information that you can provide regarding proton radiation would be most appreciated so that I may talk intelligentlly with my Dr. regarding options for this procedure.
M. Paterno <jpswifee_AT_msn_DoT_com>
Charlotte, NC - Wednesday, March 24, 2004 at 20:29:07
My boyfriends family on his mothers side has a history of Huntingtons Disease. Him and his sisters refuse to get tested because they are afraid that if they do have it they will give up and be like their ***. I really want him to get tested but I can't force him to. Please someone help me on how to get him to get tested. I really don't want to lose him.
Michelle <shortygirl_AT_antisocial_DoT_com>
Indian Trail, NC - Sunday, March 21, 2004 at 00:45:05
i think my head is expanding, and i mean, because i have been getting a lot of stires. i am wondering is there something i can do, some type of exam to find what is wrong and i have also been getting a lot of mirage headace since i was 13. i am now 25 and still getting them, and i think my head sworn up whenever those migrane come. every phyical i do, they all tell me i am 100 percent alright, but ithink somethink is wrong. please help
olu <oedegbai_AT_msn_DoT_com>
xenia, oh - Wednesday, January 28, 2004 at 17:56:07
has any body experience of epelim?, i use it to keep my siezures at bay, it works but i get pains that feel like the onset of a siezure, ive persisted to endure this ansd sieures dont come but i'm running SH*&%$ŁT scaredof more attacks, is it the epelim?its worse i think since i increased my dose (to try to reduce these pains thought to be mini-neurological
mike dorrill <michael_DoT_dorrill_AT_fs mail_DoT_net>
bradford, yorks - Tuesday, January 20, 2004 at 14:26:03
Happy New Year!
_
- Thursday, January 1, 2004 at 11:32:32
Disclaimer About Medical Information: The information and reference materials contained herein is intended solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient's own physician. All visitors to this and associated sites from the Neurosurgical Service at MGH agree to read and abide by the the complete terms of legal agreement found at the Neurosurgery "disclaimer & legal agreement." See also: the MGH Disclaimer, the MGH Privacy Policy, and the MGH Interactive Program Disclaimer - © Copyright 2005.
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