Link Disclaimer:
"Links" are provided only as an informational resource as
a "Patient-to-Patient" service. Please note that many of
the links provided below are not on one of the MGH Neurosurgical Service
servers and are not maintained by us or affiliated with any services
provided by us.
Pain
links:
Surgery can dramatically benefit people
suffering from certain pain syndromes, particularly those characterized
by paroxysmal pain such as trigeminal and
glossopharyngeal neuralgia (though medications such as carbamazepine/Tegretol
are often also effective and should be tried first.) Chronic pain
not caused by direct pressure on nerves usually requires treatments
other than surgery. The following may be sources of useful information
for people (and their loved ones) experiencing such a pain syndrome.
Resources at MGH for such patients are abundant. The appropriate
resource here is usually best identified by calling the MGH Physician's
Referral Service . Resources related to chronic pain include
the following:
Parkinson's
Diseases Links:
Information about movement disorders
such as Parkinson's disease and dystonia with special emphasis on
surgical treatments such as pallidotomy.
- The
Parkinson's Unity Walk
- Parkinson's
disease information (addresses and telephone numbers of
organizations)
- Information of about the surgical
treatment of Parkinson's disease for patients whose symptoms
are not adequately controlled by an optimized medical regimen.
- Parkinson's disease severity
rating systems
- The MGH Neurology Parkinson's
Disease Web Forum (select Review
Parkinson's )
- For information about the medical
therapy of Parkinson's Disease at MGH see the Movement
Disorders Unit Homepage
- Parkinson's
disease Listserve(mailing list). TO subscribe send a message
with "SUBSCRIBE PARKINSN" in the body.
- PDLAW: Parkinson's Disease Legal
& Legislative Information Exchange (mailing list)
- To subscribe send e-mail to
majordomo@efn.org with
the following command in the body of the message: subscribe
pdlaw [your_address] (where [your_address] is your e-mail
address).
- Other Parkinson's disease World
Wide Web Sites
- Parkinson's
Web
- The
Parkinson's Digest
- Parkinson Foundation of Canada
Nova
Scotia Division
- Parkinson Society of Ottawa-Carelton
- Parkinson's
Disease Information Center from Jeffrey Kaye (including
definitions and U.S. legislation)
- U.S.
National Institute of Neurological Disorders and Stroke
Parkinson's Disease Guide: Hope
Through Research.
- Shy-Drager
& Parkinson's Page
- American Association for Neurology
articles about Parkinson's Disease [These links are temporarily
dead as the AAN creates its own server]
- More on line articles about
PD
- Antiparkinson's: A
multimedia guide by Pravin K. Mishra, Ph.D., University
of Illinois, Chicago Pharmacology
- A
teaching presentation on Parkinson's Disease from
Yali Friedman
- Parkinson's disease: Making
the diagnosis, selecting drug therapies by Douglis
W. Scharre, MD; Michael E. Mahler, MD; From cnsonline.org
- Parkinson's Disease - Quality
of Life Issues by Barbara Fitzsimmons, RN, MS; Lisette
K. Bunting, RN, MScN; From cnsonline.org
- Special
Report: Parkinson's Disease; From cnsonline.org
- The
Parkinson Patient at Home Robert S. Schwab, MD and
Lewis J. Doshay, M.D.; From cnsonline.org
- Exercises
for the Parkinson's Patient; From cnsonline.org
- Informaton
Parkinson's Disease from the (US) National Institutes
of Neurological Disorders and Stroke
- Indexes of Other PD WWW sites
Spasmodic
Torticollis/Dystonia/Spasticity Links
Other
Epilepsy Resources for Patients, Families, and Other Caregivers:
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