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Main GuestBook Thank you for visiting our pages. We would appreciate it if you would add to our GuestBook(s). Please choose the the Web Service that you are interested in, as each Neurosurgical speciality has there own GuestBook. Please Note: This is an unmonitored guestbook. We can not endorse or be responsible for its content. It is not, of course, an appropriate place to seek medical advice; rather to provide mutual support. For medical advice consult your physician. Note: We do not ordinarily edit the posts to these GuestBooks, so please be careful with what information you post. If you do not want to be contacted by others, then do not post your e-mail address. Remember - these are public GuestBooks and search engines will find your e-mail address. Disclaimer About Medical Information: The information and reference materials contained herein is intended solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient's own physician. All visitors to this and associated sites from the Neurosurgical Service at MGH agree to read and abide by the the complete terms of legal agreement found at the Neurosurgery "disclaimer & legal agreement." See also: the MGH Disclaimer, the MGH Privacy Policy, and the MGH Interactive Program Disclaimer - © Copyright 2000. Comments and additional links are also welcomed. If you are interested in a referral for a medical opinion see the MGH Neurosurgical Service referral page or consult one of the many speciality pages listed on our site.
If you are interested in a referral for a medical opinion you should check out the MGH Neurosurgical Service referral page or consult one of the many speciality pages listed on our site. We do not (yet) offer a Web Forum for direct responses to medical related questions. Try:
Add to the Main GuestBook for the MGH Neurosurgical Service THANK YOU ! Information on Referrals to MGH Neurosurgery or to other services at the MGH (MGH Physician Referral Service.) To the MGH Neurosurgical Service Homepage. GuestBook Log Please Note: This is an unmonitored guestbook. We can not endorse or be responsible for its content. For medical advise consult your physician. Would like information/website on 'vegus nerve implant' utilizing a magnet that stimulates nerve/impulse to stop seizures. Ron S. <ronsomerville@wvdhhr.org> Parkersburg, WV - Wednesday, December 18, 2002 at 10:10:14 I had a brain anurism in Oct. of last year. I am now back "home" from my home in Mississippi. I'd really appreciate some info/feedback from other survivors. The days are long for me! Marianne Rankin <andrew_39506@hotmail_DOT_com> Montreal, - Tuesday, November 19, 2002 at 14:29:15 I am 19 years old and was diagnosed with Alopecia 1 year ago. Although my dermatologist has tried many different things they've only resulted in temporary hair growth, eventually it falls out again. MY condition worsens each day. It effects me physically and emotionally. I don't know what to do. If anyone has any information or suffers from the same kind of condition; please e-mail me. Michele Reed <vampireslayerchic@yahoo_DOT_com> Lock Haven, PA - Monday, November 18, 2002 at 12:52:14 My husband has been diagnosed with "Brachioplexisopethies" - I'm interested in any treatments for this. gina jennings <jennings@cal_DOT_net> placerville, ca - Wednesday, November 6, 2002 at 15:57:11 i have hydrosephalus since i was born. i have had 6 shunt malfunctins from 5 months to 5 years. it has been 17 years since my last operation. i am doing a bit of lifting. like blocks and some other things. it seems like when i lift or do strenues work for a while. then my shunt starts hurting. has this happened to any one. could be scar tissue that is causeing the problem. i would like to here from someone. glenn glenn miller <glennericmiller@yahoo_DOT_com> lincoln city , oregon - Sunday, November 3, 2002 at 05:26:00 Thank You Dr. Ogilvy and Staff for saving our lives, the three sister named above. It is now exactly 5 years since our surgeries and we are each enjoying our children and grandchildren. We continue to offer to tell our story and expand on the fact that aneurysms DO seem to run in families, and without you suggesting that to us we may not be together, alive and happy today. Diane, Mary & Helen <AneurysmFamily@aol_DOT_com> Portsmouth, NH - Tuesday, October 22, 2002 at 06:59:44 I am 42 years old, and have been diagnosed with hydrocephalus since age 10. Between the ages of 10 - 14, I had 20 shunts and revisions. If it were not for the skill of 3 neurosurgeons here in Albuquerque, Drs. Miller, Martinez, and Gold, I would not be alive today to write this message. Over the course of treatmeent, I have had numerous shunts, Tjorkelson's Proceedure, surgeries #1 and 20, multiple left and right VP shunts and 2 ventriculo/pleural shunts where I almost drowned on my own spinal fluid. Surgeries 21 - 24 were to remove junk tubing that cause problems or floated to the surface of the skin. I was asymptomatic from 1978 until May 1998 when my pump collapsed. Now I am back to a right VP shunt. That was surgery 25 and surgery 26 was to place a bypass shunt around a section of shunt 25 that had become infected. There was great concern that the infection was outsinde the shunt as opposed to inside as had it been inside, the neurosurgeons would have had to remove all of the junk tubing that is left inside of me. That would include VP shunts, both of the pleural shunts, a Tjorkelson shunt as well as a piece of shunt that has broken off and floated into the fourth ventricle. My block is non-communicating in the third ventricle. Please feel free to contact my via E-mail if I am able to answer any further questions. Thank you for providing this web-site. James D Deverman <Code11ads1@aol_DOT_com> Albuquerque, NM - Monday, September 30, 2002 at 00:53:52 i have a long story and i'm at my wits end. as a water maintenance worker and pipe layer, my doctor summised that the thrombophlebitis in my left leg was due to the trauma caused by the daily use of the jack-hammer over a period of eight years on a daily basis. I had angio-everything which led to a shunt replacing my main artery in my left leg. now six years later, workers comp. wants to settle my claim even tho the attaining physican insists that in four more years or less the shunt will have to be replaced. at age 48 i've been forced into medical retirement which pays about 300 a month, workers comp. benefits have run out, i can't find suitable employment anywhere and can barely walk without expierencing leg fatigue and pain. my left foot is turning red to black and open sores are now found between my toes with dead skin falling off. medical benefits for my wife and me have run out and at our age that's just stupid to live without it. just try to get medical coverage with this pre existing condition at my monthly retirement salary. and besides i'm not that great at housekeeping and rattleing them pots and pans. our marriage of 14 years has suffered and continues to do so.I'm still a struggling u.s.marine vietnam vet.where do i go now. what do i do. Lord have mercy on me and God bless my country and the American way. please help me help myself and my family and my loved ones. eddie morningstarR wakan tankan kici un! eddie morningstarR <morringstar @ aol_DOT_com> corona, ca. - Friday, September 20, 2002 at 06:40:44 Hello Deidre and Dr. O, thank you for saving my life 5 years ago this week. I have started an online support Group and encourage other survivors and family members to contact me about joining. We talk serious but we also laugh a lot, especially at ourselves. Each of us have a unique and interesting story which we freely share with other members. To join or have questions about the group contact me, Dianady@aol_DOT_com and I will attempt to assist you. All are welcome including patients and families. Diane Dudley <Dianady@aol_DOT_com> Portsmouth, NH - Wednesday, August 28, 2002 at 01:31:59 thank you giving me the chance to learn about epilepsy. I'm 55 and have had grand mal seizures for 45 yrs. The knowledge that my parents had was limited to what the drs told them. My dad was in denial about my condition. Ther was nothing wrong with his little girl. I can get a job(on the bottom of the ladder) but when I have a seizure or my employer finds out that I have this hidden condition, I'm fired. THE ADA hasn't really helped me, but there is hope for the future generations who have to deal with this quiet illness. I'm interested in talking to a well knowen person who deals with epilepsy every day. To have seizures and to be the viewer is too different sceens. I am taking dilantin & phenbartial, those are the only drugs I have ever taken. Please hear me and help. Thank you for your time. Janet Billows Janet Billows <msjjb@hotmail_DOT_com> Burbank, il - Wednesday, August 21, 2002 at 18:30:35 Would someone please send to me the address of Dr.Marnay in Montpellier or how I best contact he or his team? Has anyone had experience with cervical disc joint replacement rather than MED? I am looking for the most experienced surgeon as I have had the most dismal and painful result post MED. I have more pain weakness and numbness and have lost my livelyhood. Robin Hennessy <rjhmd@carolina.rr_DOT_com> Charlotte, NC - Thursday, August 15, 2002 at 11:01:02 It is unfortunate that the neurology department is so overloaded that patients have to wait 3 or 4 months to see a neurologist regardless of need. Chuck Rossier <chuck_rossier@hotmail_DOT_com> Merrimack, NH - Saturday, July 27, 2002 at 02:42:19 I just suffered from a brain aneurysm in January, 2002. The first headache I had was during lumbar epidural steriod in December, 1997. I had an epiduural blood clot patch a week later. Could that have caused the aneurysm? Sue Mortenson <suemortenson@mcshi> Hutchinson, MN - Wednesday, July 17, 2002 at 06:04:33 I have been diagnosed with 2 Tarlov's cysts in thoracic area after CT scan and MRI due to pain under right rib that I thought might be my gall bladder but was not. I am interested in anyone who has had recent treatment successes. Ann Rosenthal <annebody@earthlink_DOT_net> Sarasota, Fl - Friday, June 28, 2002 at 19:05:21 My mother, age 82 WALKED into her local hospital in 1999 to receive an epidural shot to relieve the pain in her left leg. As a result she became paralysed on her right side. Spent 4 months in nursing home rehab. Now is dependent on a walker and wheelchair and others to take care of her. I am wondering if anyone has ever heard of this happening to anyone else. D. Cole <Caprijabbo@aol_DOT_com> - Thursday, June 13, 2002 at 11:46:58 I would like to hear from anyone with info on brain cancer. My father was diagnosed about 5 months ago. His condition is so weak and he is paralysed. He could not talk and even to open his eyes. He underwent 5 times of radiology. The doctor say his tumour in his head is bigger than a golf ball and there are 2 smaller ones. I would really like to here from anyone who went through this or something similar. Fion <flor@hotmail_DOT_com> - Wednesday, March 13, 2002 at 10:27:28 My grandaughter has Childhood glioma, responded well to radiotherapy but has today relapsed. I am looking for the latest procedures that are available to treat this condition. I heard that water laser therapy is an option, where can I find out more about this treatment and where is it available. Colin Bosley <c.bosley@carelinknz_DOT_com> Auckland, - Tuesday, February 26, 2002 at 18:53:18 I've had an SAH, and while being treated an AVM was discovered. I seem to have a wonderful neurosurgeon here in Syracuse at SUNY Upstate Medical Univ., but want to know more going forward about treatment options and other facilities treating AVM patients. Thank you. Anne Fleischman anne fleischman <a_fleischman@hotmail_DOT_com> Cazenovia, NY - Sunday, February 10, 2002 at 11:44:16 i have hydrosephalus. i am wondering if anybody knows why my face gets puffy when iget migraines. it usually starts hurting around the shunt.is ther anybody with hydrosephalus from minnesota. glenn miller <glennericmiller@yahoo_DOT_com> lake bronson, mn - Monday, February 4, 2002 at 21:31:01 I lost my left eye due to childhood glaucuma and I now have a prosthesis. Recently, I started seeing some weird shapes and shadows covering my vision. These shapes and shadows seem to move in coordination with my eyes and make me very nervous anxious and don't let me get enough sleep at night. These shapes seem to cover my vision, and make things look blurry at times. These shapes also seem like they are covering my body and make my bones and joints crack. I have irregular and frequent bowel movements and also my head, hands and feet go numb at times. Please let me know if anyone has had experience with such symptoms and how you have dealt with it. Stelios Stylianou <djbabe_r@hotmail_DOT_com> Nicosia, - Saturday, February 2, 2002 at 07:12:20 I would appreciate any information on removal of a meningeoma tumor of the brain. This is the size of a tennis ball and in a 74yr old man. lynn dorsch <lynnd430@earthlink_DOT_net> Naples, Fl - Tuesday, January 22, 2002 at 12:08:41 Thanks for the helpful information. I was diagnosed with two meningiomas 12-17-01. I am trying to learn as much as I can about the needed sugery, possible complications, recovery time and anything else that would be of help. I have some time to research this "problem" so please help me to understand as much as possible. By the way , these tumors were found while looking for the cause of some other health problems. So, I am "Unluckily Lucky." I know that God will see me through this as He has always. I have an excellent support system in place, but would love to have more. Thanks in advance for any and all help. Martistene D. Williams <MARTIDW50@cs_DOT_com> Albany, GA - Sunday, January 6, 2002 at 20:27:15 I have a friend in the lower 48 that has a disorder fhat affects the spinal collum. The diagnosis he received said that there was no cure. From what I get from him, thr vertibray in the thoractic reigon are fusing together. The abreviation for this condition is (disc or disk) If you can help me in any way please e-mail me Thanks Charlie Charles Banzhof <Monsterguard@worldnet..att_DOT_net> Palmer, ak - Tuesday, January 1, 2002 at 23:40:28 |
| Disclaimer About Medical Information: The information and reference materials contained herein is intended solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient's own physician. All visitors to this and associated sites from the Neurosurgical Service at MGH agree to read and abide by the the complete terms of legal agreement found at the Neurosurgery "disclaimer & legal agreement." See also: the MGH Disclaimer, the MGH Privacy Policy, and the MGH Interactive Program Disclaimer - © Copyright 2005. | |||
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