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Main GuestBook Thank you for visiting our pages. We would appreciate it if you would add to our GuestBook(s). Please choose the the Web Service that you are interested in, as each Neurosurgical speciality has there own GuestBook. Please Note: This is an unmonitored guestbook. We can not endorse or be responsible for its content. It is not, of course, an appropriate place to seek medical advice; rather to provide mutual support. For medical advice consult your physician. Note: We do not ordinarily edit the posts to these GuestBooks, so please be careful with what information you post. If you do not want to be contacted by others, then do not post your e-mail address. Remember - these are public GuestBooks and search engines will find your e-mail address. Disclaimer About Medical Information: The information and reference materials contained herein is intended solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient's own physician. All visitors to this and associated sites from the Neurosurgical Service at MGH agree to read and abide by the the complete terms of legal agreement found at the Neurosurgery "disclaimer & legal agreement." See also: the MGH Disclaimer, the MGH Privacy Policy, and the MGH Interactive Program Disclaimer - © Copyright 2000. Comments and additional links are also welcomed. If you are interested in a referral for a medical opinion see the MGH Neurosurgical Service referral page or consult one of the many speciality pages listed on our site.
If you are interested in a referral for a medical opinion you should check out the MGH Neurosurgical Service referral page or consult one of the many speciality pages listed on our site. We do not (yet) offer a Web Forum for direct responses to medical related questions. Try:
Add to the Main GuestBook for the MGH Neurosurgical Service THANK YOU ! Information on Referrals to MGH Neurosurgery or to other services at the MGH (MGH Physician Referral Service.) To the MGH Neurosurgical Service Homepage. GuestBook Log Please Note: This is an unmonitored guestbook. We can not endorse or be responsible for its content. For medical advise consult your physician. Dears; The end of migraine surgery, was done by a simple surgery, that can cure all migraine patients without any side effects. All are true, and in surgery results talks. No need to come to me for surgery its a simple surgery, just do a copy about the surgical treatment page and tell any surgeon you know. If he has any question I m ready to answer him. All doctors and drugs in the world cant cure even one migraine patients, because they think that intracranial arteries also cause migraine headache, in my study I prove that only extracranial arteries cause migraine headache, while intracranial cause aura and acompanied symptoms. my abstract entitled Migraine - New Surgical Treatment - has been accepted for the Oral Poster Presentation category for the 2001 Congress of Neurological Surgeons meeting, September 29 - October 4, in San Diego, California. Abstract Number: 173 ***://155.100.34.97/abstracts/search.html Where you can find My abstract: ***.neurosurgery.org click on CNS or ***://***.neurosurgery.org/cns/index.asp click on meetings or ***://***.neurosurgery.org/cns/meetings/index.asp than click on search abstract archives or ***://155.100.34.97/abstracts/search.html you can find my abstract in abstracts on 2001 San Diego, California put in keywords ( migraine) ***://155.100.34.97/abstracts/abstracts.fm or direct to the abstract: ***://cnshome.org/abstracts/abstracts.fm?value=43363&field=recid&html=detail&doscript They don’t want you to know about my new surgery, because they care more about your money. To read about that read this; ***://***.hunterdonhealthcare.org/WebMD/Conditions/Migraine_Headaches/Surgery_Treat_Migraines.asp Best Wishes Ali Sultaneh <loverss_AT_gawab_DoT_com> Damascus, Da - Wednesday, September 24, 2003 at 11:38:29 I don't know where to put this question so am going to try here. My brother had surgery Apr '98 for a meningioma on the L parietal involving the optic nerve, he lost sight in the L eye, the optic nerve is dead. His MRI now shows a 25% growth rate in 6 months. His M was surrounding and part of the carotid artery, they removed what they could and 'cut' off the blood supply to the rest. Now they want to insert a baloon into the L carotid artery, remove it and he can live with one carotid artery? The lymph nodes in his neck are full of 'lumps' so they will be removed prior to the neuro surgery. He is 50 and very active up until now. I really need someone to tell me if you can actually survive with only one carotid. I would appreciate hearing from anyone Thank you Jan Jan <Brier_Isle_AT_yahoo_DoT_ca> - Monday, September 15, 2003 at 01:56:25 I have PN. I like to talk to others who have it in order to learn more about this miserable disease. Judy Duet <granny_AT_mobiletel_DoT_com> Galliano, LA - Tuesday, June 17, 2003 at 18:12:01 My mom, Kathy was in ICU Blake for a month and is now coming home from her second and final surgery and doing very well. Thanks to the staffs at Blake and Ellison for their outstanding effort and care. The Corcorans and Sheridans Tom <Thomas_DoT_corcoran_AT_tfn_DoT_com_DoT_> Boston, m - Monday, June 16, 2003 at 11:09:59 I am a PGY-1 neurosurgery resident planning to initiate my residency PGY-2 in neurosurgery at a US program that appears endangered to close. Does anyone know of any PGY-2 spots available? Sincerely, PGY-1 neurosurgery resident <neurosurgeon7_AT_hotmail_DoT_com> new york, ny - Thursday, June 5, 2003 at 15:45:19 My 21 year old cousin Vinny suffered a AVM Jan. 14, 2003, He was in a Coma for 3 1/2 weeks, he has had 2 brain surgeries. He was in a rehab for 3 months, he will be going back to the original hospital when medicaid allows his next 45 days of rehab in july. He has come along way. Nicole McCormick <nickmick2002_AT_msn_DoT_com> FL - Wednesday, June 4, 2003 at 20:05:20 well,i just wish wed find a proper cure for cancer soon cause i lost my *** last yr when i was 17 n i dont want anybody else to go thru what i did.so i just wish we cud find a cure for cancer soon... angy <coolanks_AT_sify_DoT_com> delhi, delhi - Wednesday, June 4, 2003 at 06:44:12 well,i just wish wed find a proper cure for cancer soon cause i lost my *** last yr when i was 17 n i dont want anybody else to go thru what i did.so i just wish we cud find a cure for cancer soon... angy <coolanks_AT_sify_DoT_com> delhi, delhi - Wednesday, June 4, 2003 at 06:41:19 HELLO, MY LITTLE GIRL HAS DANDY WALKER SYNDROME. SHE WAS BORN AT 38 WKS GESTATIONS BY C-SECTION. SHE HAD NEURAL TUBE DEFECT WITH MENINGOCELE OCCIPITIAL UPON WHICH WAS CORRECTED 3 DAYS AFTER BIRTH.SHE WAS DIAGNOSED WITH DANDY WALKER VARIANT. SHE WAS IN BRENNERS CHILDRENS HOSPITAL IN WAKE FOREST UNIVERSITY /BAPTIST HOSPITAL. THAY WHERE SURPERB WITH HER THEIR. I AM THANKFUL TO THEM ALL. HER NAME IS GRACIE AND SHE WAS TOUCHED BY GRACE, BECAUSE SHE IS AS NORMAL AS ANY 6 MONTH OLD BABY. IF ANY ONE HAS ANY THING THAT MAY BE HELPFUL TO ME ABOUT ANY OF THESE PROBLEMS.I WOULD BE VERY GRATEFUL THANKS DONNA MR.AND MRS. RICHARDSON <DR1LOVEDR2_AT_AOL_DoT_COM> NORTH WILKESBORO, NC - Thursday, May 29, 2003 at 21:06:41 Greetings ~ Have any of you good people out there who are post op for transphenoidal surgery been diagnosed with Rathke's Cleft cyst ? I am freshly post op and would very much like to communicate with someone who has been through this. There is significant damage to my pituitary as well... Thank you for listening. I welcome hearing from you. I wish you all the very best of health. Nan Chambers <nchambers@gwi_DOT_com> Topsham, Maine - Tuesday, April 15, 2003 at 02:10:03 I seen an ENT Doctor yesterday and went for an last minute MRI. PCP called and I was told I have Meningioma, 2.1cm (size of acorn). I trust my PCP, and was told not to worry. Could someone enlighten me about this. I am 66 yrs young. Linda M. W <libra5owl@webtv_DOT_com> Pompano Beach, Fl - Tuesday, April 1, 2003 at 16:21:15 I was first diagnosed with Hydrocephalus when I was thirteen years old.I am now thirty.I have a VP Shunt on the left side of my head and I have had 4 brain surgeries and 1 surgery on my abdomen to remove the extention that was disconnected some how.I guess the hardest part of all this has been the gradual loss of memory.I don't remember what else bothers me about it.I have a wonderful neurosurgeon in Kansas City,Ks. at the University of Kansas Medical center.His name is Dr.Steven B. Wilkinson.He truly is the epitome of a good doctor.I have been told that there is no cure for Hydrocephalus which translates to: This is just one of those things I can't do nothing about.I can and have handed this situation ALL over to God.He has done some awesome work on me to deal with it. I've learned that in every bad situation is a good. It's just cleverly disguised as a pebble in my shoe. For instance, I never see re-runs of most of the television shows and movies I watch. I can hide my own Easter eggs,I can buy my own Christmas presents, and I meet "new" people everyday.(we're still looking for the eggs from Easter of 1994)This all may sound like I'm a little off my rocker but it has become a wonderful coping mechanism. "If you can't fix it,laugh at it." And if anyone wants to pay a mere 50cents, I'll let you put your ear to my head and listen to the waves.For me it's the 'little things' that amuse me and God that keeps me going.God loves me so much that He sent His only Son to take my place on the cross so I could have everlasting life. That my fellow "water-babies" is worth more than all the earthly treasures in the world.I love God more than my next breath and I need Him more than that breath.I absolutely refuse to let satan get any kind of victory in my life. I also know that when you write a person's name, you are supposed to capitalize the first letter but, I don't think satan desrves that. I also have had an Endoscopic third ventriculostomy,obviously, to no avail. I still needed to have a VP shunt put in.I swear if I ever needed a kidney,I am blessed by not needing someone else'.But if I did-I could bet I'd get one from a bed-wetter.(ha!)One time,out of the 5,I had to be placed on the Oncology unit at the K.U. Med. Center because the neurology unit was full.I believe God had His hand in this to remind me not to get so focused on "me" and "mysuffering". The Oncology unit will humble you in an instant. I'm not saying that I thought God was punishing me.I just know that as a human, I tend to get so caught up in "how rough" I have it that I make myself depressed. If I just completely trust God and put it in His hands He will satisfy my aching soul. I forget almost everything, so when I do remember,I thank God for it because it truly is a blessing.I Love God and I'm not ashamed to say so. When the tide is turning in my head and I feel so "alone", God is always there.I just have to ask. Not that it's important,but my e-mail name means: just Have A Little Faith.In my heart,I believe that faith is blindly reaching for God's hand knowing that He'll touch your heart with it.The other perk to all these surgeries is that I can tell "the Jones'es" that I go to the city for a forty-thousand dollar hair cut and that's a low number guess.Well, I'm sure evrybody reading this has had their fill of me.I don't want to become like the turd that wouldn't flush so I'll finish up. This "water on the brain" thing is just another wedgie in the butt of life.I tell people who don't understnd that my water pump is shot and Dr. Wilkinson had to put one in.I just always remember that GOD IS IN CONTROL, not any of us.God does offer a FREE gift of salvation.You just have to admit you are a sinner,ask for forgiveness and ask God to come into your heart.OR, are you 150% sure that if you died right now that you'd go to Heaven? If so,great! If doubt was on your mind or you had to think for a second,the answer is probably no.Make that choice now 'cuz you never know.Good luck with dealing with this Hydrocephalus.I know I'm looking another surgery straight in the eye. I need one but I don't have any insurance so it will have to wait until it's an absolute emergency to do anything.Reminds me of the Discover card commercial where the emergency room doctors are waiting for the guy's credit card to go through before they "shock" him. I wasn't trying to sound like a whiner,I just can't get any insurance company to insure me.Once again, just another wedgie in the butt of life. Well, good luck and God Bless! Kammy Reeves <justhalf30@hotmail_DOT_com> Salina, Ks. - Monday, March 17, 2003 at 21:45:45 my first time to visit this site and so far i think its great. stephanie <smhughes@core_DOT_com> newark, oh - Wednesday, March 12, 2003 at 08:04:56 I had a craineotomy in Sept 2002, to remove a large mennigioma. I have had a complete recovery. I am a facilatator for a new brain tumor support group and am always looking for new things to bring to my group to share. Marianna Hope <garryhope@easlink.ca> Westville, NS - Thursday, March 6, 2003 at 19:14:08 will like to keep myself updated with latest development in neurosurgery. vk gupta <vk_neurocare@hotmail_DOT_com> hisar, haryana - Friday, February 7, 2003 at 10:06:01 I am 25 and very healthy with the notable exception of one potentially fatal flaw. After experiencing four incidences of mild complex-partial, seizures, which occurred in roughly three-month intervals, I went in for an MRI (ironically enough on the Ides of March, 2001), which revealed a 1 cm (in diameter, I assume) lesion in the upper mesial region of my left temporal lobe, “appearing to abut the hippocampus,” as they say. I have been told that it is relatively uniform in texture and well demarcated. Several doctors have posited that it is a low-grade glioma, but this hypothesis has not been confirmed by a biopsy. I am a student of English literature, so, as you can imagine, the location of the lesion is particularly unfortunate. For this reason, I initially refused surgery (probably because I did not quite grasp the magnitude of the risk I was taking) in the hopes that I would at least be able to earn a Master’s degree, a task that I am three months shy of completing. Since my initial diagnosis, I have had regular MRIs, and the lesion has not changed, nor have I had a seizure since beginning a course of lamictal. My only current symptom, if, indeed, it is related to the lesion, has been difficulty concentrating, for which I have been taking adderall (like a hyperactive grade-schooler) with some success. I was recently given a battery of neuropsychological tests, which did not indicate any deficiencies in brain function but did confirm my attention problems, though the doctor administering the tests concluded that condition is developmental. Of course, other neurologists clearly scorn data of this sort, and I myself have serious doubts about the value of the endeavor. An empiricist in the strictest sense, my surgeon has blithely remarked on several occasions that my hippocampus and left temporal lobe are probably functioning sorely sub par and that I am most likely relying heavily on my right hemisphere to get by. Lengthy descriptions out of the way, here are my questions (also selfishly lengthy and strictly unempirical): 1. Is there anything nutritional that can be done to maximize my chances of a full recovery after surgery (if I have it)? I do not eat meat or dairy, and, though I am not willing to start eating meat again, I would consider dairy if it would help reduce brain tissue scarring (here you have the science of a literature major) or strengthen blood vessels. I do bruise easily. 2. I will warn you that my doctors laughed at me for this one, but I will ask it all the same. Is there anything I can do to help train my right brain to take on a larger role in language-related functions? Typing with only my left hand? Reading with only one eye? 3. Speaking of reading, I recently discovered an article by Dr. Tracy Batchelor that suggested there might be a link between brain tumors and the fluctuations in hormone levels that occur in pregnancy. If, indeed, this is the case, could similar hormonal imbalances brought on by other factors also precipitate tumor growth? I have a particular situation in mind, but it’s a long story—to be told upon request. 4. Is it significant that my mother gets migraines and suffered a stroke (as a result of taking birth control pills), my maternal grandfather died of a stroke, my grandmother has atypical migraines, my paternal grandfather died of Parkinson’s, and various types of mental illness have arisen on both sides of my family tree? Nothing good, I imagine. 5. How much can the brain recover (or compensate for its deficiencies) in a person of my age? 6. The last time I had an MRI, one of the doctors (the surgeon again) gave me what I considered a very grim prognosis: that the average lifespan of patients with my condition is 5-8 years after diagnosis. I am almost tempted to submit to my suspicions that the bronchitis the physician in question (with whom I usually get along famously) had contracted contributed greatly to the disclosure, since no one has EVER mentioned anything like this dire before and I don’t really feel like dying. I think other doctors do not agree, but they have been skillfully coy. Indeed, I have had to do everything short of starting a fist fight to get even an admission of uncertainty. Do you (that is an open “you”) have any insights into the matter (that is to say, the question of morbidity)? 7. Is there a non-psychosomatic reason for a heightened sensitivity of smell, taste and touch in a patient such as myself? Well, enough of this prolixity. If someone should get through this mess, I would be eternally grateful for any answers or advice. LJA <grushenka88@hotmail_DOT_com> Atlanta, GA - Thursday, January 30, 2003 at 03:15:22 I have some questions on neurlogy i am a student and i want to do this as a proffesion so can you help me out Kahtie White <KayStallion@Blackplanet_DOT_com> Kalamazoo, MI - Monday, January 6, 2003 at 16:34:44 |
| Disclaimer About Medical Information: The information and reference materials contained herein is intended solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient's own physician. All visitors to this and associated sites from the Neurosurgical Service at MGH agree to read and abide by the the complete terms of legal agreement found at the Neurosurgery "disclaimer & legal agreement." See also: the MGH Disclaimer, the MGH Privacy Policy, and the MGH Interactive Program Disclaimer - © Copyright 2005. | |||
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